International Observatory on End of Life Care

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Published
The cancer experiences research collaborative (CECo) : building research capacity in supportive and palliative care.
Bailey, C., Wilson, R., Addington-Hall, J., Payne, S., Clark, D., Lloyd-Williams, M., Molassiotis, A. & Seymour, J., 12/2006, In: Progress in Palliative Care. 14, 6, p. 265-270 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Specialist palliative care services response to ethnic minority groups with COVID-19: equal but inequitable—an observational study
Bajwah, S., Koffman, J., Hussein, J., Bradshaw, A., Hocaoglu, M., Fraser, L., Oluyase, A., Allwin, C., Dunleavy, L., Preston, N., Cripps, R., Maddocks, M., Sleeman, K., Irene, H., Walshe, C. & Murtagh, F., 30/04/2024, In: BMJ Supportive and Palliative Care. 14, e1, p. e1478-e1487 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Reflecting on the Long-term (Neurological) End-of-Life Conference
Baker, M., Payne, S., Stanley, C., Bowen, C., Webb, P., Daveson, B., Morrey, V. & O'Connor, M., 04/2010, In: British Journal of Neuroscience Nursing. 6, 4, p. 188-190 3 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Language barriers to defining concepts in medicine: the case of palliative sedation
Bakogiannis, A. & Papavasiliou, E., 11/2016, In: American Journal of Hospice and Palliative Medicine. 33, 9, p. 909-910 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A systematic review with thematic synthesis of the experience of hospitalization in people with advanced chronic obstructive pulmonary disease
Bakthavatsalu, B., Walshe, C. & Simpson, J., 31/10/2021, In: COPD. 18, 5, p. 576-584 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: A qualitative, phenomenological study
Bakthavatsalu, B., Walshe, C. & Simpson, J., 1/06/2023, In: Chronic Illness. 19, 2, p. 339-353 15 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Observation and action research.
Ballinger, C., Yardley, L. & Payne, S., 2004, Research methods for clinical and health psychology. Marks, D. F. & Yardley, L. (eds.). London: Sage, 248 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Discourse analysis : principles, applications and critique.
Ballinger, C. & Payne, S., 12/2000, In: British Journal of Occupational Therapy. 63, 12, p. 566-572 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Falling from grace or into expert hands? : alternative accounts about falling in older people.
Ballinger, C. & Payne, S., 12/2000, In: British Journal of Occupational Therapy. 63, 12, p. 573-579 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The construction of risk of falling among and by older people.
Ballinger, C. & Payne, S., 05/2002, In: Ageing and Society. 22, 3, p. 305-324 20 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Perception of the Quality of Communication With Physicians Among Relatives of Dying Residents of Long-term Care Facilities in 6 European Countries: PACE Cross-Sectional Study
Baranska, I., Kijowska, V., Engels, Y., Finne-Soveri, H., Froggatt, K., Gambassi, G., Hammar, T., Oosterveld-Vlug, M., Payne, S., Van Den Noortgate, N., Smets, T., Luc, D., Van den Block, L. & Szczerbińska, K., 1/03/2020, In: Journal of the American Medical Directors Association. 21, 3, p. 331-337 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Factors Associated with Perception of the Quality of Physicians' End-of-life Communication in Long-Term Care Facilities: PACE Cross-Sectional Study
Barańska, I., Kijowska, V., Engels, Y., Finne-Soveri, H., Froggatt, K., Gambassi, G., Hammar, T., Oosterveld-Vlug, M., Payne, S., Van Den Noortgate, N., Smets, T., Deliens, L., Van den Block, L., Szczerbińska, K., Adang, E., Andreasen, P., Collingridge Moore, D., van Hout, H., Ten Koppel, M. & Mammarella, F. & 9 others, Mercuri, M., Onwuteaka-Philipsen, B. D., Pivodic, L., Rossi, P., Sowerby, E., Stodolska, A., Wichmann, A., van der Steen, J. T. & Vernooij-Dassen, M., 1/03/2020, In: Journal of the American Medical Directors Association. 21, 3, p. 439.e1-439.e8 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Prevalence of symptoms in a community-based sample of heart failure patients.
