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What process attributes of clinical genetics services could maximise patient benefits?

Research output: Contribution to journalJournal articlepeer-review

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  • Marion McAllister
  • Katherine Payne
  • Rhona MacLeod
  • Stuart Nicholls
  • Dian Donnai
  • Linda M. Davies
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<mark>Journal publication date</mark>2/07/2008
<mark>Journal</mark>European Journal of Human Genetics
Volume16
Number of pages10
Pages (from-to)1467-1476
Publication StatusPublished
<mark>Original language</mark>English

Abstract

There is limited evidence about what process attributes of clinical genetics services may be highly valued by patients and service providers. The aim in this qualitative grounded theory study was to explore what process attributes may be highly valued by those stakeholders. Seven focus groups (n=33) and nineteen one-to-one interviews were conducted (total sample size=52). Five process attributes were identified as highly valued by patients and health professionals: (1) local and accessible services (2) open access and follow-up, (3) coordinated, tailored family care, (4) quality of the patient–clinician relationship and (5) time to talk. These findings will be useful in designing models of service delivery that could be tested in intervention studies.