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International Observatory on End of Life Care

  1. Published

    What are the emotional experiences of being a volunteer in palliative and end-of-life care settings? a systematic review and thematic synthesis

    Coleman, H. & Walshe, C., 30/09/2021, In: Journal of Pain and Symptom Management. 62, 3, p. 232-247 16 p.

    Research output: Contribution to journalJournal articlepeer-review

  2. Published

    What are the fears and support needs of those living alone in the last year of life and who responds?

    Hughes, S., Preston, N. J., Varey, S. E., Payne, S. A., van der Eerden, M., Schwabe, S., Busa, C., van Beek, K., Van Ende, S., Csikos, A. & Groot, M., 30/09/2016.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paperpeer-review

  3. Published

    What are the key issues identified by Heart Failure Nurses in the UK working with patients at the end of life?

    Sargeant, A., Payne, S., Seymour, J. & Ingleton, C., 2007, Hospice: the heart of end-of-life care. London, p. 50-50 1 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  4. Published

    What are the key issues identified by Heart Failure Nurses in the UK working with patients at the end of life?

    Sargeant, A., Payne, S., Seymour, J., Ingleton, C. & Ward, S., 2007, In: European Journal of Palliative Care. 10th C, p. 125-125 1 p.

    Research output: Contribution to journalJournal articlepeer-review

  5. Published

    What are the main symptoms and concerns reported by patients with advanced chronic heart failure? — A secondary analysis of the palliative care outcome scale (POS) and integrated palliative care outcome scale (IPOS)

    Oriani, A., Guo, P., Gadoud, A., Dunleavy, L., Kane, P. & Murtagh, F. E. M., 30/11/2019, In: Annals of Palliative Medicine. 8, 5, p. 775-780 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  6. Published
  7. Published
  8. Published
  9. Unpublished

    What can qualitative data add to knowledge about place of cancer deaths?

    Thomas, C., 2007, (Unpublished). 0 p.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  10. Published

    What counts as evidence? The communication of information about older people between health and social care practitioners.

    Powell, J., Hardey, M., Kerr, C., Hawker, C. & Payne, S., 2003, In: Research Policy and Planning. 21, 1, p. 1-11 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  11. Published

    What do you mean by respite?

    Scott, G., Steele, K., Payne, S., Ingleton, C., Nolan, M. & Carey, I., 03/2004, In: Palliative Medicine. 18, 2, p. 170-170 1 p.

    Research output: Contribution to journalJournal articlepeer-review

  12. Published

    What does "disability" mean for medical students? An exploration of the words medical students associate with the term "disability"

    Byron, M., Cockshott, Z., Brownett, H. & Ramkalawan, T., 02/2005, In: Medical Education. 39, 2, p. 176-183 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  13. Unpublished
  14. Published
  15. Published

    What is 'hospice'?

    Payne, S., 2007, In: European Journal of Palliative Care. 10th C, p. 99-99 1 p.

    Research output: Contribution to journalJournal articlepeer-review

  16. Published
  17. Published

    What is the evidence for the use of acupuncture as an intervention for symptom management in cancer supportive and palliative care: an integrative overview of reviews

    Towler, P., Molassiotis, A. & Brearley, S. G., 10/2013, In: Supportive Care in Cancer. 21, 10, p. 2913-2923 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  18. Published

    What is the evidence for the use of mindfulness-based interventions in cancer care? a review

    Shennan, C., Payne, S. & Fenlon, D., 07/2011, In: Psycho-Oncology. 20, 7, p. 681-697 17 p.

    Research output: Contribution to journalJournal articlepeer-review

  19. Published

    What is the meaning of palliative care in the Asia-Pacific region?

    O'Connor, M., O'Brien, A. P., Griffiths, D., Poon, E., Chin, J., Payne, S. & Nordin, R., 09/2010, In: Asia-Pacific Journal of Clinical Oncology. 6, 3, p. 197-202 6 p.

    Research output: Contribution to journalJournal article

  20. Published

    What it means to be a palliative care volunteer in eight European countries: a qualitative analysis of accounts of volunteering

    Scott, R., Goossensen, A., Payne, S. & Pelttari, L., 1/03/2021, In: Scandinavian Journal of Caring Sciences. 35, 1, p. 170-177 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  21. Published

    What mediates end-of-life care choices?

    Bloomer, M. & Walshe, C., 1/03/2021, In: Lancet Public Health. 6, 3, p. E139-E140 2 p.

    Research output: Contribution to journalEditorial

  22. Published

    What palliative care clinicians need to know about heart failure?

    Gadoud, A. & Johnson, M., 02/2014, In: Progress in Palliative Care. 22, 1, p. 26-31 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  23. Published

    What research evidence is there for the use of art therapy in the management of symptoms in adults with cancer? : a systematic review.

    Wood, M. J. M., Molassiotis, A. & Payne, S., 02/2011, In: Psycho-Oncology. 20, 2, p. 135-145 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  24. Published
  25. Published

    What went wrong with the Liverpool Care Pathway and how can we avoid making the same mistakes again?

    Hughes, S., Preston, N. & Payne, S., 23/08/2013, In: International Journal of Palliative Nursing. 19, 8, p. 372-373 2 p.