Barnes, S., Gott, M., Payne, S., Seamark, D., Parker, C. & Small, N., 03/2006, In: Palliative Medicine. 20, 2, p. 140
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A study to explore the characteristics, quality of life and concerns of informal carers of older people with heart failure.
Barnes, S., Gott, M., Payne, S. & Seamark, D., 04/2006, In: Palliative Medicine. 20, 3, p. 357 Abstract number: 462.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Recruiting older people into a large, community-based study of heart failure.
Barnes, S., Gott, M., Payne, S., Parker, C., Seamark, D., Gariballa, S. & Small, N., 12/2005, In: Chronic Illness. 1, 4, p. 321-329 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Coping with Death and Bereavement: Views of Carers' of Older Heart Failure Patients in the UK
Barnes, S., Gott, M., Payne, S., Seamark, D., Parker, C., Small, N. & Gariballa, S., 2007, In: European Journal of Palliative Care. 10th C, p. 145-145 1 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Predicting mortality among a community-based sample of older people with heart failure.
Barnes, S., Gott, M., Payne, S., Parker, C., Seamark, D., Gariballa, S. & Small, N., 2008, In: Chronic Illness. 4, 1, p. 5-12 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Recruiting older people with heart failure into a study exploring palliative care needs.
Barnes, S., Gott, M. & Payne, S., 2005.
Research output: Contribution to conference - Without ISBN/ISSN › Poster
Published
Characteristics and views of family carers in older people with heart failure.
Barnes, S., Gott, M., Payne, S., Parker, C., Seamark, D., Gariballa, S. & Small, N. A., 25/08/2006, In: International Journal of Palliative Nursing. 12, 8, p. 380-389 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Prevalence of symptoms in a community-based sample of heart failure patients.
Barnes, S., Gott, M., Payne, S., Seamark, D., Parker, C., Gariballa, S. & Small, N. A., 09/2006, In: Journal of Pain and Symptom Management. 32, 3, p. 208-216 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Communication in heart failure : perspectives from older people and primary care professionals.
Barnes, S., Gott, M., Payne, S., Seamark, D., Parker, C., Gariballa, S. & Small, N. A., 11/2006, In: Health and Social Care in the Community. 14, 6, p. 482-490 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Advance care planning in nursing homes: a success story
Baron, K. & Walshe, C., 2014, In: BMJ Supportive and Palliative Care. 4, Supplement 1, p. A32-A33 2 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Evaluation of an advance care planning education programme for nursing homes: a longitudinal study
Baron, K., Hodgson, A. & Walshe, C., 05/2015, In: Nurse Education Today. 35, 5, p. 689-695 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Developing country specific questions about end-of-life care for nursing home residents with advanced dementia using the nominal group technique with family caregivers.
Bavelaar, L., Nicula, M., Morris, S., Kaasalainen, S., Achterberg, W., Loucka, M., Vickova, K., Thompson, G., Cornally, N., Hartigan, I., Harding, A., Preston, N., Walshe, C., Cousins, E., Harrison Dening, K., De Vries, K., Brazil, K. & van der Steen, J. T., 30/04/2022, In: Patient Education and Counseling. 105, 4, p. 965-973 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The impact of the mySupport advance care planning intervention on family caregivers’ perceptions of decision-making and care for nursing home residents with dementia: pretest-posttest study in six countries
Bavelaar, L., Visser, M., Walshe, C., Preston, N., Kaasalainen, S., Sussman, T., Cornally, N., Hartigan, I., Loucka, M., de Giulio, P., Brazil, K., Achterberg, W. & van der Steen, J. T., 1/03/2023, In: Age and Ageing. 52, 3, 9 p., afad027.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data
Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R., Preston, N., Fraser, L., Murtagh, F., Irene, H. & Maddocks, M., 28/02/2022, In: Palliative Medicine. 36, 2, p. 216-218 3 p.
