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International Observatory on End of Life Care

  1. Published

    "We call it jail craft": the erosion of the protective discourses drawn on by prison officers dealing with ageing and dying prisoners in the neoliberal, carceral system

    Peacock, M., Turner, M. & Varey, S., 1/12/2018, In: Sociology. 52, 6, p. 1152-1168 17 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  2. Published

    (Re)creating the home: the morality of technology in the home in relation to district nursing palliative care

    Nagington, M., Luker, K. & Walshe, C., 2015.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paperpeer-review

  3. Published

    ‘A friend in the corner’: supporting people at home in the last year of life via telephone and video consultation—an evaluation

    Middleton-Green, L., Gadoud, A., Norris, B., Sargeant, A. R., Nair, S., Wilson, L., Livingstone, H. & Small, N., 1/12/2019, In: BMJ Supportive and Palliative Care. 9, 4, 7 p., e26.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  4. Published

    ‘It’s not really our thing’: lessons in engaging care homes in palliative care research

    Collingridge Moore, D., Froggatt, K., Sowerby, E. & Payne, S., 9/03/2016.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  5. Published

    ‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall)

    CovPall Study Team, Dunleavy, L., Preston, N., Bajwah, S., Bradshaw, A., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. EM., Oluyase, A., Sleeman, K., Higginson, I. J. & Walshe, C., 31/05/2021, In: Palliative Medicine. 35, 5, p. 814-829 16 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  6. Published

    ‘Powerlessness’ or ‘doing the right thing’ moral distress amongst nursing home staff caring for residents at the end of life: An interpretive descriptive study

    Young, A., Froggatt, K. A. & Brearley, S. G., 10/2017, In: Palliative Medicine. 31, 9, p. 853-860 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  7. Published

    “A small cog in a large wheel”: an exploratory study into the experiences of porters, ward clerks and domestics working in an English Cancer Centre

    Mack, H., Froggatt, K. & McClinton, P., 09/2003, In: European Journal of Oncology Nursing. 7, 3, p. 153-161 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  8. Published

    “Never at ease” – family carers within integrated palliative care: a multinational, mixed method study

    Ateş, G., Ebenau, A., Busa, C., Csikos, A., Hasselaar, J., Jaspers, B., Menten, J., Payne, S., van Beek, K., Varey, S., Groot, M. & Radbruch, L., 1/03/2018, In: BMC Palliative Care. 17, 11 p., 39.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  9. Published

    “Resuscitate and Push”: End-of-Life Care Experiences of Healthcare Staff in the Emergency Department – A Hermeneutic Phenomenological Study

    Bayuo, J., Anago, E. K., Agyei, F. B., Salifu, Y., Kyei Baffour, P. & Atta Poku, C., 1/10/2022, In: Journal of Palliative Care. 37, 4, p. 494-502 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  10. Published

    15 Deathbed etiquette-support for being at the bedside of the person you love

    Gadoud, A., Sanders, K., Nwosu, A., Elverson, J., Bassett, L. & Doherty, M., 1/03/2021, In: BMJ Supportive and Palliative Care. 11, Suppl 1, p. A6-A7 2 p.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  11. Published

    60 seconds with Catherine Walshe

    Walshe, C., 24/04/2014, In: Nursing Times. 110, 9, p. 28

    Research output: Contribution to Journal/MagazineJournal article

  12. Published

    63 Systematic review of prognostic variables associated with mortality in adult patients with heart failure

    Hancock, S., Oriani, A., Johnson, M. J., Macleod, U. & Gadoud, A., 1/03/2020, Accepted Oral and Poster Abstract Submissions, The Palliative Care Congress 1 Specialty: 3 Settings – home, hospice, hospital 19–20 March 2020 | Telford International Centre. Suppl 1 ed. Vol. 10. p. A30-A31 (BMJ Supportive and Palliative Care).

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNConference contribution/Paperpeer-review

  13. Published

    A bereavement group for parents whose son or daughter died from cancer: how shared experience can lessen isolation

    Grinyer, A., 11/2012, In: Mortality. 17, 4, p. 338-354 17 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  14. Published

    A comparison of bereavement services provided in hospice and palliative care settings in Australia, the UK and the US.

    O'Connor, M., Payne, S., Demmer, C. & Abbott, J., 2009, In: European Journal of Palliative Care. 16, p. 146-146 1 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  15. Published

    A comparison of bereavement services provided in hospice and palliative care settings in Australia, the UK and the USA.

