Research output: Contribution to Journal/Magazine › Journal article › peer-review
Research output: Contribution to Journal/Magazine › Journal article › peer-review
}
TY - JOUR
T1 - What process attributes of clinical genetics services could maximise patient benefits?
AU - McAllister, Marion
AU - Payne, Katherine
AU - MacLeod, Rhona
AU - Nicholls, Stuart
AU - Donnai, Dian
AU - Davies, Linda M.
PY - 2008/7/2
Y1 - 2008/7/2
N2 - There is limited evidence about what process attributes of clinical genetics services may be highly valued by patients and service providers. The aim in this qualitative grounded theory study was to explore what process attributes may be highly valued by those stakeholders. Seven focus groups (n=33) and nineteen one-to-one interviews were conducted (total sample size=52). Five process attributes were identified as highly valued by patients and health professionals: (1) local and accessible services (2) open access and follow-up, (3) coordinated, tailored family care, (4) quality of the patient–clinician relationship and (5) time to talk. These findings will be useful in designing models of service delivery that could be tested in intervention studies.
AB - There is limited evidence about what process attributes of clinical genetics services may be highly valued by patients and service providers. The aim in this qualitative grounded theory study was to explore what process attributes may be highly valued by those stakeholders. Seven focus groups (n=33) and nineteen one-to-one interviews were conducted (total sample size=52). Five process attributes were identified as highly valued by patients and health professionals: (1) local and accessible services (2) open access and follow-up, (3) coordinated, tailored family care, (4) quality of the patient–clinician relationship and (5) time to talk. These findings will be useful in designing models of service delivery that could be tested in intervention studies.
U2 - 10.1038/ejhg.2008.121
DO - 10.1038/ejhg.2008.121
M3 - Journal article
VL - 16
SP - 1467
EP - 1476
JO - European Journal of Human Genetics
JF - European Journal of Human Genetics
SN - 1018-4813
ER -