Comfort and clinical events at the end of life of nursing home residents with and without dementia: The six-country epidemiological PACE study

Miranda, R., van der Steen, J. T., Smets, T., Van den Noortgate, N., Deliens, L., Payne, S., Kylänen, M., Szczerbińska, K., Gambassi, G., Van den Block, L. & PACE, O. B. O., 10/03/2020, (E-pub ahead of print) In: International Journal of Geriatric Psychiatry. 9 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Factors Associated with Perception of the Quality of Physicians' End-of-life Communication in Long-Term Care Facilities: PACE Cross-Sectional Study

Barańska, I., Kijowska, V., Engels, Y., Finne-Soveri, H., Froggatt, K., Gambassi, G., Hammar, T., Oosterveld-Vlug, M., Payne, S., Van Den Noortgate, N., Smets, T., Deliens, L., Van den Block, L., Szczerbińska, K., Adang, E., Andreasen, P., Collingridge Moore, D., van Hout, H., Ten Koppel, M., Mammarella, F., & 9 othersMercuri, M., Onwuteaka-Philipsen, B. D., Pivodic, L., Rossi, P., Sowerby, E., Stodolska, A., Wichmann, A., van der Steen, J. T. & Vernooij-Dassen, M., 1/03/2020, In: Journal of the American Medical Directors Association. 21, 3, p. 439.e1-439.e8 8 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Perception of the Quality of Communication With Physicians Among Relatives of Dying Residents of Long-term Care Facilities in 6 European Countries: PACE Cross-Sectional Study

Baranska, I., Kijowska, V., Engels, Y., Finne-Soveri, H., Froggatt, K., Gambassi, G., Hammar, T., Oosterveld-Vlug, M., Payne, S., Van Den Noortgate, N., Smets, T., Luc, D., Van den Block, L. & Szczerbińska, K., 1/03/2020, In: Journal of the American Medical Directors Association. 21, 3, p. 331-337 7 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

European Palliative Sedation Project

Payne, S. A. & Hasselaar, J., 29/02/2020, In: Journal of Palliative Medicine. 23, 2, p. 154-155 2 p.

Research output: Contribution to Journal/Magazine › Editorial › peer-review

Length of stay in long-term care facilities: A comparison of residents in six European countries. Results of the PACE cross-sectional study

Moore, D. C., Payne, S., Keegan, T., Van Den Block, L., Deliens, L., Gambassi, G., Heikkila, R., Kijowska, V., Roeline Pasman, H., Pivodic, L. & Froggatt, K., 29/02/2020, In: BMJ Open. 10, 3, 13 p., e033881.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

International palliative care research priorities: A systematic review

Hasson, F., Nicholson, E., Muldrew, D., Bamidele, O., Payne, S. & McIlfatrick, S., 3/02/2020, In: BMC Palliative Care. 19, 1, 16 p., 16.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Coping strategies of patients with advanced lung or colorectal cancer in six European countries: Insights from the ACTION Study

Jabbarian, L. J., Korfage, I. J., Červ, B., van Delden, J. J. M., Deliens, L., Miccinesi, G., Payne, S., Thit Johnsen, A., Verkissen, M. N., Wilcock, A., van der Heide, A. & Rietjens, J. A. C., 1/02/2020, In: Psycho-Oncology. 29, 2, p. 347-355 9 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

The perception of barriers concerning opioid medicines: A survey examining differences between policy makers, healthcare professionals and other stakeholders

Vranken, M. J. M., Linge-Dahl, L., Mantel-Teeuwisse, A. K., Radbruch, L., Schutjens, M-HDB., Scholten, W., Payne, S. & Jünger, S., 23/12/2019, (E-pub ahead of print) In: Palliative Medicine. 11 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Evaluating the implementation of the PACE Steps to Success Programme in long-term care facilities in seven countries according to the RE-AIM framework

Oosterveld-Vlug, M., Onwuteaka-Philipsen, B., Ten Koppel, M., Van Hout, H., Smets, T., Pivodic, L., Tanghe, M., Van Den Noortgate, N., Hockley, J., Payne, S., Moore, D. C., Kijowska, V., Szczerbińska, K., Kylänen, M., Leppaäho, S., Mercuri, C., Rossi, P., Mercuri, M., Gambassi, G., Bassal, C., & 5 othersDe Paula, E. M., Engels, Y., Deliens, L., Van Den Block, L. & Pasman, H. R., 19/12/2019, In: Implementation Science. 14, 1, 19 p., 107.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Evaluation of a Palliative Care Program for Nursing Homes in 7 Countries: The PACE Cluster-Randomized Clinical Trial

