International Observatory on End of Life Care

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Published
EAPC task force on education for psychologists in palliative care
Jünger, S., Payne, S., Costantini, A., Kalus, C. & Werth, J. L., 03/2010, In: European Journal of Palliative Care. 17, 2, p. 84-87 4 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Consensus building in palliative care : a Europe-wide Delphi study on common understandings and conceptual differences
Jünger, S., Payne, S., Brearley, S., Ploenes, V. & Radbruch, L., 08/2012, In: Journal of Pain and Symptom Management. 44, 2, p. 192-205 14 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Verwendung der Delphi-Technik zur Entwicklung von Best-Practice-Leitlinien in der Palliativversorgung: eine methodologische systematische Übersichtsarbeit
Jünger, S., Payne, S. A., Brine, J. J., Radbruch, L. & Brearley, S. G., 08/2016, In: Zeitschrift für Palliativmedizin. 17, 5, p. 174 1 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review
Jünger, S., Payne, S., Brine, J., Radbruch, L. & Brearley, S., 1/09/2017, In: Palliative Medicine. 31, 8, p. 684-706 23 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The role of psychology in end of life care.
Kalus, C., Beloff, H., Brennan, J., McWilliams, E., Payne, S., Royan, L. & Russell, P., 03/2008, London: The Professional Board of the British Psychological Society.
Research output: Working paper
Published
Cancer-related pain management: a review of knowledge and attitudes of healthcare professionals
Kasasbeh, M. A. M., McCabe, C. & Payne, S. A., 11/2017, In: European Journal of Cancer Care. 26, 6, 7 p., e12625.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A qualitative exploration of sensing the presence of the deceased following bereavement
Keen, C., Murray, C. & Payne, S., 2013, In: Mortality. 18, 4, p. 339-357 18 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Sensing the presence of the deceased: A Narrative Review
Keen, C., Murray, C. & Payne, S., 2013, In: Mental Health, Religion and Culture. 16, 4, p. 384-402 19 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
End of life care for older people in community hospitals.
Kerr, C., Payne, S., Hawker, S., Seamark, D., Jarratt, N., Roberts, H. & Smith, H., 02/2008, In: End of Life Care. 2, 1
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Out of hours medical cover in community hospitals : implications for palliative care.
Kerr, C., Hawker, S., Payne, S., Seamark, D. & Lloyd-Williams, M., 2006, In: International Journal of Palliative Nursing. 12, 2, p. 75-80 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The geography of survival from colo-rectal cancer.
Kim, Y-E., Gatrell, A. C. & Francis, B. J., 04/2000, In: Social Science and Medicine. 50, 7-8, p. 1099-1107 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Facilitation of an end-of-life care programme into practice within UK nursing care homes: a mixed-methods study
Kinley, J., Froggatt, K. A. & Preston, N. J., 06/2018, In: International Journal of Nursing Studies. 82, p. 1-10 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Clinical and psychological outcomes of patient education in rheumatoid arthritis
Kirwan, J. R., Hewlett, S., Cockshott, Z. & Barrett, J., 03/2005, In: Musculoskeletal Care. 3, 1, p. 1-16 16 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Measuring relatives’ perceptions of end-of-life communication with physicians in five countries: a psychometric analysis
Koniewski, M., Barańska, I., Kijowska, V., van der Steen, J. T., Wichmann, A. B., Payne, S., Gambassi, G., Van Den Noortgate, N., Finne-Soveri, H., Smets, T., Van den Block, L., Szczerbińska, K. & project, PACE., 31/12/2022, In: European Journal of Ageing. 19, 4, p. 1561-1570 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Advance care planning in patients with advanced cancer: A 6-country, cluster randomised clinical trial
Korfage, I. J., Dunleavy, L., Payne, S. & Preston, N., 13/11/2020, In: PLoS Medicine. 17, 11, 16 p., e1003422.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
E-pub ahead of print
Deathbed Etiquette – The Guide: A Qualitative Study Exploring the Views of Practitioners on its Introduction into End-of-Life Care Settings
Kragh-Furbo, M., French, M., Dunleavy, L., Hancock, S., Sanders, K., Doherty, M. & Gadoud, A., 20/02/2023, (E-pub ahead of print) In: Journal of Palliative Care. p. 082585972311583 1 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A study of the provision of care for older people dying in acute and community hospitals and nursing homes in Ireland. Towards a quality of life focus.
