International Observatory on End of Life Care

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2016
Published
Building a taxonomy of integrated palliative care initiatives: results from a focus group
Ewert, B., Hodiamont, F., van Wijngaarden, J., Payne, S. A., Groot, M., Hasselaar, J., Menten, J. & Radbruch, L., 03/2016, In: BMJ Supportive and Palliative Care. 6, 1, p. 14-20 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Improving palliative care for prisoners: the 'both sides of the fence' study
Turner, J. M., 03/2016, In: Prison Service Journal. 224
Research output: Contribution to Journal/Magazine › Journal article
Published
Quality care as ethical care: a poststructural analysis of palliative and supportive district nursing care
Nagington, M., Walshe, C. & Luker, K., 03/2016, In: Nursing Inquiry. 23, 1, p. 12-23 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Unpacking the impact of older adults' home death on family care-givers' experiences of home
Milligan, C., Turner, J. M., Blake, S., Brearley, S. G., Seamark, D., Thomas, C. J., Wang, X. & Payne, S. A., 03/2016, In: Health and Place. 38, p. 103-111 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
What are the views of hospital-based generalist palliative care professionals on what facilitates or hinders collaboration with in-patient specialist palliative care teams? a systematically constructed narrative synthesis
Firn, J., Preston, N. J. & Walshe, C. E., 03/2016, In: Palliative Medicine. 30, 3, p. 240-256 17 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Strategies designed to help healthcare professionals to recruit participants to research studies (Review)
Preston, N. J., Walshe, C. E., Farquhar, M., Stevinson, C., Ewing, G., Calman, L., Burden, S., Brown Wilson, C., Hopkinson, J. & Todd, C., 29/02/2016, In: The Cochrane Library. 2016, p. 1-23 23 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Towards integration of palliative care in patients with chronic heart failure and chronic obstructive pulmonary disease: a systematic literature review of European guidelines and pathways
Siouta, N., van Beek, K., Preston, N. J., Hasselaar, J., Hughes, S., Payne, S. A., Garralda, E., Centeno, C., van der Eerden, M., Groot, M., Hodiamont, F., Radbruch, L., Busa, C., Csikos, A. & Menten, J., 13/02/2016, In: BMC Palliative Care. 15, 18, 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A post-graduate's guide to doing a literature review in health and social care
Aveyard, H., Payne, S. A. & Preston, N. J., 1/02/2016, Oxford: Oxford University Press. 200 p.
Research output: Book/Report/Proceedings › Book
Published
Euthanasia, assisted dying, and assisted suicide in palliative care settings: reports from the Netherlands, Switzerland, and Washington State (TH323)
Gerson, S., Lewis, D. & Gamondi, C., 02/2016, In: Journal of Pain and Symptom Management. 51, 2, p. 326-327 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A poststructural rethinking of the ethics of technology in relation to the provision of palliative home care by district nurses
Nagington, M., Walshe, C. & Luker, K., 01/2016, In: Nursing Philosophy. 17, 1, p. 59-70 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Barriers to access to opioid medicines: a review of national legislation and regulations of 11 central and eastern European countries
Vranken, M. J. M., Lisman, J. A., Mantel-Teeuwisse, A. K., Jünger, S., Scholten, W., Radbruch, L., Payne, S. A. & Schutjens, M.-H. D. B., 01/2016, In: Lancet Oncology. 17, 1, p. e13-e22 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Parental decision-making on utilisation of out-of-home respite in children's palliative care: findings of qualitative case study research - a proposed new model
Ling, J., Payne, S. A., Connaire, K. & McCarron, M., 01/2016, In: Child: Care, Health and Development. 42, 1, p. 51-59 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Grandparents’ experience of the death of a grandchild from a life-limiting condition: an interpretative phenomenological analysis
Tatterton, M., Morris, S. M. & Walshe, C. E., 2016.
