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International Observatory on End of Life Care

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  1. Conference contribution/Paper
  2. Published

    Medical Students Writing on Death, Dying and Palliative Care: A Qualitative Analysis of Reflective Essays Palliative Medicine.

    Boland, J. W., Dikomitis, L. & Gadoud, A., 1/03/2016, Abstracts of the 9th World Research Congress of the European Association for Palliative Care (EAPC). 6 ed. Vol. 30. (Palliative Medicine).

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Conference contribution/Paper › peer-review

  3. Published

    Systematic literature review of prognostic variables associated with being in the last year of life in patients with heart failure (10th International Congress on Coronary Artery Disease (ICCAD). Florence, Italy, October 13–16, 2013)

    Gadoud, A., Macleod, U. & Johnson, M., 1/10/2013, 10th International Congress on Coronary Artery Disease (ICCAD). Florence, Italy, October 13–16, 2013: Abstracts. Suppl. 2 ed. Vol. 126. p. 501 (Cardiology).

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Conference contribution/Paper › peer-review

  4. Published

    Training for consumer participants in research

    Morris, S. & Twelvetree, T., 2003, The third dimension: a report on the proceedings of a seminar. London: RCGP Research Group, p. 10-12 3 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Conference contribution/Paper › peer-review

  5. Other chapter contribution
  6. Published

    Psychological and social issues

    Payne, S. A., van den Block, L., Hudson, P., Guldin, M-B., Keegan, O., Guo, Q. & Hughes, S., 1/05/2017, Building Integrated Palliative Care Programs and Services. Gómez-Batiste, X. & Connor, S. (eds.). p. 299-316 18 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Other chapter contribution

  7. Conference paper
  8. Published

    Researching an innovative Cottage Hospice model of care: An academic and hospice partnership

    Hughes, S., Barnes, H. E., Turner, M., Yardley, J. & Walshe, C. E., 23/11/2017.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review

  9. Published

    What Difference Does an End-of-Life-Care Strategy Make: Analysis of Contemporaneously Collected National Data Comparing Recognition of the Need for Palliative Care for Cancer and Non-cancer Conditions

    Gadoud, A., Kane, E., Allgar, V., Macleod, U., Oliver, S. & Johnson, M., 1/03/2017.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review

  10. Published

    What are the fears and support needs of those living alone in the last year of life and who responds?

    Hughes, S., Preston, N. J., Varey, S. E., Payne, S. A., van der Eerden, M., Schwabe, S., Busa, C., van Beek, K., Van Ende, S., Csikos, A. & Groot, M., 30/09/2016.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review

  11. Published

    Challenges in living alone near the end of life: an international comparison from the InSup-C project

    Hughes, S., Preston, N. J., Payne, S. A., van der Eerden, M., Ewert, B., Kiss, Z., Busa, C., van Beek, K., van Ende, S., Csikos, A. & Groot, M., 10/06/2016.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review

  12. Published

    Person-centred palliative care in five European countries: the experiences of patients and family carers

    van der Eerden, M., Hughes, S., Varey, S. E., Ewert, B., Schwabe, S., Busa, C., Kiss, Z., van Beek, K., van Ende, S., Csikos, A., Hasselaar, J. & Groot, M., 24/05/2016.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review

  13. Published

    Outcomes of an EAPC White Paper on core competencies for palliative care social work in Europe

    Hughes, S., Firth, P. & Oliviere, D., 8/05/2015.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review

  14. Published

    (Re)creating the home: the morality of technology in the home in relation to district nursing palliative care

    Nagington, M., Luker, K. & Walshe, C., 2015.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review

  15. Unpublished

    The impact of the transition to a care home on residents’ sense of identity: a longitudinal qualitative case study approach

    Paddock, K., Walshe, C., Todd, C. & Brown Wilson, C., 2014, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review

  16. Published

    Balancing acts of work in the third sector: older volunteers’ experience in woodland conservation

    Bingley, A., Collins, A., Varey, S. & Oaks, R., 2014.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review

  17. Unpublished

    Narrative Research Methods in Palliative Care Contexts. [Invited plenary paper]

    Thomas, C., 2008, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper

  18. Published

    Rejecting Care? The disability studies critique.

    Thomas, C., 2007.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper

  19. Published

    Key ‘narrative’ questions to pose in the analysis of cancer interview data.

    Thomas, C., 2007.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper

  20. Unpublished

    What can qualitative data add to knowledge about place of cancer deaths?

    Thomas, C., 2007, (Unpublished). 0 p.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper

  21. Published

    Palliative care services: How do they help patients and families, Bereavement support in hospices, Bereavement and loss: social and cultural dimension.

    Feldman, L. & Payne, S., 05/2006.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review

  22. Published

    Exploring Experience: perspectives in disability studies and medical sociology.

    Thomas, C., 2006.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper

  23. Published

    Problems and Solutions: perspectives in ‘care’ for people living with disability and chronic illness in medical sociology and disability studies.

    Thomas, C., 2005.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper

  24. Published

    Sociologies of Disability: how is disability understood?

    Thomas, C., 2004.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper

  25. Published

    Informal Carers in Cancer Contexts.

    Thomas, C. & Morris, S. M., 2002.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper

  26. Published

    The need to know: informal carers and information.

    Morris, S. M. & Thomas, C., 2002.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper

  27. Published

    The care given by informal carers in cancer contexts.

    Thomas, C., 15/10/2001.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper

  28. Published

    Informal carers in cancer contexts: their activities and needs.

