International Observatory on End of Life Care

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Published
The online use of Violence and Journey metaphors by patients with cancer, as compared with health professionals: a mixed methods study
Semino, E., Demjen, Z., Demmen, J., Koller, V., Payne, S., Hardie, A. & Rayson, P., 1/03/2017, In: BMJ Supportive and Palliative Care. 7, 1, p. 60-66 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The palliative care needs of acute stroke patients : a prospective study of hospital admissions.
Burton, C., Payne, S., Addington-Hall, J. & Jones, A., 09/2010, In: Age and Ageing. 39, 5, p. 554-559 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
E-pub ahead of print
The perception of barriers concerning opioid medicines: A survey examining differences between policy makers, healthcare professionals and other stakeholders
Vranken, M. J. M., Linge-Dahl, L., Mantel-Teeuwisse, A. K., Radbruch, L., Schutjens, M-HDB., Scholten, W., Payne, S. & Jünger, S., 23/12/2019, (E-pub ahead of print) In: Palliative Medicine. 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The perspectives of bereaved family carers on dying at home: the study protocol of 'unpacking the home: family carers' reflections on dying at home
Payne, S., Brearley, S., Milligan, C., Seamark, D., Thomas, C., Wang, X., Blake, S. & Turner, M., 22/11/2012, In: BMC Palliative Care. 11, 5 p., 23.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The physical and practical problems experienced by cancer survivors: a rapid review and synthesis of the literature
Brearley, S. G., Stamataki, Z., Addington-Hall, J., Foster, C., Hodges, L., Jarrett, N., Richardson, A., Scott, I., Sharpe, M., Stark, D., Siller, C., Ziegler, L. & Amir, Z., 07/2011, In: European Journal of Oncology Nursing. 15, 3, p. 204-212 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Unpublished
The physical environment of care for older in-patients at the end of life
Rigby, J., 5/04/2011, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Poster
Unpublished
The physical environment of care for older in-patients at the end of life
Rigby, J., 6/04/2011, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Published
The place of death of cancer patients: can qualitative data add to known factors?
Thomas, C. J., 06/2005, In: Social Science and Medicine. 60, 11, p. 2597-2607 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The place of supportive, palliative and end-of-life care research in the United Kingdom Research Assessment Exercise, 2001 and 2008
Clark, D., Clark, J. & Greenwood, A., 07/2010, In: Palliative Medicine. 24, 5, p. 533-543 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The presence and intensity and the related changes over time of physical symptoms in the dying phase: A prospective cohort study of residents dying in care homes
Partington, L., 09/2020, Lancaster University. 258 p.
Research output: Thesis › Doctoral Thesis
Published
The provision of palliative care for elderly people in community hospitals : best hope or last hope : final report.
Payne, S., Kerr, C., Hawker, S., Seamark, D., Davis, C., Roberts, H., Jarrett, N., Roderick, P. & Smith, H., 2004, Health Foundation.
Research output: Working paper
Published
The provision of palliative care for elderly people in community hospitals : best hope or last hope?
Payne, S., Kerr, C. & Hawker, S., 2002, In: Challenge: Newsletter of the Community Hospitals Association. 33, p. 8
Research output: Contribution to Journal/Magazine › Journal article
Published
The provision of palliative care for elderly people in community hospitals : best hope or last hope?
Payne, S., Kerr, C. & Hawker, S., 03/2002, In: British Psychosocial Oncology Society Newsletter. p. 10-11 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The provision of palliative care in nursing homes and residential care homes: A survey of clinical nurse specialist work.
Froggatt, K. A., Poole, K. & Hoult, L., 09/2002, In: Palliative Medicine. 16, 6, p. 481-487 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Unpublished
The psycho-emotional dimensions of disability. [Guest lecture]
Thomas, C., 2000, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper
Published
The psychosocial needs in cancer: a patient survey.
McIllmurray, M., Morris, S. M., Thomas, C., Soothill, K. L. & Francis, B. J., 10/2000, Proceedings of the 25th ESMO congress. Hamburg
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
The psychosocial needs of cancer patients : findings from an observational study.