    Research output: Contribution to journalJournal articlepeer-review

  26. Published

    When a hospice in not a haven: case report

    Swarbrick, P., Grinyer, A. & Payne, S., 01/2011, In: Progress in Palliative Care. 19, 1, p. 22-24 3 p.

    Research output: Contribution to journalJournal article

  27. Published

    When is hastened death considered suicide? a systematically conducted literature review about palliative care professionals' experiences where assisted dying is legal

    Gerson, S. M., Bingley, A., Preston, N. & Grinyer, A., 31/08/2019, In: BMC Palliative Care. 18, 1, 13 p., 75.

    Research output: Contribution to journalJournal articlepeer-review

  28. Published

    Where do people not want to die? A representative survey of views of general population and health care professionals in the Czech Republic

    Loucka, M., Payne, S. A., Brearley, S. G., Slama, O. & Spinkova, M., 2014, In: Progress in Palliative Care. 22, 5, p. 264-271 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  29. Published

    White paper on standards and norms for hospice and palliative care in Europe : part 1.

    Radbruch, L. & Payne, S., 2009, In: European Journal of Palliative Care. 16, 6, p. 278-289 12 p.

    Research output: Contribution to journalJournal articlepeer-review

  30. Published

    White Paper on standards and norms for hospice and palliative care in Europe : part 2.

    Radbruch, L. & Payne, S., 2010, In: European Journal of Palliative Care. 17, 1, p. 22-33 12 p.

    Research output: Contribution to journalJournal articlepeer-review

  31. Published
  32. Published

    Why bereaved relatives decline organ and tissue donation.

    Sque, M., Long, T. & Payne, S., 2007, Organ transplantation : ethical, legal and psychosocial aspects - towards a common European policy. Weimar, W., Bos, M. A. & Busschbach, J. J. (eds.). Lengerich, Germany: PABST Science Publishers, p. 471-481 11 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  33. Published

    Why do family carers in end of life care decline support interventions?

    O'Brien, T., Payne, S., Ingleton, C. & Nolan, M., 2009, In: European Journal of Palliative Care. 16, p. 168-168 1 p.

    Research output: Contribution to journalJournal articlepeer-review

  34. Published

    Why do older Chinese people choose hospital as their preferred place to die.

    Chapman, A., Payne, S. & Holloway, M., 03/2006, In: Palliative Medicine. 20, 2, p. 143-144 2 p.

    Research output: Contribution to journalJournal articlepeer-review

  35. Published

    Why relatives do not donate organs for transplant : 'sacrifice' or 'gift of life'?

    Sque, M., Long, T., Payne, S. & Allardyce, D., 01/2008, In: Journal of Advanced Nursing. 61, 2, p. 134-144 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  36. Published

    Women and Disability. (Women's Studies Network (UK) Association Newsletter, 36)

    Thomas, C., 08/2000, Women's Studies Network (UK) Association, 7 p.

    Research output: Working paperOther

  37. Unpublished

    Women, Disability and Maternity Services. [Invited speaker]

    Thomas, C., 2000, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  38. E-pub ahead of print

    Women's experiences of advanced breast cancer in a resource-limited Arab context: A Stakian multi-case study

    Fearon, D., Hughes, S. & Brearley, S., 21/05/2021, In: Psycho-Oncology.

    Research output: Contribution to journalJournal articlepeer-review

  39. Published

    Women's health in Europe : beyond epidemiology?

    Thomas, C. & Rigby, J., 2001, Geographies of women's health. McLafferty, S., Dyke, I. & Davis Lewis, N. (eds.). London: Routledge, p. 23-40 18 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  40. Published

    Working at the coalface: using action research to study ‘integrative medicine’ in the NHS

    Welch, P., Thomas, C. & Bingley, A., 02/2013, In: European Journal of Integrative Medicine. 5, 1, p. 75-82 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  41. Published

    Working with non-clinical staff to deliver research: lessons from running a wait-list controlled trial (ELSA) of a volunteer befriending service towards the end of life

    Walshe, C. E., Dodd, S. R., Hill, M., Ockenden, N., Payne, S. A., Perez Algorta, G. D. & Preston, N. J., 06/2016, In: Palliative Medicine. 30, 6, 1 p., NP1-NP401.

    Research output: Contribution to journalMeeting abstractpeer-review

  42. Published

    Written information given to patients and families by palliative care units : a national survey.

    Payne, S., Large, S., Jarrett, N. & Turner, P., 20/05/2000, In: The Lancet. 355, 9217, p. 1792

    Research output: Contribution to journalJournal articlepeer-review

  43. Unpublished

    Young adults and life-stage issues; the effects on parents and Families. [Plenary speakers]

    Thomas, C. & Grinyer, A., 2001, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  44. Published

    Young adults with cancer : the effects of the illness on parents and families.

    Grinyer, A. & Thomas, C., 04/2001, In: International Journal of Palliative Nursing. 7, 4, p. 162-170 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  45. Unpublished

    Young adults with cancer: how their life stage affects parents and Families. [Poster]

    Grinyer, A. & Thomas, C., 2001, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Poster

  46. Published

    Young adults with cancer: parents' interaction with health professionals.

    Grinyer, A., 03/2004, In: European Journal of Cancer Care. 13, 1, p. 88-95 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  47. Published

    Young people living with cancer: implications for policy and practice.

    Grinyer, A., 2007, Open University Press. 182 p.

    Research output: Book/Report/ProceedingsBook

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