International Observatory on End of Life Care

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2018
Published
Loneliness as a risk factor for care home admission in the English Longitudinal Study of Ageing
Hanratty, B., Stow, D., Collingridge Moore, D., Valtorta, N. K. & Matthews, F., 1/11/2018, In: Age and Ageing. 47, 6, p. 896-900 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Quality of life trends in people with and without cancer referred to volunteer provided palliative care services (ELSA): A longitudinal study
Walshe, C. E., Preston, N. J., Payne, S. A., Dodd, S. R. & Perez Algorta, G. D., 11/2018, In: Journal of Pain and Symptom Management. 56, 5, p. 689-698 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Clear, simple, precise, meaningful: A quick guide to writing for publication
Walshe, C. E., 15/10/2018, In: Indian Journal of Palliative Care. 24, 4, p. 391-392 2 p.
Research output: Contribution to Journal/Magazine › Editorial
Published
Using Participatory Action Research in the Development of an Innovative Cottage Hospice Model of Care in the United Kingdom
Hughes, S., Barnes, H. E., Yardley, J., Turner, M. & Walshe, C. E., 2/10/2018.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Volunteering and end-of-life care: An evidence based toolkit
Walshe, C. E., Preston, N. J., Payne, S. A., Dodd, S. R., Perez Algorta, G. D., Hill, M. & Ockenden, N., 1/10/2018, Lancaster: Lancaster University.
Research output: Book/Report/Proceedings › Other report
Published
Peer support for people with advanced cancer: a systematically constructed scoping review of quantitative and qualitative evidence
Walshe, C. E. & Roberts, D., 1/09/2018, In: Current Opinion in Supportive and Palliative Care. 12, 3, p. 308-322 15 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Ageing and dying in the contemporary neoliberal prison system: exploring the 'double burden' for older prisoners
Turner, M., Peacock, M., Payne, S. A., Fletcher, A. & Froggatt, K. A., 09/2018, In: Social Science and Medicine. 212, p. 161-167 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
'Being with' or 'doing for'? How the role of an end-of-life volunteer befriender can impact patient wellbeing: interviews from a multiple qualitative case study (ELSA)
Dodd, S. R., Hill, M., Ockenden, N., Perez Algorta, G. D., Payne, S. A., Preston, N. J. & Walshe, C. E., 09/2018, In: Supportive Care in Cancer. 26, 9, p. 3163-3172 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A philosophical critique of the UK’s National Institute for Health and Care Excellence guideline ‘Palliative care for adults: strong opioids for pain relief’
Fearon, D., Hughes, S. & Brearley, S. G., 1/08/2018, In: British Journal of Pain. 12, 3, p. 183-188 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Mixed Method Research in Palliative Care
Walshe, C. E., 6/06/2018, Textbook of Palliative Care. MacLeod, R. D. & van den Block, L. (eds.). Cham: Springer, 19 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Entry for encyclopedia/dictionary
Published
Integrated palliative care networks from the perspectives of patients: A cross-sectional explorative study in five European countries
den Herder-van der Eerden, M., Ebenau, A., Payne, S., Preston, N., Radbruch, L., Linge-Dahl, L., Csikos, A., Busa, C., Van Beek, K., Groot, M., Vissers, K. & Hasselaar, J., 1/06/2018, In: Palliative Medicine. 32, 6, p. 1103-1113 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The Experience of Adolescents and Young Adults Treated for Cancer in an Adult Setting: A Review of the Literature
Marshall, S., Grinyer, A. & Limmer, M., 1/06/2018, In: Journal of Adolescent and Young Adult Oncology. 7, 3
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Wearable smartwatch technology to monitor symptoms in advanced illness
Nwosu, A., Quinn, C., Samuels, J., Mason, S. & Payne, T. R., 1/06/2018, In: BMJ Supportive and Palliative Care. 2018, 8, 1 p., 237.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Facilitation of an end-of-life care programme into practice within UK nursing care homes: a mixed-methods study
Kinley, J., Froggatt, K. A. & Preston, N. J., 06/2018, In: International Journal of Nursing Studies. 82, p. 1-10 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative Care Nursing: Principles and Evidence for Practice
Walshe, C. E., Preston, N. J. & Johnston, B., 31/05/2018, 3rd ed. McGraw-Hill / Open University Press. 544 p.