    O'Connor, M., Abbott, J., Payne, S. & Demmer, C., 04/2009, In: Progress in Palliative Care. 17, 2, p. 69-74 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  16. Published

    A comparison of strategies to recruit older patients and carers to end-of-life research in primary care

    Hanratty, B., Lowson, E., Holmes, L., Addington-Hall, J., Arthur, T. A. A., Grande, G., Payne, S. & Seymour, J., 27/09/2012, In: BMC Health Services Research. 12, 7 p., 342.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  17. Published

    A computer-assisted study of the use of violence metaphors for cancer and end of life by patients, family carers and health professionals

    Demmen, J. E., Semino, E., Demjen, Z., Koller, V., Hardie, A., Rayson, P. & Payne, S., 17/08/2015, In: International Journal of Corpus Linguistics. 20, 2, p. 205-231 27 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  18. Published

    A critical review of the contribution of health psychology to palliative care.

    Payne, S., 2000, In: Proceedings of the British Psychological Society. 8, 2, p. 43-43 1 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  19. Published

    A family carer decision support intervention for people with advanced dementia residing in a nursing home: a study protocol for an international advance care planning intervention (mySupport study)

    mySupport Study Group, 26/10/2022, In: BMC Geriatrics. 22, 10 p., 822.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  20. Published

    A four-stage process for intervention description and guide development of a practice based intervention: refining the Namaste Care intervention implementation specification for people with advanced dementia prior to a feasibility cluster randomised trial

    Walshe, C., Kinley, J., Patel, S., Goodman, C., Bunn, F., Lynch, J., Scott, D., Davidson Lund, A., Stacpoole, M., Preston, N. & Froggatt, K., 21/10/2019, In: BMC Geriatrics. 19, 11 p., 275.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  21. Published

    A framework for cross-cultural development and implementation of complex interventions to improve palliative care in nursing homes: the PACE steps to success programme

    Hockley, J., Froggatt, K., Van den Block, L., Onwuteaka-Philipsen, B., Kylänen, M., Szczerbińska, K., Gambassi, G., Pautex, S. & Payne, S. A., 24/10/2019, In: BMC Health Services Research. 19, 1, 11 p., 745.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  22. Published

    A good death in the child with life shortening illness: A qualitative multiple-case study

    Chong, P. H., Walshe, C. & Hughes, S., 1/12/2021, In: Palliative Medicine. 35, 10, p. 1878-1888 11 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  23. Published

    A grounded theory approach to physical activity and advanced cancer: a qualitative study protocol

    Lowe, S. S., Milligan, C., Watanabe, S. M. & Brearley, S. G., 8/12/2015, In: International Journal of Qualitative Methods. 14, 5, 10 p., 1609406915617161.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  24. Published

    A grounded theory of interdependence between specialist and generalist palliative care teams across healthcare settings

    Thelen, M., Walshe, C. & Brearley, S., 1/12/2023, In: Palliative Medicine. 37, 10, p. 1474 - 1483 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  25. Published

    A Grounded Theory Study Exploring Palliative Care Healthcare Professionals’ Experiences of Managing Digital Legacy as Part of Advance Care Planning for People Receiving Palliative Care

    Stanley, S., Higginbotham, K., Finucane, A. & Nwosu, A., 31/10/2023, In: Palliative Medicine. 37, 9, p. 1424-1433 10 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  26. Published

    A group intervention to improve quality of life for people with advanced dementia living in care homes: the Namaste feasibility cluster RCT

    Froggatt, K., Dunleavy, L., Perez Algorta, G., Preston, N. & Walshe, C., 23/01/2020, In: Health Technology Assessment. 24, 6, p. 1-139 139 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  27. Published

    A journey around the social model

    Thomas, C. & Corker, M., 2002, Disability/postmodernity : embodying disability theory. Corker, M. & Shakespeare, T. (eds.). London: Continuum, p. 18-31 14 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  28. Published

    A Meta-Ethnographic Review of Paid Staff and Volunteers Working together in Palliative Care

    Oliver, K., Brown, M., Walshe, C. & Salifu, Y., 1/12/2023, In: Journal of Pain and Symptom Management. 66, 6, p. 656-670 e.11.

    Research output: Contribution to Journal/MagazineReview articlepeer-review

  29. Published

    A meta-synthesis of the transitioning experiences and career progression of migrant African nurses

    Bayou, J., Abboah-Offei, M., Duodu, P. A. & Salifu, Y., 6/04/2023, In: BMC Nursing. 22, 1, 20 p., 104.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  30. Published

    A multi-centre longitudinal study to identify the palliative care needs of older people with heart failure and their families : executive summary.

    Gott, M., Barnes, S., Payne, S., Seamark, D., Parker, C., Gariballa, S. & Small, N., 08/2006, Sheffield: University of Sheffield.