McIllmurray, M. B., Thomas, C., Francis, B. J., Morris, S., Soothill, K. L. & Al-Hamad, A., 12/2001, In: European Journal of Cancer Care. 10, 4, p. 261-269 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The psychosocial needs of cancer patients and their main carers.
Thomas, C., Morris, S. M., McIllmurray, M. B., Soothill, K. L., Ledwith, F., Francis, B. J. & Al-Hamad, A., 09/1999, Proceedings of the Lancaster University industry conference. Lancaster: University of Lancaster
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
The psychosocial needs of cancer patients and their main carers.
Thomas, C., Morris, S., McIllmurray, M. B., Soothill, K. L., Francis, B. J. & Harman, J. C., 2001, Lancaster : University of Lancaster.
Research output: Other contribution
Unpublished
The psychosocial needs of cancer patients and their main carers. [Keynote speaker]
Thomas, C., 2000, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Published
The psychosocial needs of cancer patients.
Thomas, C., 06/2000, Proceedings of a seminar at the regional visit by Sir John Pattison, national director of NHS R&D : NHS Executive north west research and development directorate. Manchester: University of Manchester Medical School, Manchester Royal Infirmary
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
The psychosocial needs of patients and their main carers.
Thomas, C., 10/2000, Proceedings of the National conference on co-morbidity. Bolton
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
The rapidly changing location of death in Canada, 1994-2004.
Wilson, D., Truman, C. D., Thomas, R., Faisinger, R., Kovacs-Burns, K., Froggatt, K. & Justice, C., 05/2009, In: Social Science and Medicine. 68, 10, p. 1752-1758 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The readability and content of written information provided to patients and families by palliative care units : a national survey : final report.
Payne, S., Jarrett, N. & Turner, P., 2000, NHS Executive South East.
Research output: Working paper
Published
The research page : supportive and palliative care : cancer experiences.
Payne, S., 2007, In: Hospice Bulletin. 5, 3, p. 3
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The role of psychology in end of life care.
Kalus, C., Beloff, H., Brennan, J., McWilliams, E., Payne, S., Royan, L. & Russell, P., 03/2008, London: The Professional Board of the British Psychological Society.
Research output: Working paper
Published
The role of the district nurse in bereavement care.
Birtwistle, J., Payne, S., Smith, P. & Kendrick, T., 06/2002, In: Journal of Advanced Nursing. 38, 5, p. 467-478 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The role of the health care assistants in supporting district nurses and family carers to deliver palliative care at home: findings from an evaluation project
Ingleton, C., Chatwin, J., Seymour, J. & Payne, S., 2011, In: Journal of Clinical Nursing. 20, 13-14, p. 2043-2052 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The role of the nurse in palliative care settings in a global context.
Payne, S., Ingleton, C., Sargeant, A. & Seymour, J., 2009, In: Cancer Nursing Practice. 8, 5, p. 21-26 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Unpublished
The role of the research nurse (Oral presentation / Plenary)
Preston, N., 2002, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Published
The role of volunteers in hospice bereavement support in New Zealand.
Payne, S., 03/2001, In: Palliative Medicine. 15, 2, p. 107-115 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The significant unmet needs of cancer patients: probing psychosocial concerns.
Soothill, K. L., Morris, S., Harman, J., Francis, B. J., Thomas, C. & McIllmurray, M. B., 11/2001, In: Supportive Care in Cancer. 9, 8, p. 597-605 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Unpublished
The Social Care Needs of Cancer Patients and Their Carers. [Keynote speaker]
Thomas, C., 2002, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Unpublished
The Social Model of Disability and the Rights Discourse: one and the same? [Invited speaker]
Thomas, C., 2009, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Published
The study of mental distress and the (re)construction of identities in men and women with experience of long-term mental distress
Timander, A-C., Grinyer, A. & Möller, A., 03/2015, In: Disability and Society. 30, 3, p. 327-339 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The study protocol of: 'Initiating end of life care in stroke: Clinical decision-making around prognosis
Burton, C., Payne, S., Turner, M., Bucknall, T., Rycroft-Malone, J., Tyrrell, P., Horne, M., Ntambwe, L. I., Tyson, S., Mitchell, H., Williams, S. & Elghenzai, S., 5/12/2014, In: BMC Palliative Care. 13, 8 p., 55.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The UK post-mortem organ retention crisis : a qualitative study of its impact on partners.