Van Den Block, L., Honinx, E., Pivodic, L., Miranda, R., Onwuteaka-Philipsen, B. D., Van Hout, H., Pasman, H. R. W., Oosterveld-Vlug, M., Ten Koppel, M., Piers, R., Van Den Noortgate, N., Engels, Y., Vernooij-Dassen, M., Hockley, J., Froggatt, K., Payne, S., Szczerbińska, K., Kylänen, M., Gambassi, G., Pautex, S., & 4 othersBassal, C., De Buysser, S., Deliens, L. & Smets, T., 11/11/2019, In: JAMA Internal Medicine. 180, 2, p. 233-242 10 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Agreement of Nursing Home Staff With Palliative Care Principles: A PACE Cross-sectional Study Among Nurses and Care Assistants in Five European Countries

Honinx, E., Smets, T., Piers, R., Deliens, L., Payne, S., Kylänen, M., Barańska, I., Pasman, H. R. W., Gambassi, G., Van den Block, L., Gatsolaeva, Y., Miranda, R., Pivodic, L., Tanghe, M., van Hout, H., Van Den Noortgate, N., Froggatt, K., Onwuteaka-Philipsen, B., Szczerbińska, K., Oosterveld-Vlug, M., & 21 othersWichmann, A. B., Engels, Y., Vernooij-Dassen, M., Hockley, J., Leppäaho, S., Pautex, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Moore, D. C., Pac, A., Kijowska, V., Koppel, M. T., van der Steen, J. T. & Morgan de Paula, E., 1/11/2019, In: Journal of Pain and Symptom Management. 58, 5, p. 824-834 11 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Trained facilitators' experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial

ACTION Consortium, 31/10/2019, In: BMC Cancer. 19, 1, 13 p., 1026.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

A framework for cross-cultural development and implementation of complex interventions to improve palliative care in nursing homes: the PACE steps to success programme

Hockley, J., Froggatt, K., Van den Block, L., Onwuteaka-Philipsen, B., Kylänen, M., Szczerbińska, K., Gambassi, G., Pautex, S. & Payne, S. A., 24/10/2019, In: BMC Health Services Research. 19, 1, 11 p., 745.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)

ten Koppel, M., Onwuteaka-Philipsen, B. D., Van den Block, L., Deliens, L., Gambassi, G., Heymans, M. W., Kylänen, M., Oosterveld-Vlug, M. G., Pasman, H. R. W., Payne, S., Smets, T., Szczerbińska, K., Twisk, J. W. R., van der Steen, J. T., De Groote, Z., Mammarella, F., Mercuri, M., Pivodic, L., Pac, A., Rossi, P., & 14 othersSegat, I., Sowerby, E., Stodolska, A., van Hout, H., Wichmann, A., Adang, E., Andreasen, P., Finne-Soveri, H., Collingridge Moore, D., Froggatt, K., Kijowska, V., Van Den Noortgate, N., Vernooij-Dassen, M. & PACE, O. B. O., 1/10/2019, In: Palliative Medicine. 33, 9, p. 1176-1188 13 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Family members' experiences of assisted dying: A systematic literature review with thematic synthesis

Gamondi, C., Fusi-Schmidhauser, T., Oriani, A., Payne, S. & Preston, N., 1/09/2019, In: Palliative Medicine. 33, 8, p. 1091-1105 15 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Dying in long-term care facilities in Europe: The PACE epidemiological study of deceased residents in six countries

Honinx, E., Van Dop, N., Smets, T., Deliens, L., Van Den Noortgate, N., Froggatt, K., Gambassi, G., Kylänen, M., Onwuteaka-Philipsen, B., Szczerbińska, K., Van Den Block, L., Gatsolaeva, Y., Miranda, R., Pivodic, L., Tanghe, M., Van Hout, H., Pasman, R. H. R. W., Oosterveld-Vlug, M., Piers, R., Wichmann, A. B., & 22 othersEngels, Y., Vernooij-Dassen, M., Hockley, J., Payne, S., Leppäaho, S., Barańska, I., Pautex, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Moore, D. C., Pac, A., Kijowska, V., Ten Koppel, M., Van Der Steen, J. T. & De Paula, E. M., 30/08/2019, In: BMC Public Health. 19, 1, 12 p., 1199.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Consensus on treatment for residents in long-term care facilities: Perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries

Ten Koppel, M., Pasman, H. R. W., Van Der Steen, J. T., Van Hout, H. P. J., Kylänen, M., Van Den Block, L., Smets, T., Deliens, L., Gambassi, G., Froggatt, K., Szczerbińska, K., Onwuteaka-Philipsen, B. D., De Groote, Z., Pivodic, L., Mammarella, F., Mercuri, M., Oosterveld-Vlug, M., Pac, A., Rossi, P., Segat, I., & 11 othersSowerby, E., Stodolska, A., Wichmann, A., Adang, E., Andreasen, P., Finne-Soveri, H., Payne, S., Moore, D. C., Kijowska, V., Van Den Noortgate, N. & Vernooij-Dassen, M., 29/08/2019, In: BMC Palliative Care. 18, 1, 11 p., 73.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Research, recruitment and observational data collection in care homes: Lessons from the PACE study

Moore, D. C., Payne, S., Van Den Block, L., Ten Koppel, M., Szczerbińska, K., Froggatt, K. & PACE consortium, 14/08/2019, In: BMC Research Notes. 12, 1, 6 p., 508.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Recommendations on priorities for integrated palliative care: transparent expert consultation with international leaders for the InSuP-C project

Payne, S. A., Hughes, S., Wilkinson, J., Hasselaar, J. & Preston, N. J., 3/04/2019, In: BMC Palliative Care. 18, 8 p., 32.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Responses to assisted suicide requests: an interview study with Swiss palliative care physicians

Gamondi, C., Borasio, G. D., Oliver, P., Preston, N. & Payne, S., 1/03/2019, In: BMJ Supportive and Palliative Care. 9, 1, p. e7 10 p., e7.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Quality of life trends in people with and without cancer referred to volunteer provided palliative care services (ELSA): A longitudinal study

Walshe, C. E., Preston, N. J., Payne, S. A., Dodd, S. R. & Perez Algorta, G. D., 11/2018, In: Journal of Pain and Symptom Management. 56, 5, p. 689-698 10 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Examining palliative and end of life care research in Ireland within a global context: A systematic mapping review of the evidence

McIlfatrick, S., Muldrew, D. H. L., Hasson, F. & Payne, S., 27/09/2018, In: BMC Palliative Care. 17, 1, 10 p., 109.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Technical-efficiency analysis of end-of-life care in long-term care facilities within Europe: A cross-sectional study of deceased residents in 6 EU countries (PACE)

PACE consortium, 25/09/2018, In: PLoS ONE. 13, 9, 12 p., e0204120.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Ageing and dying in the contemporary neoliberal prison system: exploring the 'double burden' for older prisoners

Turner, M., Peacock, M., Payne, S. A., Fletcher, A. & Froggatt, K. A., 09/2018, In: Social Science and Medicine. 212, p. 161-167 7 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

'Being with' or 'doing for'? How the role of an end-of-life volunteer befriender can impact patient wellbeing: interviews from a multiple qualitative case study (ELSA)

Dodd, S. R., Hill, M., Ockenden, N., Perez Algorta, G. D., Payne, S. A., Preston, N. J. & Walshe, C. E., 09/2018, In: Supportive Care in Cancer. 26, 9, p. 3163-3172 10 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Integrated palliative care networks from the perspectives of patients: A cross-sectional explorative study in five European countries

den Herder-van der Eerden, M., Ebenau, A., Payne, S., Preston, N., Radbruch, L., Linge-Dahl, L., Csikos, A., Busa, C., Van Beek, K., Groot, M., Vissers, K. & Hasselaar, J., 1/06/2018, In: Palliative Medicine. 32, 6, p. 1103-1113 11 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Family carers’ experiences of coping 
with the deaths of adults in home settings: A narrative analysis of carers’ relevant background worries

Thomas, C. J., Turner, M., Payne, S. A., Milligan, C., Brearley, S. G., Seamark, D., Wang, X. & Blake, S., 1/05/2018, In: Palliative Medicine. 32, 5, p. 950-959 10 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Family caregivers' reflections on experiences of assisted suicide in Switzerland: a qualitative interview study

Gamondi, C., Pott, M., Preston, N. & Payne, S., 04/2018, In: Journal of Pain and Symptom Management. 55, 4, p. 1085-1094 10 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Integrating palliative care in long-term care facilities across Europe (PACE): Protocol of a cluster randomized controlled trial of the 'PACE Steps to Success' intervention in seven countries