Research output: Contribution to conference - Without ISBN/ISSN › Speech
Published
Orientating disability studies to disablist austerity: applying Fraser’s insights
Dodd, S. R., 2016, In: Disability and Society. 31, 2, p. 149-165 17 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Place of death in the population dying from diseases indicative of palliative care need: a cross-national population-level study in 14 countries
EURO IMPACT, 2016, In: Journal of Epidemiology and Community Health. 70, p. 17-24 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
2015
Published
A grounded theory approach to physical activity and advanced cancer: a qualitative study protocol
Lowe, S. S., Milligan, C., Watanabe, S. M. & Brearley, S. G., 8/12/2015, In: International Journal of Qualitative Methods. 14, 5, 10 p., 1609406915617161.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Identification of challenges to the availability and accessibility of opioids in twelve European countries: conclusions from two ATOME six-country workshops
Linge-Dahl, L., Vranken, M. J. M., Jünger, S., North, K., Scholten, W., Payne, S. A. & Radbruch, L., 12/2015, In: Journal of Palliative Medicine. 18, 12, p. 1033-1039 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Patient and public involvement in research and the Cancer Experiences Collaborative: benefits and challenges
Froggatt, K., Preston, N., Turner, M. & Kerr, C., 12/2015, In: BMJ Supportive and Palliative Care. 5, 5, p. 518-521 4 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Care for people in prison
Turner, M. & Peacock, M., 20/11/2015, Palliative care nursing at a glance. Ingleton, C. & Larkin, P. (eds.). Wiley
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Unaddressed biases in reported prevalence of continuous deep sedation until death
Papavasiliou, E. & Payne, S., 10/2015, In: Journal of Clinical Epidemiology. 68, 10, p. 1241-1242 2 p., 6.
Research output: Contribution to Journal/Magazine › Letter › peer-review
Published
Values Associated with Service User and Public Involvement (UPI) in Health and Social Care Research: a Narrative Review
Gradinger, F., Britten, N., Wyatt, K., Froggatt, K., Gibson, A., Jacoby, A., Lobban, F., Mayes, D., Snape, D., Rawcliffe, T. & Popay, J., 10/2015, In: Health Expectations. 18, 5, p. 661-675 15 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Prognosis in advanced heart failure
Gadoud, A., 21/09/2015, Heart failure and palliative care: a team approach. Johnson, M., Lehman, R. & Hogg, K. J. (eds.). 2nd ed. ed. CRC Press
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
End of life care interventions for people with dementia in care homes: addressing uncertainty within a framework for service delivery and evaluation
Goodman, C., Froggatt, K. A., Amador, S., Mathie, E. & Mayrhofer, A., 17/09/2015, In: BMC Palliative Care. 14, 9 p., 42.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative Medicine journal: What have we done, where should we be going and why?
Walshe, C., 09/2015, In: Palliative Medicine. 29, 8, p. 673-674 2 p.
Research output: Contribution to Journal/Magazine › Editorial › peer-review
Published
A computer-assisted study of the use of violence metaphors for cancer and end of life by patients, family carers and health professionals
Demmen, J. E., Semino, E., Demjen, Z., Koller, V., Hardie, A., Rayson, P. & Payne, S., 17/08/2015, In: International Journal of Corpus Linguistics. 20, 2, p. 205-231 27 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Physical and Psychological Distress Are Related to Dying Peacefully in Residents with Dementia in Long-Term Care Facilities
EURO IMPACT, 07/2015, In: Journal of Pain and Symptom Management. 50, 1, p. 1-8 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Family carers providing support to a person dying in the home setting: a narrative literature review
Morris, S., King, C., Turner, M. & Payne, S., 06/2015, In: Palliative Medicine. 29, 6, p. 487–495 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
How can and should UK society adjust to dementia?
Thomas, C. & Milligan, C., 06/2015, Joseph Rowntree Viewpoint 24 p.
Research output: Contribution to specialist publication › Featured article
Published
Managing end of life medications at home-accounts of bereaved family carers: a qualitative interview study
Payne, S., Turner, M., Seamark, D., Thomas, C., Brearley, S., Wang, X., Blake, S. & Milligan, C., 06/2015, In: BMJ Supportive and Palliative Care. 5, 2, p. 181-188 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Nevasic audio program for the prevention of chemotherapy induced nausea and vomiting: a feasibility study using a randomized controlled trial design
Moradian, S., Walshe, C., Shahidsales, S., Ghavam Nasiri, M. R., Pilling, M. & Molassiotis, A., 06/2015, In: European Journal of Oncology Nursing. 19, 3, p. 282-291 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative care information needs in Central and Eastern Europe and the Commonwealth of Independent States
Juenger, S., Klose, J., Brearley, S., Hegedus, K., Payne, S. & Radbruch, L., 06/2015, In: Journal of Palliative Care. 31, 2, p. 109-117 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Symptom clusters in people living with HIV attending five palliative care facilities in two sub-Saharan African countries: A hierarchical cluster analysis
ENCOMPASS & EURO IMPACT, 12/05/2015, In: PLoS ONE. 10, 5, 12 p., e0126554.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Improving online learning in palliative care: a comprehensive review
Hughes, S., Preston, N. & Payne, S., 8/05/2015.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Outcomes of an EAPC White Paper on core competencies for palliative care social work in Europe
Hughes, S., Firth, P. & Oliviere, D., 8/05/2015.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Published
Evaluation of an advance care planning education programme for nursing homes: a longitudinal study
Baron, K., Hodgson, A. & Walshe, C., 05/2015, In: Nurse Education Today. 35, 5, p. 689-695 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Patient-reported outcome measures for use in gynaecological oncology: a systematic review
Preston, N. J., Wilson, N., Wood, N. J., Brine, J., Ferreira Arcuri, J. & Brearley, S. G., 04/2015, In: BJOG: An International Journal of Obstetrics and Gynaecology. 122, 5, p. 615-622 8 p.