Research output: Contribution to Journal/Magazine › Journal article
E-pub ahead of print
Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data
Bayly, J., Bradshaw, A., Fettes, L., Omarjee, M., Talbot-Rice, H., Walshe, C., Sleeman, K. E., Bajwah, S., Dunleavy, L., Hocaoglu, M., Oluyase, A., Garner, I., Cripps, R., Preston, N., Fraser, L. K., Murtagh, F. E., Higginson, I. J. & Maddocks, M., 29/12/2021, (E-pub ahead of print) In: Palliative Medicine. 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A meta-synthesis of the transitioning experiences and career progression of migrant African nurses
Bayou, J., Abboah-Offei, M., Duodu, P. A. & Salifu, Y., 6/04/2023, In: BMC Nursing. 22, 1, 20 p., 104.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
“Resuscitate and Push”: End-of-Life Care Experiences of Healthcare Staff in the Emergency Department – A Hermeneutic Phenomenological Study
Bayuo, J., Anago, E. K., Agyei, F. B., Salifu, Y., Kyei Baffour, P. & Atta Poku, C., 1/10/2022, In: Journal of Palliative Care. 37, 4, p. 494-502 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Forthcoming
Death and Dying: Legal and ethical issues and the palliative care perspective
Begovic, D., Salifu, Y. & Payne, S., expected on 1/02/2025, (Accepted/In press) Diverse Voices in Health Law and Ethics: Important Perspectives. Romanis, E., Germain, S. & Herring, J. (eds.). Bristol: Bristol University Press
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter (peer-reviewed) › peer-review
Published
How to measure the effects and potential adverse events of palliative sedation? An integrative review
Belar, A., Arantzamendi, M., Payne, S., Preston, N., Lee-Rijpstra, M., Hasselaar, J., Radbruch, L., Vanderelst, M., Ling, J. & Centeno, C., 1/02/2021, In: Palliative Medicine. 35, 2, p. 295-314 20 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The Decision-Making Process for Palliative Sedation for Patients with Advanced Cancer—Analysis from a Systematic Review of Prospective Studies
Belar, A., Arantzamendi, M., Menten, J., Payne, S., Hasselaar, J. & Centeno, C., 8/01/2022, In: Cancers. 14, 2, 301.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Exploring the experiences of living with Lewy body dementia: An integrative review
Bentley, A., Salifu, Y. & Walshe, C., 31/12/2021, In: Journal of Advanced Nursing. 77, 12, p. 4632-4645 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Applying an Analytical Process to Longitudinal Narrative Interviews With Couples Living and Dying With Lewy Body Dementia
Bentley, A., Walshe, C. & Salifu, Y., 31/12/2021, In: International Journal of Qualitative Methods. 20, 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Public health, research and rights: the perspectives of deliberation panels with politically and socially active disabled people
Berghs, M., Atkin, K., Graham, H., Hatton, C. & Thomas, C., 2017, In: Disability and Society. 32, 7, p. 945-965 21 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Access and referral to specialist palliative care : patients' and professionals' experiences.
Bestall, J., Ahmed, N., Ahmedzai, S., Payne, S., Noble, B. & Clark, D., 2004, In: International Journal of Palliative Nursing. 10, 8, p. 381-389 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Developing narrative research in supportive and palliative care : the focus on illness narratives.
Bingley, A. F., Thomas, C., Brown, J., Reeve, J. & Payne, S., 06/2008, In: Palliative Medicine. 22, 5, p. 653-658 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Making sense of dying: a review of narratives written since 1950 by people facing death from cancer and other diseases.
