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International Observatory on End of Life Care

  1. 2022
  2. Published

    Prohibit, protect, or adapt? The changing role of volunteers in palliative and hospice care services during the COVID-19 pandemic. A multinational survey (CovPall).

    Walshe, C., Garner, I., Dunleavy, L., Preston, N., Bradshaw, A., Cripps, R., Bajwah, S., Sleeman, K., Hocaoglu, M., Maddocks, M., Murtagh, F., Oluyase, A., Fraser, L. & Irene, H., 31/10/2022, In: International Journal of Health Policy and Management. 11, 10, p. 2146-2154 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  3. Published

    Symptom control and survival for people severely ill with COVID: a multicentre cohort study (CovPall-Symptom)

    Higginson, I., Hocaoglu, M., Fraser, L., Maddocks, M., Sleeman, K., Oluyase, A., Chambers, R., Preston, N., Dunleavy, L., Bradshaw, A., Bajwah, S., Murtagh, F. & Walshe, C., 31/10/2022, In: Journal of Pain and Symptom Management. 64, 4, p. 377-390 14 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  4. Published

    The experience of informal caregivers in providing patient care in hospitals in low- and middle-income countries: A qualitative meta-synthesis

    Hogan, U., Bingley, A., Morbey, H. & Walshe, C., 31/10/2022, In: Journal of Health Services Research and Policy. 27, 4, p. 321-329 9 p.

    Research output: Contribution to Journal/MagazineReview articlepeer-review

  5. Published

    Impact of digital technology in care homes on Emergency Department attendances

    Garner, A., Knight, J., Preston, N., Dixon, S., Watchorn, S., Caiado, C., McShane, C., King, G. & Mason, S., 22/11/2022, In: Emergency Medicine Journal. 39, 12, 1 p., A974.

    Research output: Contribution to Journal/MagazineMeeting abstract

  6. Published

    Refractory angina is a growing challenge for palliative medicine: a systematic review of non-invasive interventions

    Murphy, I., Sivashankar, A. & Gadoud, A., 25/11/2022, In: BMJ Supportive and Palliative Care. 12, e6, p. e869-e881

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  7. Published

    Presuppositions, cost–benefit, collaboration, and competency impacts palliative care referral in paediatric oncology: a qualitative study

    Salins, N., Hughes, S. & Preston, N., 2/12/2022, In: BMC Palliative Care. 21, 1, 15 p., 215.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  8. Published
  9. Published

    An analysis of the experiences of bereaved relatives and health care providers following palliative sedation: a study protocol for a qualitative international multicenter case study

    Van der Elst, M., Payne, S., Arantzamendi, M., Preston, N., Hasselaar, J., Centeno, C., Belar, A., Jaspers, B., Brunsch, H., Surges, S., Adile, C. & Menten, J., 23/12/2022, In: BMC Palliative Care. 21, 1, 8 p., 227.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  10. Published

    Measuring relatives’ perceptions of end-of-life communication with physicians in five countries: a psychometric analysis

    Koniewski, M., Barańska, I., Kijowska, V., van der Steen, J. T., Wichmann, A. B., Payne, S., Gambassi, G., Van Den Noortgate, N., Finne-Soveri, H., Smets, T., Van den Block, L., Szczerbińska, K. & project, PACE., 31/12/2022, In: European Journal of Ageing. 19, 4, p. 1561-1570 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  11. 2023
  12. Published

    GC-MS Techniques Investigating Potential Biomarkers of Dying in the Last Weeks with Lung Cancer

    Chapman, E., Baker, J., Aggarwal, P., Hughes, D., Nwosu, A., Boyd, M., Mayland, C., Mason, S., Ellershaw, J. E., Probert, C. & Coyle, S., 13/01/2023, In: International Journal of Molecular Sciences. 24, 2, 21 p., 1591.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  13. Published

    Monitoring the clinical practice of palliative sedation (PALSED) in patients with advanced cancer: an international, multicentre, non-experimental prospective observational study protocol

    Rijpstra, M., Vissers, K., Centeno, C., Menten, J., Radbruch, L., Mercadante, S., Van der Elst, M., Adile, C., Arantzamendi, M., Kuip, E., Payne, S., Preston, N. & Hasselaar, J., 28/01/2023, In: BMC Palliative Care. 22, 1, 9 p., 8.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  14. Published

    One step at a time; using compassionate communities’ model (COMPASS Ghana) to impact on the delivery of palliative and end-of-life care in resource-poor setting

    Salifu, Y. & Davies, J., 8/02/2023, In: BMJ Supportive and Palliative Care. 13, Suppl 1

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  15. E-pub ahead of print

    Deathbed Etiquette – The Guide: A Qualitative Study Exploring the Views of Practitioners on its Introduction into End-of-Life Care Settings

    Kragh-Furbo, M., French, M., Dunleavy, L., Hancock, S., Sanders, K., Doherty, M. & Gadoud, A., 20/02/2023, (E-pub ahead of print) In: Journal of Palliative Care. p. 082585972311583 1 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  16. Published

    Beautiful and winding yet unending story….