Smets, T., Onwuteaka-Philipsen, B. D., Miranda, R., Pivodic, L., Tanghe, M., van Hout, H., Pasman, H. R. W., Oosterveld-Vlug, M., Piers, R., Van Den Noortgate, N., B Wichmann, A., Engels, Y., Vernooij-Dassen, M., Hockley, J., Froggatt, K. A., Payne, S. A., Szczerbińska, K., Kylanen, M., Leppaaho, S., Baranska, I., & 5 othersGambassi, G., Pautex, S., Bassal, C., Deliens, L. & Van den Block, L., 12/03/2018, In: BMC Palliative Care. 17, 11 p., 47.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

“Never at ease” – family carers within integrated palliative care: a multinational, mixed method study

Ateş, G., Ebenau, A., Busa, C., Csikos, A., Hasselaar, J., Jaspers, B., Menten, J., Payne, S., van Beek, K., Varey, S., Groot, M. & Radbruch, L., 1/03/2018, In: BMC Palliative Care. 17, 11 p., 39.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Integrated palliative care is about professional networking rather than standardisation of care: A qualitative study with healthcare professionals in 19 integrated palliative care initiatives in five European countries

den Herder-van der Eerden, M., van Wijngaarden, J., Payne, S., Preston, N., Linge-Dahl, L., Radbruch, L., Van Beek, K., Menten, J., Busa, C., Csikos, A., Vissers, K., van Gurp, J. & Hasselaar, J., 13/02/2018, (E-pub ahead of print) In: Palliative Medicine. 12 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Final transitions to place of death: Patients and families wishes

EURO-IMPACT, 1/12/2017, In: Journal of Public Health (United Kingdom). 39, 4, p. e302-e311 10 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

How continuity of care is experienced within the context of integrated palliative care: a qualitative study with patients and family caregivers in five European countries

den Herder-van der Eerden, M., Hasselaar, J., Payne, S., Varey, S., Schwabe, S., Radbruch, L., van Beek, K., Menten, J., Busa, C., Csikos, A., Vissers, K. & Groot, M., 1/12/2017, In: Palliative Medicine. 31, 10, p. 946-955 10 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Outcomes, measurement and effectiveness. Lessons from a pragmatic randomised wait-list trial of volunteer support in palliative care (ELSA)

Walshe, C. E., Dodd, S. R., Hill, M., Ockenden, N., Payne, S. A., Preston, N. J. & Perez Algorta, G. D., 1/12/2017, In: Omsorg. The Norwegian Journal of Palliative Medicine. 34, 4, p. 58-60 3 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Enhancing integrated palliative care: what models are appropriate? A cross-case analysis

Payne, S. A., Hughes, S., Varey, S. E., Hasselaar, J., Preston, N. J. & Eastham, R. K., 28/11/2017, In: BMC Palliative Care. 16, 64, 10 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Is the content of guidelines/pathways a barrier for the integration of palliative Care in Chronic Heart Failure (CHF) and chronic pulmonary obstructive disease (COPD)? A comparison with the case of cancer in Europe

Siouta, N., Van Beek, K., Payne, S., Radbruch, L., Preston, N., Hasselaar, J., Centeno, C. & Menten, J., 28/11/2017, In: BMC Palliative Care. 16, 1, 8 p., 62.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Action learning: an effective intervention to improve cancer related pain management

Kasasbeh, M. A. M., McCabe, C. & Payne, S. A., 11/2017, In: Journal of Clinical Nursing. 26, 21-22, p. 3430-3441 12 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Cancer-related pain management: a review of knowledge and attitudes of healthcare professionals

Kasasbeh, M. A. M., McCabe, C. & Payne, S. A., 11/2017, In: European Journal of Cancer Care. 26, 6, 7 p., e12625.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Hospice volunteers: bridging the gap to the community?

Morris, S., Payne, S., Ockenden, N. & Hill, M., 11/2017, In: Health and Social Care in the Community. 25, 6, p. 1704-1713 10 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review

Jünger, S., Payne, S., Brine, J., Radbruch, L. & Brearley, S., 1/09/2017, In: Palliative Medicine. 31, 8, p. 684-706 23 p.

Research output: Contribution to Journal/Magazine › Journal article › peer-review

International variations in clinical practice guidelines for palliative sedation: A systematic review

on behalf of EURO IMPACT, 1/09/2017, In: BMJ Supportive and Palliative Care. 7, 3, p. 223-229 7 p.

Research output: Contribution to Journal/Magazine › Review article › peer-review