Larkin, P., Casey, D., Leime, A., O'Shea, E., Murphy, K., Froggatt, K. & Payne, S., 2008, In: Palliative Medicine. 22, 4, p. 542-542 1 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Mind your language; the complexity of interviewing older people at end of life.
Larkin, P., Casey, D., Leime, A., O'Shea, E., Murphy, K., Froggatt, K. & Payne, S., 2008, In: Palliative Medicine. 22, 4, p. 542-543 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A narrative exploration of older people’s transitions into residential care
Lee, V. S. P., Simpson, J. & Froggatt, K., 2013, In: Aging and Mental Health. 17, 1, p. 48-56 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Parental decision-making on utilisation of out-of-home respite in children's palliative care: findings of qualitative case study research - a proposed new model
Ling, J., Payne, S. A., Connaire, K. & McCarron, M., 01/2016, In: Child: Care, Health and Development. 42, 1, p. 51-59 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Identification of challenges to the availability and accessibility of opioids in twelve European countries: conclusions from two ATOME six-country workshops
Linge-Dahl, L., Vranken, M. J. M., Jünger, S., North, K., Scholten, W., Payne, S. A. & Radbruch, L., 12/2015, In: Journal of Palliative Medicine. 18, 12, p. 1033-1039 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Preferences of patients for patient centred approach to consultation in primary care : observational study.
Little, P., Everitt, H., Williamson, I., Warne, G., Moore, M., Gould, C., Ferrier, K. & Payne, S., 2001, In: BMJ. 322, p. 468-472 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Observational study of patient-centeredness and 'positive' approach on outcomes of general practice consultations.
Little, P., Everitt, H., Williamson, I., Warner, G., Moore, M., Gould, C., Ferrier, K. & Payne, S., 20/10/2001, In: BMJ. 323, 7318, p. 908-911 4 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A randomised control trial of three pragmatic appraoches to initiate increased physical activity in sedentry patients with risk factors for cardiovascular disease.
Little, P., Dorward, M., Gralton, S., Hammerton, L., Pillinger, J., White, P., Moore, M., McKenna, J. & Payne, S., 03/2004, In: British Journal of General Practice. 54, 500, p. 189-195 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Forthcoming
Describing cancer experiences using metaphors: A scoping review
Liu, Y., Semino, E., Rietjens, J. & Payne, S., 18/04/2024, (Accepted/In press) In: BMJ Supportive & Palliative Care.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
Can multi-disciplinary guidelines improve the palliation of symptoms in the terminal hase of dementia?
Lloyd-Williams, M. & Payne, S., 2002, In: International Journal of Palliative Nursing. 8, 8, p. 370-375 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Nurse specialist assessment and management of palliative care patients who are depressed : a study of perceptions and attitudes.
Lloyd-Williams, M. & Payne, S., 2002, In: Journal of Palliative Care. 18, 4, p. 270-274 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A qualitative study of nurses' views on depression in palliative care patients.
Lloyd-Williams, M. & Payne, S., 06/2003, In: Palliative Medicine. 17, 4, p. 334-338 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Letter : specialist palliative care in dementia : patients with dementia are unable to access appropriate palliative care.
Lloyd-Williams, M., Payne, S. & Dennis, M., 19/03/2005, In: BMJ. 330, 7492, p. 671-672 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Information sharing : its impact on donor and nondonar families' experiences in the hospital.
Long, T., Sque, M. & Payne, S., 06/2006, In: Progress in Transplantation. p. 144-149 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Place of death in the Czech Republic and Slovakia: a population based comparative study using death certificates data
Loucka, M., Payne, S. A. & Brearley, S. G., 20/03/2014, In: BMC Palliative Care. 13, 1, 13 p., 13.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Where do people not want to die? A representative survey of views of general population and health care professionals in the Czech Republic
Loucka, M., Payne, S. A., Brearley, S. G., Slama, O. & Spinkova, M., 2014, In: Progress in Palliative Care. 22, 5, p. 264-271 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Self-reported knowledge, attitudes, and behaviour towards hospice care and how are these related to training in palliative care: An online survey among oncologists in the Czech republic and Slovakia
Loucka, M., Pasman, R. H., Brearley, S. G., Payne, S. A. & Onwuteaka-Philipsen, B., 1/01/2015, In: Progress in Palliative Care. 23, 1, p. 1-8 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
An exploration looking at the impact of domiciliary and day hospital delivery of stroke rehabilitation on informal carers.