    Salifu, Y., 28/02/2023

    Research output: Exhibits, objects and web-based outputsBlog

  17. Published

    Understanding the role and deployment of volunteers within specialist palliative care services and organisations as they have adjusted to the COVID-19 pandemic. A multi-national EAPC volunteer taskforce survey

    Walshe, C., Pawłowski, L., Shedel, S., Vanderstichelen, S., Bloomer, M., Goossensen, A., Limonero, J., Sangild Stoelen, K., Caraffa, C., Pelttari, L. & Scott, R., 28/02/2023, In: Palliative Medicine. 37, 2, p. 203-214 12 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  18. Published

    The impact of the mySupport advance care planning intervention on family caregivers’ perceptions of decision-making and care for nursing home residents with dementia: pretest-posttest study in six countries

    Bavelaar, L., Visser, M., Walshe, C., Preston, N., Kaasalainen, S., Sussman, T., Cornally, N., Hartigan, I., Loucka, M., de Giulio, P., Brazil, K., Achterberg, W. & van der Steen, J. T., 1/03/2023, In: Age and Ageing. 52, 3, 9 p., afad027.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  19. Published

    Compassionate Palliative Services: a new actor in Ghana

    Davies, J. & Salifu, Y., 30/03/2023

    Research output: Exhibits, objects and web-based outputsBlog

  20. Published

    Linking the ‘point of care’ with the ‘point of life’: experiences from the MyPal project

    Payne, S., Salifu, Y. & Begovic, D., 4/04/2023

    Research output: Exhibits, objects and web-based outputsBlogpeer-review

  21. Published

    A meta-synthesis of the transitioning experiences and career progression of migrant African nurses

    Bayou, J., Abboah-Offei, M., Duodu, P. A. & Salifu, Y., 6/04/2023, In: BMC Nursing. 22, 1, 20 p., 104.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  22. Published

    How do caregivers of children living with HIV/AIDS cope, and where do they get support? A qualitative study in Ghana

    Atanuriba, G. A., Apiribu, F., Laari, T. T., Boamah Bonsu, A. B., Dzomeku, V. M., Afaya, R. A., Salifu, Y. & Amooba, P. A., 30/04/2023, In: Lifestyle Medicine . 4, 2, e79.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  23. Published

    'Out of the frying pan into the fire’: a qualitative study of the impact on masculinity for men living with advanced Prostate Cancer

    Salifu, Y., Almack, K. & Caswell, G., 29/05/2023, In: Palliative Care and Social Practice. 17, p. 1-14 14 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  24. Published

    Healthcare use and healthcare costs for patients with advanced cancer; the international ACTION cluster-randomised trial on advance care planning

    ACTION Consortium, 31/05/2023, In: Palliative Medicine. 37, 5, p. 707-718 12 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  25. Published

    Examining the profound effects of COVID19 on mental health: A comprehensive systematic review on anxiety and depression

    Salifu, Y., Maurer, P., Oprina, E., Alloh, F., Bardi, J. N. & Shivji, N., 1/06/2023, In: Psychreg Journal of Psychology. 7, 2, p. 45-81 37 p.

    Research output: Contribution to Journal/MagazineLiterature reviewpeer-review

  26. Published

    Exploring the Concept of Transitions in Advanced Cancer Care: The European Pal_Cycles Project

    Payne, S. A. & Hasselaar, J., 1/06/2023, In: Journal of Palliative Medicine. 26, 6, p. 744-745 2 p.

    Research output: Contribution to Journal/MagazineEditorialpeer-review

  27. Published

    Sense of Coherence at End of Life in Older People: An Interpretive Description

    Gagne Henderson, R., Holland, C. & Walshe, C., 1/06/2023, In: Journal of Hospice and Palliative Nursing . 25, 3, p. 165-172 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

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