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Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
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TY - JOUR
T1 - The impact of the mySupport advance care planning intervention on family caregivers’ perceptions of decision-making and care for nursing home residents with dementia
T2 - pretest-posttest study in six countries
AU - Bavelaar, Laura
AU - Visser, Mandy
AU - Walshe, Catherine
AU - Preston, Nancy
AU - Kaasalainen, Sharon
AU - Sussman, Tamara
AU - Cornally, Nicola
AU - Hartigan, Irene
AU - Loucka, Martin
AU - de Giulio, Paola
AU - Brazil, Kevin
AU - Achterberg, Wilco
AU - van der Steen, Jenny T.
PY - 2023/3/1
Y1 - 2023/3/1
N2 - Backgroundthe mySupport advance care planning intervention was originally developed and evaluated in Northern Ireland (UK). Family caregivers of nursing home residents with dementia received an educational booklet and a family care conference with a trained facilitator to discuss their relative’s future care.Objectivesto investigate whether upscaling the intervention adapted to local context and complemented by a question prompt list impacts family caregivers’ uncertainty in decision-making and their satisfaction with care across six countries. Second, to investigate whether mySupport affects residents’ hospitalisations and documented advance decisions.Designa pretest–posttest design.Settingin Canada, the Czech Republic, Ireland, Italy, the Netherlands and the UK, two nursing homes participated.Participantsin total, 88 family caregivers completed baseline, intervention and follow-up assessments.Methodsfamily caregivers’ scores on the Decisional Conflict Scale and Family Perceptions of Care Scale before and after the intervention were compared with linear mixed models. The number of documented advance decisions and residents’ hospitalisations was obtained via chart review or reported by nursing home staff and compared between baseline and follow-up with McNemar tests.Resultsfamily caregivers reported less decision-making uncertainty (−9.6, 95% confidence interval: −13.3, −6.0, P Conclusionsthe mySupport intervention may be impactful in countries beyond the original setting.
AB - Backgroundthe mySupport advance care planning intervention was originally developed and evaluated in Northern Ireland (UK). Family caregivers of nursing home residents with dementia received an educational booklet and a family care conference with a trained facilitator to discuss their relative’s future care.Objectivesto investigate whether upscaling the intervention adapted to local context and complemented by a question prompt list impacts family caregivers’ uncertainty in decision-making and their satisfaction with care across six countries. Second, to investigate whether mySupport affects residents’ hospitalisations and documented advance decisions.Designa pretest–posttest design.Settingin Canada, the Czech Republic, Ireland, Italy, the Netherlands and the UK, two nursing homes participated.Participantsin total, 88 family caregivers completed baseline, intervention and follow-up assessments.Methodsfamily caregivers’ scores on the Decisional Conflict Scale and Family Perceptions of Care Scale before and after the intervention were compared with linear mixed models. The number of documented advance decisions and residents’ hospitalisations was obtained via chart review or reported by nursing home staff and compared between baseline and follow-up with McNemar tests.Resultsfamily caregivers reported less decision-making uncertainty (−9.6, 95% confidence interval: −13.3, −6.0, P Conclusionsthe mySupport intervention may be impactful in countries beyond the original setting.
U2 - 10.1093/ageing/afad027
DO - 10.1093/ageing/afad027
M3 - Journal article
VL - 52
JO - Age and Ageing
JF - Age and Ageing
SN - 0002-0729
IS - 3
M1 - afad027
ER -