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Majority and Minority Ethnic Family Carers of Adults with Intellectual Disabilities: Perceptions of challenging behaviour and family impact

Research output: Contribution to journalJournal articlepeer-review

<mark>Journal publication date</mark>2010
<mark>Journal</mark>Journal of Applied Research in Intellectual Disabilities
Issue number1
Number of pages11
Pages (from-to)63-74
Publication StatusPublished
<mark>Original language</mark>English


Background  A health service in an English city was concerned about its support to families with adults with intellectual disabilities and challenging behaviour.

Methods  Semi-structured interviews were conducted with seven minority ethnic and seven majority ethnic family members to explore perceptions of challenging behaviour, support and the impact of the person on the family. These were analysed using interpretative phenomenological analysis.

Results  Four themes emerged: (i) A broad range of difficulties with the adult with intellectual disabilities. (ii) Varied relationships with local communities in acceptance and support. (iii) Varied but largely negative relationships with services. (iv) Varied relationships with the person with intellectual disabilities, from highly dependent relationships with negative consequences to more fulfilling relationships. Families from minority ethnic communities were more likely to report negative experiences.

Conclusions  ‘Challenging behaviour’ services need to be considered within a much broader social and community context.