Research output: Contribution to Journal/Magazine › Literature review › peer-review
Published
International palliative care journal club on twitter: experience so far
Whitburn, T., Walshe, C. & Sleeman, K. E., 03/2015, In: BMJ Supportive and Palliative Care. 5, 1, p. 120 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
The study of mental distress and the (re)construction of identities in men and women with experience of long-term mental distress
Timander, A.-C., Grinyer, A. & Möller, A., 03/2015, In: Disability and Society. 30, 3, p. 327-339 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Self-reported knowledge, attitudes, and behaviour towards hospice care and how are these related to training in palliative care: An online survey among oncologists in the Czech republic and Slovakia
Loucka, M., Pasman, R. H., Brearley, S. G., Payne, S. A. & Onwuteaka-Philipsen, B., 1/01/2015, In: Progress in Palliative Care. 23, 1, p. 1-8 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Administering anticipatory medications in end-of-life care: a qualitative study of nursing practice in the community and in nursing homes
Wilson, E., Morbey, H., Brown, J., Payne, S., Seale, C. & Seymour, J., 01/2015, In: Palliative Medicine. 29, 1, p. 60-70 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Core competencies for palliative care social work in Europe: an EAPC White Paper - part 2
Hughes, S., Firth, P. & Oliviere, D., 01/2015, In: European Journal of Palliative Care. 22, 1, p. 38-44 7 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Place and wellbeing: shedding light on activity interventions for older men
Milligan, C., Payne, S., Bingley, A. & Cockshott, Z., 01/2015, In: Ageing and Society. 35, 1, p. 124-149 26 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
(Re)creating the home: the morality of technology in the home in relation to district nursing palliative care
Nagington, M., Luker, K. & Walshe, C., 2015.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Published
Clinical psychology and disability studies: bridging the disciplinary divide on mental health and disability
Simpson, J. & Thomas, C., 2015, In: Disability and Rehabilitation. 37, 14, p. 1299-1304 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Disability
Thomas, C. J., 2015, The Routledge International Handbook of Diversity Studies. Vertovec, S. (ed.). 1st ed. London: Routledge, p. 43-51 9 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Supporting people at home in the last year of life via telephone and video consultation—an evaluation of Gold Line
Gadoud, A., 2015
Research output: Other contribution
2014
Published
The study protocol of: 'Initiating end of life care in stroke: Clinical decision-making around prognosis
Burton, C., Payne, S., Turner, M., Bucknall, T., Rycroft-Malone, J., Tyrrell, P., Horne, M., Ntambwe, L. I., Tyson, S., Mitchell, H., Williams, S. & Elghenzai, S., 5/12/2014, In: BMC Palliative Care. 13, 8 p., 55.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Dying at home: a qualitative study of family carers' views of support provided by GPs community staff
Seamark, D., Blake, S., Brearley, S. G., Milligan, C., Thomas, C., Turner, M., Wang, X. & Payne, S., 1/12/2014, In: British Journal of General Practice. 64, 629, p. e796-803 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative care among heart failure patients in primary care: a comparison to cancer patients using English family practice data
Gadoud, A., Kane, E., Macleod, U., Ansell, P., Oliver, S. & Johnson, M., 25/11/2014, In: PLoS ONE. 9, 11, 11 p., e113188.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Core competencies for palliative care social work in Europe: an EAPC White Paper - part 1
Hughes, S., Firth, P. & Oliviere, D., 7/11/2014, In: European Journal of Palliative Care. 21, 6, p. 300-305 6 p.
Research output: Contribution to Journal/Magazine › Journal article

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