International Observatory on End of Life Care

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Published
The carer's place in the cancer situation: where does the carer stand in the medical setting?
Morris, S. M. & Thomas, C., 06/2001, In: European Journal of Cancer Care. 10, 2, p. 87-95 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The challenges of caring for people dying from COVID-19: a multinational, observational study (CovPall)
Oluyase, A., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F., Bajwah, S., Sleeman, K. & Irene, H., 1/09/2021, In: Journal of Pain and Symptom Management. 62, 3, p. 460-4470 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The challenges of caring for people dying from COVID-19: a multinational, observational study of palliative and hospice services (CovPall)
Oluyase, A., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F., Bajwah, S., Sleeman, K. & Higginson, I. J., 4/11/2020, In: medRxiv.
Research output: Contribution to Journal/Magazine › Journal article
Published
The challenges of end of life care.
Froggatt, K., Hasnip, J. & Smith, P., 2000, In: Elderly Care. 12, 2, p. 11-13 3 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
The changing profile of the family caregivers of older people: a European perspective
Payne, S., 2011, Living with Ageing and Dying: Palliative and End of Life Care for Older People. Gott, M. & Ingleton, C. (eds.). Oxford: Oxford University Press
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
The changing terrain of disability studies
Roulstone, A., Thomas, C. & Watson, N., 2012, Routledge handbook of disability studies . Watson, N., Roulstone, A. & Thomas, C. (eds.). London: Routledge, p. 3-11 9 p. (Routledge handbooks).
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
The circumstances, experiences and preferences of older people at the end of life.
Seymour, J., Witherspoon, R., Gott, M., Ross, H. & Payne, S., 2005, In: European Journal of Palliative Care.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The complexity of nurses' attitudes and practice of sedation at the end of life: a systematic literature review
Abarshi, E. A., Papavasiliou, E., Preston, N., Brown, J., Payne, S. & EURO IMPACT, 05/2014, In: Journal of Pain and Symptom Management. 47, 5, p. 915-925 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The construction of risk of falling among and by older people.
Ballinger, C. & Payne, S., 05/2002, In: Ageing and Society. 22, 3, p. 305-324 20 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The contribution of psychologists to specialist palliative care.
Payne, S. & Haines, R., 2002, In: International Journal of Palliative Nursing. 8, 8, p. 401-406 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The Decision-Making Process for Palliative Sedation for Patients with Advanced Cancer—Analysis from a Systematic Review of Prospective Studies
Belar, A., Arantzamendi, M., Menten, J., Payne, S., Hasselaar, J. & Centeno, C., 8/01/2022, In: Cancers. 14, 2, 301.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Unpublished
The development of a nursing strategy for managing malignant ascites (Oral presentation / Plenary)
Preston, N., 2002, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Published
The development of palliative care knowledge in care homes for older people : the place of action research.
Froggatt, K. A. & Hockley, J., 12/2006, In: Palliative Medicine. 20, 8, p. 835-843 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The 'disabled' body
Thomas, C., 2002, Real bodies: a sociological introduction . Evans, M. & Lee, E. (eds.). Basingstoke: Palgrave, p. 64-78 15 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
The effectiveness and cost-effectiveness of acupressure for the control and management of chemotherapy-related acute and delayed nausea: Assessment of Nausea in Chemotherapy Research (ANCHoR), a randomised controlled trial
Molassiotis, A., Russell, W., Hughes, J., Breckons, M., Lloyd-Williams, M., Richardson, J., Hulme, C., Brearley, S. G., Campbell, M., Garrow, A. & Ryder, W. D., 07/2013, In: Health Technology Assessment. 17, 26, p. 1-114 114 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The effectiveness of a home care nursing programme in the symptom management of patients with colorectal and breast cancer receiving oral chemotherapy: a randomised controlled trial
Molassiotis, A., Brearley, S. G., Saunders, M., Craven, O., Wardley, A., Farrell, C., Swindell, R., Todd, C. & Luker, K., 2009, In: Journal of Clinical Oncology. 27, 36, p. 6190-6198 9 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
The ethics of Internet usage in health and personal narratives research.