Sque, M., Long, T., Payne, S., Roche, W. R. & Speck, P., 02/2008, In: Journal of the Royal Society of Medicine. 101, 2, p. 71-77 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The UK Social Model of Disability: Rescuing a Social Relational Understanding of Disability.
Thomas, C., 2004, In: Scandinavian Journal of Disability Research. 6, 1, p. 22-36 15 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The universal, situational, and personal needs of cancer patients and their main carers.
Soothill, K. L., Morris, S. M., Thomas, C., Harman, J. C., Francis, B. & McIllmurray, M. B., 2003, In: European Journal of Oncology Nursing. 7, 1, p. 5-13 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The use of cognitive interviewing methodology in the design and testing of a screening tool for supportive and palliative care needs.
Ahmed, N., Bestall, J. C., Payne, S., Noble, B. & Ahmedzai, S. H., 06/2009, In: Supportive Care in Cancer. 17, 6, p. 665-673 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The use of interpreters: the experiences of older Chinese people with cancer in the UK.
Payne, S., Chung, M., Gott, M., Seymour, J., Chapman, A. & Froggatt, K., 2008, In: Palliative Medicine. 22, 4, p. 543-543 1 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The use of volunteer counsellors for bereavement support in a study of bereavement services in UK hospices.
Reid, D., Field, D., Payne, S. & Relf, M., 2005, In: European Journal of Palliative Care.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The value of interviewing on multiple occasions or longitudinally
Grinyer, A. & Thomas, C., 2012, The Sage handbook of interview research: the complexity of the craft . Gubrium, J. F., Holstein, J. A., McKinney, K. & Marvasti, A. (eds.). 2nd ed. ed. Thousand Oaks: Sage, p. 219-230 12 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter (peer-reviewed)
Published
The views and perceptions of training in physical health care amongst mental health nurses, managers of mental health nurses and trainers: A systematically constructed narrative synthesis
Jabbie, L., Walshe, C. & Ahmed, F., 1/04/2024, In: International Journal of Mental Health Nursing. 33, 2, p. 309-323
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
The views of adults with Huntington’s disease on assisted dying: a qualitative exploration
Regan, L., Preston, N. J., Eccles, F. J. R. & Simpson, J., 1/04/2018, In: Palliative Medicine. 32, 4, p. 708-715 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
E-pub ahead of print
The views of adults with neurodegenerative diseases on end-of-life care: a metasynthesis
Regan, L., Preston, N. J., Eccles, F. J. R. & Simpson, J., 6/11/2017, (E-pub ahead of print) In: Aging and Mental Health. 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The views of patients with severe chronic obstructive pulmonary disease on advance care planning: a qualitative study
MacPherson, A., Walshe, C., O'Donnell, V. & Vyas, A., 03/2013, In: Palliative Medicine. 27, 3, p. 265-272 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The voluntary contribution to UK childhood bereavement services : locating the place and experiences of unpaid staff.
Rolls, L. & Payne, S., 08/2008, In: Mortality. 13, 3, p. 258-281 24 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Unpublished
Theoretical reflections on Care and Dependency.
Thomas, C., 2005, (Unpublished).
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Published
Theorien der Behinderung: Schlüsselkonzepte, Themen und Personen. [In German]
Thomas, C., 2004, Disability studies : ein Lesebuch. Weisser, J. & Renggli, C. (eds.). Luzern: Ed. SZH/CSPS, p. 31-56 26 p. (Institut für Sonderpädagogik (Zürich).; ISP-Universität Zürich).
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter

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