Bingley, A. F., McDermott, E., Thomas, C., Payne, S., Seymour, J. E. & Clark, D., 04/2006, In: Palliative Medicine. 20, 3, p. 183-195 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Balancing acts of work in the third sector: older volunteers’ experience in woodland conservation
Bingley, A., Collins, A., Varey, S. & Oaks, R., 2014.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
Published
The role of the district nurse in bereavement care.
Birtwistle, J., Payne, S., Smith, P. & Kendrick, T., 06/2002, In: Journal of Advanced Nursing. 38, 5, p. 467-478 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
It’s not what they were expecting: a systematic review and narrative synthesis of the role and experience of the hospital palliative care volunteer
Bloomer, M. & Walshe, C., 1/05/2020, In: Palliative Medicine. 34, 5, p. 589-604 16 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
What mediates end-of-life care choices?
Bloomer, M. & Walshe, C., 1/03/2021, In: Lancet Public Health. 6, 3, p. E139-E140 2 p.
Research output: Contribution to Journal/Magazine › Editorial
Published
Smiles behind the masks: A systematic review and narrative synthesis exploring how family members of seriously ill or dying patients are supported during infectious disease outbreaks
Bloomer, M. & Walshe, C., 1/09/2021, In: Palliative Medicine. 35, 8, p. 1452-1467 16 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Validation of the Consensus-Definition for Cancer Cachexia and evaluation of a classification model-a study based on data from an international multicentre project (EPCRC-CSA)
Blum, D., Stene, G. B., Solheim, T. S., Fayers, P., Hjermstad, M. J., Baracos, V. E., Fearon, K., Strasser, F., Kaasa, S., Lieve, V. D. B., Koen, M., Brearley, S., Augusto, C., Joachim, C., Massimo, C., Anneke, F., Richard, H., Higginson, I. J., Stein, K. & Karen, L. & 7 others, Guido, M., Bregje, O. P., Koen, P., Roeline, P., Sophie, P., Payne, S. & Luc, D., 1/08/2014, In: Annals of Oncology. 25, 8, p. 1635-1642 8 p., mdu086.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Perspectives of Chronic Kidney Disease Patients on Readiness for Advance Care Planning at Komfo Anokye Teaching Hospital, Ghana
Boakye, A. S., Dzansi, G., Ofosu-Poku, R., Ansah, M. O., Owusu, A. K., Anyane, G., Addai, J., Dzaka, A. D. & Salifu, Y., 30/06/2024, In: Yale Journal of Biology and Medicine . 97, 2, p. 115-124 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Medical students writing on death, dying and palliative care: a qualitative analysis of reflective essays
Boland, J. W., Dikomitis, L. & Gadoud, A., 1/12/2016, In: BMJ Supportive and Palliative Care. 6, p. 486-492 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Medical Students Writing on Death, Dying and Palliative Care: A Qualitative Analysis of Reflective Essays Palliative Medicine.
Boland, J. W., Dikomitis, L. & Gadoud, A., 1/03/2016, Abstracts of the 9th World Research Congress of the European Association for Palliative Care (EAPC). 6 ed. Vol. 30. (Palliative Medicine).
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Conference contribution/Paper › peer-review
Published
Understanding and addressing challenges for Advance Care Planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services.
Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Oluyase, A., Maddocks, M., Sleeman, K., Higginson, I., Fraser, L. & Murtagh, F., 30/10/2020, In: medRxiv.
Research output: Contribution to Journal/Magazine › Journal article
Published
Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services
Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Maddocks, M., Oluyase, A., Sleeman, K. E., Higginson, I. J., Fraser, L. & Murtagh, F., 1/07/2021, In: Palliative Medicine. 35, 7, p. 1225-1237 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Experiences of staff providing specialist palliative care during COVID-19: A multiple qualitative case study
Bradshaw, A., Dunleavy, L., Garner, I., Preston, N., Bajwah, S., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. E. M., Oluyase, A., Sleeman, K. E., Higginson, I. & Walshe, C., 20/11/2021, In: medRxiv.
Research output: Contribution to Journal/Magazine › Journal article

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