Grinyer, A., 2007, In: Social Research Update. Issue
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The ethics of the secondary analysis and continuing usage of qualitative data.
Grinyer, A., 2009, In: Social Research Update. Issue, p. 1-4 4 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The European MyPal study: Developing digital health for adults and children with cancer
Payne, S. (ed.), Salifu, Y. (ed.), Begovic, D. (ed.) & Greenwood, A. (ed.), 16/12/2022, My Pal Project. 40 p.
Research output: Book/Report/Proceedings › Book
Published
The Experience of Adolescents and Young Adults Treated for Cancer in an Adult Setting: A Review of the Literature
Marshall, S., Grinyer, A. & Limmer, M., 1/06/2018, In: Journal of Adolescent and Young Adult Oncology. 7, 3
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The experience of family carers for people with moderate to advanced dementia within a domestic home setting: a systematically constructed narrative synthesis
James, C. O., Walshe, C. & Swarbrick, C., 2/08/2023, In: medRxiv.
Research output: Contribution to Journal/Magazine › Journal article
Published
The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: A qualitative, phenomenological study
Bakthavatsalu, B., Walshe, C. & Simpson, J., 1/06/2023, In: Chronic Illness. 19, 2, p. 339-353 15 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The experience of informal caregivers in providing patient care in hospitals in low- and middle-income countries: A qualitative meta-synthesis
Hogan, U., Bingley, A., Morbey, H. & Walshe, C., 31/10/2022, In: Journal of Health Services Research and Policy. 27, 4, p. 321-329 9 p.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
The experiences of families who support a patient who dies from assisted suicide in Switzerland
Gamondi, C., 4/07/2022, Lancaster University. 201 p.
Research output: Thesis › Doctoral Thesis
Published
The experiences of family caregivers of people with advanced dementia living in nursing homes, with a specific focus on spouses: a narrative literature review
Hennings, J. & Froggatt, K. A., 01/2019, In: Dementia. 18, 1, p. 303-322 20 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The factor structure of the PHQ-9 in palliative care
Chilcot, J., Rayner, L., Lee, W., Price, A., Goodwin, L., Monroe, B., Sykes, N., Hansford, P. & Hotopf, M., 31/07/2013, In: Journal of Psychosomatic Research. 75, 1, p. 60-64 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The feasibility of using Snoezelen within a palliative care day setting : a randomised controlled trial investigating the potential : final report.
Schofield, P., Payne, S. & Brooks, D., 2001, Sheffield: Wilkes Fund, Trent Palliative Care Centre.
Research output: Working paper
Published
The geography of survival from colo-rectal cancer.
Kim, Y-E., Gatrell, A. C. & Francis, B. J., 04/2000, In: Social Science and Medicine. 50, 7-8, p. 1099-1107 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The impact of cancer on parents of adolescents and young people.
Grinyer, A., 2008, Cancer Care for Adolescents and Young Adults. Kelly, D. & Gibson, F. (eds.). Oxford: Blackwell, p. 44-58 15 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
The impact of chemotherapy-related nausea on patients' nutritional status, psychological distress and quality of life
Farrell, C., Brearley, S. G., Pilling, M. & Molassiotis, A., 01/2013, In: Supportive Care in Cancer. 21, 1, p. 59-66 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The impact of the mySupport advance care planning intervention on family caregivers’ perceptions of decision-making and care for nursing home residents with dementia: pretest-posttest study in six countries
Bavelaar, L., Visser, M., Walshe, C., Preston, N., Kaasalainen, S., Sussman, T., Cornally, N., Hartigan, I., Loucka, M., de Giulio, P., Brazil, K., Achterberg, W. & van der Steen, J. T., 1/03/2023, In: Age and Ageing. 52, 3, 9 p., afad027.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Unpublished
The impact of the transition to a care home on residents’ sense of identity: a longitudinal qualitative case study approach
Paddock, K., Walshe, C., Todd, C. & Brown Wilson, C., 2014, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Published
The impact of travel on cancer patient's experiences of treatment : a literature review.