Research output: Book/Report/Proceedings › Book
Published
Family Members’ Experiences and Needs When Witnessing Diminishing Drinking of a Dying Relative: A Systematic Literature Review
Pettifer, A., Froggatt, K. A. & Hughes, S., 24/05/2018.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Perceptions and Experiences of Patients and Informal Caregivers in Advanced Chronic Obstructive Pulmonary Disease: An Exploratory Study
Fusi-Schmidhauser, T., Froggatt, K. A. & Preston, N. J., 24/05/2018.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Family carers’ experiences of coping  with the deaths of adults in home settings: A narrative analysis of carers’ relevant background worries
Thomas, C. J., Turner, M., Payne, S. A., Milligan, C., Brearley, S. G., Seamark, D., Wang, X. & Blake, S., 1/05/2018, In: Palliative Medicine. 32, 5, p. 950-959 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Using the 'Social Marketing Mix Framework' to explore recruitment barriers and facilitators in palliative care randomised controlled trials? A narrative synthesis review
Dunleavy, L., Walshe, C., Oriani, A. & Preston, N., 1/05/2018, In: Palliative Medicine. 32, 5, p. 990-1009 20 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Advanced heart failure: setting the research agenda
Taylor, C., Huntley, A., Gadoud, A., Lehman, R., Brice, M., Nicholas, R., Jones, F., Hobbs, R., Feder, G., Mant, J., R, J. & Alliance, J. L., 05/2018, In: British Journal of Cardiac Nursing . 13, 5, p. 243 1 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
The modern context of palliative care
Payne, S. A. & Morris, S. M., 26/04/2018, The Changing Face of Volunteering in Hospice and Palliative Care: An International Perspective. Scott, R. & Howlett, S. (eds.). Oxford: Oxford University Press, p. 15-27 13 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
Volunteering and community
Sallnow, L. & Richardson, H., 26/04/2018, The Changing Face of Volunteering in Hospice and Palliative Care: An International Perspective . Scott, R. & Howlett, S. (eds.). Oxford: Oxford University Press, p. 185-196 12 p.
Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSN › Chapter
Published
The views of adults with Huntington’s disease on assisted dying: a qualitative exploration
Regan, L., Preston, N. J., Eccles, F. J. R. & Simpson, J., 1/04/2018, In: Palliative Medicine. 32, 4, p. 708-715 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Family caregivers' reflections on experiences of assisted suicide in Switzerland: a qualitative interview study
Gamondi, C., Pott, M., Preston, N. & Payne, S., 04/2018, In: Journal of Pain and Symptom Management. 55, 4, p. 1085-1094 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Integrating palliative care in long-term care facilities across Europe (PACE): Protocol of a cluster randomized controlled trial of the 'PACE Steps to Success' intervention in seven countries
Smets, T., Onwuteaka-Philipsen, B. D., Miranda, R., Pivodic, L., Tanghe, M., van Hout, H., Pasman, H. R. W., Oosterveld-Vlug, M., Piers, R., Van Den Noortgate, N., B Wichmann, A., Engels, Y., Vernooij-Dassen, M., Hockley, J., Froggatt, K. A., Payne, S. A., Szczerbińska, K., Kylanen, M., Leppaaho, S. & Baranska, I. & 5 others, Gambassi, G., Pautex, S., Bassal, C., Deliens, L. & Van den Block, L., 12/03/2018, In: BMC Palliative Care. 17, 11 p., 47.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
“Never at ease” – family carers within integrated palliative care: a multinational, mixed method study
