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International Observatory on End of Life Care

  1. 2018
  2. Published

    Volunteering and community

    Sallnow, L. & Richardson, H., 26/04/2018, The Changing Face of Volunteering in Hospice and Palliative Care: An International Perspective . Scott, R. & Howlett, S. (eds.). Oxford: Oxford University Press, p. 185-196 12 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  3. Published

    The views of adults with Huntington’s disease on assisted dying: a qualitative exploration

    Regan, L., Preston, N. J., Eccles, F. J. R. & Simpson, J., 1/04/2018, In: Palliative Medicine. 32, 4, p. 708-715 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  4. Published

    Family caregivers' reflections on experiences of assisted suicide in Switzerland: a qualitative interview study

    Gamondi, C., Pott, M., Preston, N. & Payne, S., 04/2018, In: Journal of Pain and Symptom Management. 55, 4, p. 1085-1094 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  5. Published

    Integrating palliative care in long-term care facilities across Europe (PACE): Protocol of a cluster randomized controlled trial of the 'PACE Steps to Success' intervention in seven countries

    Smets, T., Onwuteaka-Philipsen, B. D., Miranda, R., Pivodic, L., Tanghe, M., van Hout, H., Pasman, H. R. W., Oosterveld-Vlug, M., Piers, R., Van Den Noortgate, N., B Wichmann, A., Engels, Y., Vernooij-Dassen, M., Hockley, J., Froggatt, K. A., Payne, S. A., Szczerbińska, K., Kylanen, M., Leppaaho, S., Baranska, I. & 5 others, Gambassi, G., Pautex, S., Bassal, C., Deliens, L. & Van den Block, L., 12/03/2018, In: BMC Palliative Care. 17, 11 p., 47.

    Research output: Contribution to journalJournal articlepeer-review

  6. Published

    “Never at ease” – family carers within integrated palliative care: a multinational, mixed method study

    Ateş, G., Ebenau, A., Busa, C., Csikos, A., Hasselaar, J., Jaspers, B., Menten, J., Payne, S., van Beek, K., Varey, S., Groot, M. & Radbruch, L., 1/03/2018, In: BMC Palliative Care. 17, 11 p., 39.

    Research output: Contribution to journalJournal articlepeer-review

  7. Published
  8. Published

    Effectiveness of advance care planning with family carers in dementia nursing homes: a paired cluster randomized controlled trial

    Brazil, K., Carter, G., Cardwell, C. R., Clarke, M., Hudson, P., Froggatt, K. A., McLaughlin, D., Passmore, P. & Kernohan, G., 1/03/2018, In: Palliative Medicine. 32, 3, p. 603-612 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  9. Published
  10. E-pub ahead of print

    Integrated palliative care is about professional networking rather than standardisation of care: A qualitative study with healthcare professionals in 19 integrated palliative care initiatives in five European countries

    den Herder-van der Eerden, M., van Wijngaarden, J., Payne, S., Preston, N., Linge-Dahl, L., Radbruch, L., Van Beek, K., Menten, J., Busa, C., Csikos, A., Vissers, K., van Gurp, J. & Hasselaar, J., 13/02/2018, (E-pub ahead of print) In: Palliative Medicine. 12 p.

    Research output: Contribution to journalJournal articlepeer-review

  11. Published

    A revised model for coping with advanced cancer. Mapping concepts from a longitudinal qualitative study of patients and carers coping with advanced cancer onto Folkman and Greer’s theoretical model of appraisal and coping

    Roberts, D., Calman, L., Large, P., Appleton, L., Grande, G., Lloyd-Williams, M. & Walshe, C. E., 01/2018, In: Psycho-Oncology. 27, 1, p. 229-235 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  12. Published

    Family involvement in timely detection of changes in health of nursing homes residents: a qualitative exploratory study

    Powell, C., Blighe, A., Froggatt, K. A., McCormack, B., Woodward-Carlton, B., Young, J., Robinson, L. & Downs, M., 01/2018, In: Journal of Clinical Nursing. 27, 1-2, p. 317-327 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  13. Published

    Length of Stay in Nursing Homes, a Survival Analysis of six European Countries: Results of the EU FP7 PACE Study.

    Collingridge Moore, D., Payne, S., Keegan, T., Van den Block, L., Deliens, L., Gambassi, G., Heikkilä, R., Kijowska, V., Pasman, R. H., Pivodic, L. & Froggatt, K., 2018.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  14. Published

    Predictors of length of stay in nursing homes a comparison of residents in 322 nursing homes in six European countries. Results of the EU FP7 PACE study.

