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Majority and Minority Ethnic Family Carers of Adults with Intellectual Disabilities: Perceptions of challenging behaviour and family impact

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Majority and Minority Ethnic Family Carers of Adults with Intellectual Disabilities : Perceptions of challenging behaviour and family impact. / Hatton, Chris; Emerson, Eric; Kirby, S.; Kotwal, Homayra; Baines, Susannah; Hutchinson, Christine; Dobson, K.; Marks, B.

In: Journal of Applied Research in Intellectual Disabilities, Vol. 23, No. 1, 2010, p. 63-74.

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Hatton, Chris ; Emerson, Eric ; Kirby, S. ; Kotwal, Homayra ; Baines, Susannah ; Hutchinson, Christine ; Dobson, K. ; Marks, B. / Majority and Minority Ethnic Family Carers of Adults with Intellectual Disabilities : Perceptions of challenging behaviour and family impact. In: Journal of Applied Research in Intellectual Disabilities. 2010 ; Vol. 23, No. 1. pp. 63-74.

Bibtex

@article{73bde8683bf64aa6919d5e6780c823fa,
title = "Majority and Minority Ethnic Family Carers of Adults with Intellectual Disabilities: Perceptions of challenging behaviour and family impact",
abstract = "Background  A health service in an English city was concerned about its support to families with adults with intellectual disabilities and challenging behaviour. Methods  Semi-structured interviews were conducted with seven minority ethnic and seven majority ethnic family members to explore perceptions of challenging behaviour, support and the impact of the person on the family. These were analysed using interpretative phenomenological analysis. Results  Four themes emerged: (i) A broad range of difficulties with the adult with intellectual disabilities. (ii) Varied relationships with local communities in acceptance and support. (iii) Varied but largely negative relationships with services. (iv) Varied relationships with the person with intellectual disabilities, from highly dependent relationships with negative consequences to more fulfilling relationships. Families from minority ethnic communities were more likely to report negative experiences. Conclusions  {\textquoteleft}Challenging behaviour{\textquoteright} services need to be considered within a much broader social and community context. ",
keywords = "adults;challenging behaviour;ethnicity;families;intellectual disabilities",
author = "Chris Hatton and Eric Emerson and S. Kirby and Homayra Kotwal and Susannah Baines and Christine Hutchinson and K. Dobson and B Marks",
year = "2010",
doi = "10.1111/j.1468-3148.2009.00544.x",
language = "English",
volume = "23",
pages = "63--74",
journal = "Journal of Applied Research in Intellectual Disabilities",
issn = "1360-2322",
publisher = "Wiley-Blackwell Publishing Ltd",
number = "1",

}

RIS

TY - JOUR

T1 - Majority and Minority Ethnic Family Carers of Adults with Intellectual Disabilities

T2 - Perceptions of challenging behaviour and family impact

AU - Hatton, Chris

AU - Emerson, Eric

AU - Kirby, S.

AU - Kotwal, Homayra

AU - Baines, Susannah

AU - Hutchinson, Christine

AU - Dobson, K.

AU - Marks, B

PY - 2010

Y1 - 2010

N2 - Background  A health service in an English city was concerned about its support to families with adults with intellectual disabilities and challenging behaviour. Methods  Semi-structured interviews were conducted with seven minority ethnic and seven majority ethnic family members to explore perceptions of challenging behaviour, support and the impact of the person on the family. These were analysed using interpretative phenomenological analysis. Results  Four themes emerged: (i) A broad range of difficulties with the adult with intellectual disabilities. (ii) Varied relationships with local communities in acceptance and support. (iii) Varied but largely negative relationships with services. (iv) Varied relationships with the person with intellectual disabilities, from highly dependent relationships with negative consequences to more fulfilling relationships. Families from minority ethnic communities were more likely to report negative experiences. Conclusions  ‘Challenging behaviour’ services need to be considered within a much broader social and community context.

AB - Background  A health service in an English city was concerned about its support to families with adults with intellectual disabilities and challenging behaviour. Methods  Semi-structured interviews were conducted with seven minority ethnic and seven majority ethnic family members to explore perceptions of challenging behaviour, support and the impact of the person on the family. These were analysed using interpretative phenomenological analysis. Results  Four themes emerged: (i) A broad range of difficulties with the adult with intellectual disabilities. (ii) Varied relationships with local communities in acceptance and support. (iii) Varied but largely negative relationships with services. (iv) Varied relationships with the person with intellectual disabilities, from highly dependent relationships with negative consequences to more fulfilling relationships. Families from minority ethnic communities were more likely to report negative experiences. Conclusions  ‘Challenging behaviour’ services need to be considered within a much broader social and community context.

KW - adults;challenging behaviour;ethnicity;families;intellectual disabilities

U2 - 10.1111/j.1468-3148.2009.00544.x

DO - 10.1111/j.1468-3148.2009.00544.x

M3 - Journal article

VL - 23

SP - 63

EP - 74

JO - Journal of Applied Research in Intellectual Disabilities

JF - Journal of Applied Research in Intellectual Disabilities

SN - 1360-2322

IS - 1

ER -