Ateş, G., Ebenau, A., Busa, C., Csikos, A., Hasselaar, J., Jaspers, B., Menten, J., Payne, S., van Beek, K., Varey, S., Groot, M. & Radbruch, L., 1/03/2018, In: BMC Palliative Care. 17, 11 p., 39.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Developing a study intervention: a realist review and consensus workshops to develop the namaste care intervention for people with advanced dementia prior to a feasibility study using a cluster randomised controlled trial in nursing care homes
Walshe, C. E., Preston, N. J., Patel, S. & Froggatt, K. A., 1/03/2018, In: BMJ Supportive and Palliative Care. 8, p. A27-A28 2 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Effectiveness of advance care planning with family carers in dementia nursing homes: a paired cluster randomized controlled trial
Brazil, K., Carter, G., Cardwell, C. R., Clarke, M., Hudson, P., Froggatt, K. A., McLaughlin, D., Passmore, P. & Kernohan, G., 1/03/2018, In: Palliative Medicine. 32, 3, p. 603-612 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
How effective and cost effective are innovative combinatorial technologies and practices for supporting older people with long-term conditions to remain well in the community? An evaluation protocol for an NHS Test Bed in North West England
Varey, S. E., Hernandez Huerta, M. A., Palmer, T. M., Mateus, C., Wilkinson, J., Dixon, M. P. & Milligan, C., 28/02/2018, In: BMJ Open. 8, 2, 10 p., e017268.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
E-pub ahead of print
Integrated palliative care is about professional networking rather than standardisation of care: A qualitative study with healthcare professionals in 19 integrated palliative care initiatives in five European countries
den Herder-van der Eerden, M., van Wijngaarden, J., Payne, S., Preston, N., Linge-Dahl, L., Radbruch, L., Van Beek, K., Menten, J., Busa, C., Csikos, A., Vissers, K., van Gurp, J. & Hasselaar, J., 13/02/2018, (E-pub ahead of print) In: Palliative Medicine. 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
What main concerns do patients with chronic heart failure report? A textual analysis of the opening question of the (Integrated) Palliative care Outcome Scale POS and IPOS
Oriani, A. A., Guo, P., Gadoud, A., Dunleavy, L., Brice, M., Kane, P. & Murtagh, F. E. M., 1/01/2018, In: European journal of heart failure. 20, p. 236-237
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
A revised model for coping with advanced cancer. Mapping concepts from a longitudinal qualitative study of patients and carers coping with advanced cancer onto Folkman and Greer’s theoretical model of appraisal and coping
Roberts, D., Calman, L., Large, P., Appleton, L., Grande, G., Lloyd-Williams, M. & Walshe, C. E., 01/2018, In: Psycho-Oncology. 27, 1, p. 229-235 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Family involvement in timely detection of changes in health of nursing homes residents: a qualitative exploratory study
Powell, C., Blighe, A., Froggatt, K. A., McCormack, B., Woodward-Carlton, B., Young, J., Robinson, L. & Downs, M., 01/2018, In: Journal of Clinical Nursing. 27, 1-2, p. 317-327 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Length of Stay in Nursing Homes, a Survival Analysis of six European Countries: Results of the EU FP7 PACE Study.
Collingridge Moore, D., Payne, S., Keegan, T., Van den Block, L., Deliens, L., Gambassi, G., Heikkilä, R., Kijowska , V., Pasman, R. H., Pivodic , L. & Froggatt, K., 2018.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Predictors of length of stay in nursing homes a comparison of residents in 322 nursing homes in six European countries. Results of the EU FP7 PACE study.