    Research output: Working paper

  31. Published

    A narrative exploration of older people’s transitions into residential care

    Lee, V. S. P., Simpson, J. & Froggatt, K., 2013, In: Aging and Mental Health. 17, 1, p. 48-56 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  32. Published
  33. Published

    A narrative literature review of the contribution of volunteers in end of life care services

    Morris, S., Wilmot, A., Hill, M., Ockenden, N. & Payne, S., 05/2013, In: Palliative Medicine. 27, 5, p. 428-436 9 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  34. Published

    A national postal survey of adult bereavement support in hospice and specialist palliative care services in the UK.

    Field, D., Reid, D., Payne, S. & Relf, M., 07/2004, In: Palliative Medicine. 18, 4, p. 326-326 1 p., Abstract number: 88.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  35. Published

    A national postal survey of adult bereavement support in hospice and specialist palliative care services in the UK.

    Field, D., Reid, D., Payne, S. & Relf, M., 2004, In: International Journal of Palliative Nursing. 10, 12, p. 569-576 8 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  36. Published

    A natural experiment : evaluating new interventions to support carers in the UK.

    Payne, S., O'Brien, T. & Ingleton, C., 2009, In: European Journal of Palliative Care. 16, p. 90-90 1 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  37. Published
  38. Published

    A palliative care approach for people with advanced heart failure: recognition of need, transitions in care, and effect on patients, family carers, and clinicians

    Gadoud, A., 26/02/2014, In: The Lancet. 383, Suppl. 1, p. S50 1 p.

    Research output: Contribution to Journal/MagazineMeeting abstractpeer-review

  39. Published

    A philosophical critique of the UK’s National Institute for Health and Care Excellence guideline ‘Palliative care for adults: strong opioids for pain relief’

    Fearon, D., Hughes, S. & Brearley, S. G., 1/08/2018, In: British Journal of Pain. 12, 3, p. 183-188 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  40. Published

    A pilot study of interprofessional palliative care education of medical students in the UK and USA

    Gadoud, A., Lu, W-H., Strano-Paul, L., Lane, S. & Boland, J. W., 23/07/2017, In: BMJ Supportive and Palliative Care. 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  41. Published

    A pilot study to explore the palliative care needs of older patients with chronic obstructive pulmonary disease (COPD).

    Gott, M., Barnes, S., Gardiner, C., Halpin, D., Parker, C., Payne, S., Ruse, C., Seamark, D. & Small, N., 2009.

    Research output: Working paper

  42. Published

    A pilot study to investigate the potential use of Snoezelen within palliative day care.

    Schofield, P. & Payne, S., 2003, In: International Journal of Palliative Nursing. 9, 3, p. 124-130 7 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  43. Published

    A post-graduate's guide to doing a literature review in health and social care

    Aveyard, H., Payne, S. A. & Preston, N. J., 1/02/2016, Oxford: Oxford University Press. 200 p.

    Research output: Book/Report/ProceedingsBook

  44. Published

    A poststructural rethinking of the ethics of technology in relation to the provision of palliative home care by district nurses

    Nagington, M., Walshe, C. & Luker, K., 01/2016, In: Nursing Philosophy. 17, 1, p. 59-70 12 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  45. Published

    A proper place to live: health inequalities, agency and the normative dimensions of space.

    Popay, J. M., Thomas, C., Williams, G., Bennett, S., Gatrell, A. C. & Bostock, L., 1/07/2003, In: Social Science and Medicine. 57, 1, p. 55-69 15 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  46. Published

    A qualitative exploration of sensing the presence of the deceased following bereavement

    Keen, C., Murray, C. & Payne, S., 2013, In: Mortality. 18, 4, p. 339-357 18 p.

    Research output: Contribution to Journal/MagazineJournal article

  47. Published

    A qualitative exploration of the collaborative working between palliative care and geriatric medicine: barriers and facilitators from a European perspective

    EURO-IMPACT, 11/05/2016, In: BMC Palliative Care. 15, 10 p., 47.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  48. Published

    A qualitative investigation into women's experiences after a miscarriage: implications for the primary healthcare team

    Wong, M. K. Y., Crawford, T. J., Gask, L. & Grinyer, A., 09/2003, In: British Journal of General Practice. 53, 494, p. 697-702 6 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  49. Published

    A qualitative study of nurses' views on depression in palliative care patients.

    Lloyd-Williams, M. & Payne, S., 06/2003, In: Palliative Medicine. 17, 4, p. 334-338 5 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

  50. Published

    A qualitative study to explore family carers.

    Skilbeck, J., Payne, S., Ingleton, C., Nolan, M., Carey, I. & Hanson, A., 2004, In: Palliative Medicine. 18, 2, p. 151-151 1 p.

    Research output: Contribution to Journal/MagazineJournal articlepeer-review

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