    Collingridge Moore, D., Payne, S., Keegan, T., Van den Block, L., Deliens, L., Gambassi, G., Heikkilä, R., Kijowska, V., Pasman, R., Pivodic, L. & Froggatt, K., 2018.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  15. 2017
  16. Published

    Final transitions to place of death: Patients and families wishes

    EURO-IMPACT, 1/12/2017, In: Journal of Public Health (United Kingdom). 39, 4, p. e302-e311 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  17. Published

    How continuity of care is experienced within the context of integrated palliative care: a qualitative study with patients and family caregivers in five European countries

    den Herder-van der Eerden, M., Hasselaar, J., Payne, S., Varey, S., Schwabe, S., Radbruch, L., van Beek, K., Menten, J., Busa, C., Csikos, A., Vissers, K. & Groot, M., 1/12/2017, In: Palliative Medicine. 31, 10, p. 946-955 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  18. Published

    Outcomes, measurement and effectiveness. Lessons from a pragmatic randomised wait-list trial of volunteer support in palliative care (ELSA)

    Walshe, C. E., Dodd, S. R., Hill, M., Ockenden, N., Payne, S. A., Preston, N. J. & Perez Algorta, G. D., 1/12/2017, In: Omsorg. The Norwegian Journal of Palliative Medicine. 34, 4, p. 58-60 3 p.

    Research output: Contribution to journalJournal articlepeer-review

  19. Published

    Looking forwards to 2018 in Palliative Medicine

    Walshe, C., 12/2017, In: Palliative Medicine. 31, 10, p. 880-881 2 p.

    Research output: Contribution to journalEditorial

  20. Published

    Enhancing integrated palliative care: what models are appropriate? A cross-case analysis

    Payne, S. A., Hughes, S., Varey, S. E., Hasselaar, J., Preston, N. J. & Eastham, R. K., 28/11/2017, In: BMC Palliative Care. 16, 64, 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  21. Published

    Is the content of guidelines/pathways a barrier for the integration of palliative Care in Chronic Heart Failure (CHF) and chronic pulmonary obstructive disease (COPD)? A comparison with the case of cancer in Europe

    Siouta, N., Van Beek, K., Payne, S., Radbruch, L., Preston, N., Hasselaar, J., Centeno, C. & Menten, J., 28/11/2017, In: BMC Palliative Care. 16, 1, 8 p., 62.

    Research output: Contribution to journalJournal articlepeer-review

  22. Published

    Researching an innovative Cottage Hospice model of care: An academic and hospice partnership

    Hughes, S., Barnes, H. E., Turner, M., Yardley, J. & Walshe, C. E., 23/11/2017.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paperpeer-review

  23. E-pub ahead of print

    The views of adults with neurodegenerative diseases on end-of-life care: a metasynthesis

    Regan, L., Preston, N. J., Eccles, F. J. R. & Simpson, J., 6/11/2017, (E-pub ahead of print) In: Aging and Mental Health. 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  24. Published

    Cancer-related pain management: a review of knowledge and attitudes of healthcare professionals

    Kasasbeh, M. A. M., McCabe, C. & Payne, S. A., 11/2017, In: European Journal of Cancer Care. 26, 6, 7 p., e12625.

    Research output: Contribution to journalJournal articlepeer-review

  25. Published

    Hospice volunteers: bridging the gap to the community?

    Morris, S., Payne, S., Ockenden, N. & Hill, M., 11/2017, In: Health and Social Care in the Community. 25, 6, p. 1704-1713 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  26. Published

    Using the Ecological Framework to identify barriers and enablers to implementing Namaste Care in Canada’s long-term care system

    Hunter, P., Kaasalainen, S., Froggatt, K. A., Ploeg, J., Dolovich, L., Simard, J. & Salsali, M., 1/10/2017, In: Annals of Palliative Medicine. 6, 4, p. 340-353 14 p.

    Research output: Contribution to journalJournal articlepeer-review

  27. Published

    ‘Powerlessness’ or ‘doing the right thing’ moral distress amongst nursing home staff caring for residents at the end of life: An interpretive descriptive study

    Young, A., Froggatt, K. A. & Brearley, S. G., 10/2017, In: Palliative Medicine. 31, 9, p. 853-860 8 p.

    Research output: Contribution to journalJournal articlepeer-review

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