Low, J., Roderick, P. & Payne, S., 07/2004, In: Clinical Rehabilitation. 18, 7, p. 776-784 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A grounded theory approach to physical activity and advanced cancer: a qualitative study protocol
Lowe, S. S., Milligan, C., Watanabe, S. M. & Brearley, S. G., 8/12/2015, In: International Journal of Qualitative Methods. 14, 5, 10 p., 1609406915617161.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Experience of Caregivers Supporting a Patient through Voluntarily Stopping Eating and Drinking
Lowers, J., Hughes, S. & Preston, N., 16/02/2021, In: Journal of Palliative Medicine. 24, 3, p. 376-381 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Overview of voluntarily stopping eating and drinking to hasten death
Lowers, J., Hughes, S. & Preston, N., 31/03/2021, In: Annals of Palliative Medicine. 10, 3, p. 3611-3616 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Comparison of the experience of caregiving at end of life or in hastened death: A narrative synthesis review
Lowers, J., Scardaville, M., Hughes, S. & Preston, N., 8/10/2020, In: BMC Palliative Care. 19, 16 p., 154.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Learning from challenges and opportunities in the recruitment of patients with advanced cancer within a hospice/palliative day care setting.
Lynch, T. J., Lloyd-Williams, M., Payne, S., Reeve, J., Keogh, C., Barbarachild, Z. & Williams, C., 2009, In: European Journal of Palliative Care. 16, p. 73
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Barriers to the development of palliative care in Western Europe
Lynch, T., Clark, D., Centeno, C., Rocafort, J., de Lima, L., Filbet, M., Hegedus, K., Belle, O., Giordano, A., Guillen, F. & Wright, M., 12/2010, In: Palliative Medicine. 24, 8, p. 812-819 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Barriers to the Development of Palliative Care in the Countries of Central and Eastern Europe and the Commonwealth of Independent States
Lynch, T., Clark, D., Centeno, C., Rocafort, J., Alberto Flores, L., Greenwood, A., Praill, D., Brasch, S., Giordano, A., De Lima, L. & Wright, M., 03/2009, In: Journal of Pain and Symptom Management. 37, 3, p. 305-315 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
E-pub ahead of print
Exploring specialist palliative care practitioner perspectives on the face validity of the Attitude to Health Change scales in assessing the impact of life-limiting illness on patients and carers
Machin, L., Walshe, C. & Dunleavy, L., 13/12/2021, (E-pub ahead of print) In: Journal of Palliative Care.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
“A small cog in a large wheel”: an exploratory study into the experiences of porters, ward clerks and domestics working in an English Cancer Centre
Mack, H., Froggatt, K. & McClinton, P., 09/2003, In: European Journal of Oncology Nursing. 7, 3, p. 153-161 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The views of patients with severe chronic obstructive pulmonary disease on advance care planning: a qualitative study
MacPherson, A., Walshe, C., O'Donnell, V. & Vyas, A., 03/2013, In: Palliative Medicine. 27, 3, p. 265-272 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Historical data for health inequalities research: a research note.
Mallinson, S. L., Popay, J. M., Elliott, E., Bennett, S., Bostock, L., Gatrell, A. C., Thomas, C. & Williams, G., 11/2003, In: Sociology. 37, 4, p. 771-780 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The Experience of Adolescents and Young Adults Treated for Cancer in an Adult Setting: A Review of the Literature
Marshall, S., Grinyer, A. & Limmer, M., 1/06/2018, In: Journal of Adolescent and Young Adult Oncology. 7, 3
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Undertaking Research Using Online Nominal Group Technique: Lessons from an International Study (RESPACC)
Mason, S., Ling, J., Mosoiu, D., Arantzamendi, M., Tserkezoglou, A. J., Predoiu, O. & Payne, S., 17/11/2021, In: Journal of Palliative Medicine. 24, 12, p. 1867-1871 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Gatekeeping and legitimisation : how informal carers' relationship with health care workers is revealed in their everyday interactions.
May, J., Ellis-Hill, C. & Payne, S., 11/2001, In: Journal of Advanced Nursing. 36, 3, p. 364-375 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Gate keeping and legitimisation were central in the interactions between informal carers of older people and healthcare workers.
May, J., Ellis-Hill, C. & Payne, S., 07/2002, In: Evidence-Based Nursing. 5, 3, p. 95-95 1 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Supporting adults bereaved through COVID-19: a rapid review of the impact of previous pandemics on grief and bereavement
Mayland, C. R., Harding, A., Preston, N. & Payne, S., 1/08/2020, In: Journal of Pain and Symptom Management. 60, 2, p. e33-e39 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review

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International Observatory on End of Life Care

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