    Thomas, C., Morris, S. M., Harman, J. C. & Mclllmurray, M. B., 2001.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper

  29. Published

    Companions through Cancer: the care given by informal carers in cancer contexts.

    Thomas, C. & Morris, S. M., 2000.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper

  30. Published

    Congruence and tension between the women’s movement and the disability Movement.

    Thomas, C., 2000.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper

  31. Published

    Disabled women and the gendered nature of disability: examples from health care.

    Thomas, C., 2000.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper

  32. Unpublished

    The psycho-emotional dimensions of disability. [Guest lecture]

    Thomas, C., 2000, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper

  33. Published

    Area influences: the experience of place.

    Thomas, C., 2000.

    Research output: Contribution to conference - Without ISBN/ISSN › Conference paper

  34. Poster
  35. Published

    Digital legacy and palliative care: Using technology, design and healthcare partnerships to research how digital information is managed after death

    Nwosu, A., Stanley, S., Norris, J. & Taubert, M., 6/11/2023.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  36. Published

    Developing a ward based research hub in a hospice; improving researcher engagement with staff in the hospice environment to promote research engagement and activity

    Stanley, S., Nwosu, A. & Chapman, L., 6/11/2023.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  37. Published

    Developing a process to support the wellbeing of children facing the death of a parent

    Werner, K., Mayne-Semple, D., Lynch, J. & Nwosu, A., 13/10/2022.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  38. Published

    How can technology be used to support communication in palliative care beyond the COVID-19 pandemic?

    Stanley, S. & Nwosu, A., 13/10/2022.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  39. Unpublished

    Caregiver views and expectations about the use of artificial hydration in the management of dying people with advanced cancer: a questionnaire study

    Nwosu, A., 13/10/2022, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  40. Published

    How can technology be used to support communication in palliative care beyond the COVID-19 pandemic?

    Stanley, S., Nwosu, A. & Chapman, L., 18/05/2022.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  41. Published

    Development of ‘use-cases’ for a digital palliative care bereavement service

    Nwosu, A., Stanley, S., Mulcahy, M-C., Mason, S., Fayoumi, A. & Chapman, L., 18/05/2022.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  42. Published

    How can technology be used to support communication in palliative care beyond the COVID-19 pandemic?

    Stanley, S. & Nwosu, A., 24/03/2022.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  43. Published

    A Narrative Exploration of the Experiences of Informal Caregivers for People with Moderate to Advanced Dementia within a Domestic Home Setting towards the End of Life

    James, C., Walshe, C. & Swarbrick, C., 6/10/2021.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster

  44. Published

    Evaluating the online response to a guide to support people who are caring for dying friends and family, the ‘Deathbed Etiquette: an analysis of Twitter and newspaper comments.

    Nwosu, A., Sanders, K., Elverson, J., Doherty, M. & Gadoud, A., 6/08/2021.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster

  45. Published

    Challenges of undertaking a systematic review to measure residents’ length of stay in care homes

    Collingridge Moore, D., Payne, S., Keegan, T. & Froggatt, K., 2020.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  46. Published

    Understanding implementation strategies to support the delivery of palliative care in long term care facilities (LTCFs): a scoping review from the PACE study.

    Collingridge Moore, D., Payne, S., Ling, J., Van den Block, L. & Froggatt, K., 2019.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  47. Published

    Using Participatory Action Research in the Development of an Innovative Cottage Hospice Model of Care in the United Kingdom

    Hughes, S., Barnes, H. E., Yardley, J., Turner, M. & Walshe, C. E., 2/10/2018.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  48. Published

    Family Members’ Experiences and Needs When Witnessing Diminishing Drinking of a Dying Relative: A Systematic Literature Review

    Pettifer, A., Froggatt, K. A. & Hughes, S., 24/05/2018.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  49. Published

    Perceptions and Experiences of Patients and Informal Caregivers in Advanced Chronic Obstructive Pulmonary Disease: An Exploratory Study

    Fusi-Schmidhauser, T., Froggatt, K. A. & Preston, N. J., 24/05/2018.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  50. Published

    Predictors of length of stay in nursing homes a comparison of residents in 322 nursing homes in six European countries. Results of the EU FP7 PACE study.

    Collingridge Moore, D., Payne, S., Keegan, T., Van den Block, L., Deliens, L., Gambassi, G., Heikkilä, R., Kijowska, V., Pasman, R., Pivodic, L. & Froggatt, K., 2018.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  51. Published

    Length of Stay in Nursing Homes, a Survival Analysis of six European Countries: Results of the EU FP7 PACE Study.

    Collingridge Moore, D., Payne, S., Keegan, T., Van den Block, L., Deliens, L., Gambassi, G., Heikkilä, R., Kijowska, V., Pasman, R. H., Pivodic, L. & Froggatt, K., 2018.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  52. Published

    Frontline direct care workers experiences of providing domiciliary care towards the end of life: a systematic literature review and narrative synthesis

    Hughes, S., Holt, V. L. & Preston, N. J., 19/05/2017.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  53. Published

    Predictors of length of stay before death in nursing homes a systematic review

    Collingridge Moore, D., Froggatt, K., Payne, S. & Van den Block, L., 2017.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

  54. Published

    Engaging nursing homes (NHs) in the PACE study: comparing recruitment in observational and intervention research designs

    Sowerby, E., Collingridge Moore, D., Froggatt, K., Payne, S. & Van den Block, L., 8/06/2016.

    Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review

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