Collingridge Moore, D., Payne, S., Keegan, T., Van den Block, L., Deliens, L., Gambassi, G., Heikkilä, R., Kijowska, V., Pasman, R., Pivodic, L. & Froggatt, K., 2018.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
2017
Published
Final transitions to place of death: Patients and families wishes
EURO-IMPACT, 1/12/2017, In: Journal of Public Health (United Kingdom). 39, 4, p. e302-e311 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
How continuity of care is experienced within the context of integrated palliative care: a qualitative study with patients and family caregivers in five European countries
den Herder-van der Eerden, M., Hasselaar, J., Payne, S., Varey, S., Schwabe, S., Radbruch, L., van Beek, K., Menten, J., Busa, C., Csikos, A., Vissers, K. & Groot, M., 1/12/2017, In: Palliative Medicine. 31, 10, p. 946-955 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Outcomes, measurement and effectiveness. Lessons from a pragmatic randomised wait-list trial of volunteer support in palliative care (ELSA)
Walshe, C. E., Dodd, S. R., Hill, M., Ockenden, N., Payne, S. A., Preston, N. J. & Perez Algorta, G. D., 1/12/2017, In: Omsorg. The Norwegian Journal of Palliative Medicine. 34, 4, p. 58-60 3 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Looking forwards to 2018 in Palliative Medicine
Walshe, C., 12/2017, In: Palliative Medicine. 31, 10, p. 880-881 2 p.
Research output: Contribution to Journal/Magazine › Editorial
Published
Enhancing integrated palliative care: what models are appropriate? A cross-case analysis
Payne, S. A., Hughes, S., Varey, S. E., Hasselaar, J., Preston, N. J. & Eastham, R. K., 28/11/2017, In: BMC Palliative Care. 16, 64, 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Is the content of guidelines/pathways a barrier for the integration of palliative Care in Chronic Heart Failure (CHF) and chronic pulmonary obstructive disease (COPD)? A comparison with the case of cancer in Europe
Siouta, N., Van Beek, K., Payne, S., Radbruch, L., Preston, N., Hasselaar, J., Centeno, C. & Menten, J., 28/11/2017, In: BMC Palliative Care. 16, 1, 8 p., 62.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Researching an innovative Cottage Hospice model of care: An academic and hospice partnership
Hughes, S., Barnes, H. E., Turner, M., Yardley, J. & Walshe, C. E., 23/11/2017.
Research output: Contribution to conference - Without ISBN/ISSN › Conference paper › peer-review
E-pub ahead of print
The views of adults with neurodegenerative diseases on end-of-life care: a metasynthesis
Regan, L., Preston, N. J., Eccles, F. J. R. & Simpson, J., 6/11/2017, (E-pub ahead of print) In: Aging and Mental Health. 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Cancer-related pain management: a review of knowledge and attitudes of healthcare professionals
Kasasbeh, M. A. M., McCabe, C. & Payne, S. A., 11/2017, In: European Journal of Cancer Care. 26, 6, 7 p., e12625.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Hospice volunteers: bridging the gap to the community?
Morris, S., Payne, S., Ockenden, N. & Hill, M., 11/2017, In: Health and Social Care in the Community. 25, 6, p. 1704-1713 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Using the Ecological Framework to identify barriers and enablers to implementing Namaste Care in Canada’s long-term care system
Hunter, P., Kaasalainen, S., Froggatt, K. A., Ploeg, J., Dolovich, L., Simard, J. & Salsali, M., 1/10/2017, In: Annals of Palliative Medicine. 6, 4, p. 340-353 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
‘Powerlessness’ or ‘doing the right thing’ moral distress amongst nursing home staff caring for residents at the end of life: An interpretive descriptive study
Young, A., Froggatt, K. A. & Brearley, S. G., 10/2017, In: Palliative Medicine. 31, 9, p. 853-860 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review
Jünger, S., Payne, S., Brine, J., Radbruch, L. & Brearley, S., 1/09/2017, In: Palliative Medicine. 31, 8, p. 684-706 23 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
International variations in clinical practice guidelines for palliative sedation: A systematic review
on behalf of EURO IMPACT, 1/09/2017, In: BMJ Supportive and Palliative Care. 7, 3, p. 223-229 7 p.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
Big Data analysis to improve care for people living with serious illness: The potential to use new emerging technology in palliative care
Nwosu, A., Collins, B. & Mason, S., 14/08/2017, In: Palliative Medicine. 32, 1, p. 164-166 3 p.
Research output: Contribution to Journal/Magazine › Letter › peer-review

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