Payne, S., Jarrett, N. & Jeffs, D., 12/2000, In: European Journal of Cancer Care. 9, 4, p. 197-203 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The impact on emotional well-being of being a palliative care volunteer: An interpretative phenomenological analysis
Coleman, H., Sanderson-Thomas, A. & Walshe, C., 1/04/2022, In: Palliative Medicine. 36, 4, p. 671-679 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The importance of place of death in young adults with terminal cancer.
Grinyer, A. & Thomas, C., 05/2004, In: Mortality. 9, 2, p. 114-131 18 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The joys and tribulations of partnership working in care homes for older people.
Froggatt, K. A., Davies, S., Atkinson, L., Aveyard, B., Binney, S., Kent, Y., McCaffrey, S. & Townend, C., 2006, In: Quality in Ageing and Older Adults. 7, 3, p. 26-32 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The language and discourses of bereavement.
Payne, S., Wiles, R. A., Field, D. & Jarrett, N., 2003, In: Proceedings of the British Psychological Society. 11, 1, p. 38-38 1 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The late effects of mantle field radiotherapy : the information and support needs of women survivors of Hodgkin's disease.
Grinyer, A., 07/2010, In: European Journal of Oncology Nursing. 14, 3, p. 183-189 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The modern context of palliative care
Payne, S. A. & Morris, S. M., 26/04/2018, The Changing Face of Volunteering in Hospice and Palliative Care: An International Perspective. Scott, R. & Howlett, S. (eds.). Oxford: Oxford University Press, p. 15-27 13 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Unpublished
The Namaste Care Guide
Walshe, C., 30/05/2022, (Unpublished)
Research output: Other contribution
Published
The Namaste Care Guide Video
Walshe, C., 7/06/2022
Research output: Exhibits, objects and web-based outputs › Digital or Visual Products
Published
The Narrative Correspondence Method: What a Follow-Up Study Can Tell Us about the Longer Term Effect on Participants in Emotionally Demanding Research.
Grinyer, A., 12/2004, In: Qualitative Health Research. 14, 10, p. 1326-1341 16 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The NCRI Cancer Experiences Collaborative: Defining self management
Foster, C., Brown, J., Killen, M. & Brearley, S. G., 2007, In: European Journal of Oncology Nursing. 11, p. 295-297 3 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
The need for early referral to palliative care especially for Black, Asian and minority ethnic groups in a COVID-19 pandemic: Findings from a service evaluation
Chidiac, C., Feuer, D., Flatley, M., Rodgerson, A., Grayson, K. & Preston, N., 1/10/2020, In: Palliative Medicine. 34, 9, p. 1241-1248 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The need for narrative research.
Brown, J., Bingley, A. F. & Payne, S., 2008, In: End of Life Care. 2, 3, p. 62-63 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The need for new perspectives on evaluation of palliative care
Grande, G. & Preston, N., 12/2011, In: Palliative Medicine. 25, 8, p. 737-738 2 p.
Research output: Contribution to Journal/Magazine › Editorial › peer-review
Published
The need to know: informal carers and information.
Morris, S. & Thomas, C., 09/2002, In: European Journal of Cancer Care. 11, 3, p. 183-187 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The need to know: informal carers and information.
Morris, S. M. & Thomas, C., 2002.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
Published
The nursing contribution to qualitative research in palliative care 1990-1999 : a critical evaluation.
Bailey, C., Froggatt, K., Field, D. & Krishnasamy, M., 10/2002, In: Journal of Advanced Nursing. 40, 1, p. 48-60 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The oldest old and GP end-of-life care in the Dutch community: a nationwide study
Abarshi, E., Echteld, M. A., Van den Block, L., Donker, G., Deliens, L. & Onwuteaka-Philipsen, B., 2010, In: Age and Ageing. 39, 6, p. 716-722 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review

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