International Observatory on End of Life Care

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Journal article
Published
How effective and cost effective are innovative combinatorial technologies and practices for supporting older people with long-term conditions to remain well in the community? An evaluation protocol for an NHS Test Bed in North West England
Varey, S. E., Hernandez Huerta, M. A., Palmer, T. M., Mateus, C., Wilkinson, J., Dixon, M. P. & Milligan, C., 28/02/2018, In: BMJ Open. 8, 2, 10 p., e017268.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
E-pub ahead of print
Integrated palliative care is about professional networking rather than standardisation of care: A qualitative study with healthcare professionals in 19 integrated palliative care initiatives in five European countries
den Herder-van der Eerden, M., van Wijngaarden, J., Payne, S., Preston, N., Linge-Dahl, L., Radbruch, L., Van Beek, K., Menten, J., Busa, C., Csikos, A., Vissers, K., van Gurp, J. & Hasselaar, J., 13/02/2018, (E-pub ahead of print) In: Palliative Medicine. 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Family involvement in timely detection of changes in health of nursing homes residents: a qualitative exploratory study
Powell, C., Blighe, A., Froggatt, K. A., McCormack, B., Woodward-Carlton, B., Young, J., Robinson, L. & Downs, M., 01/2018, In: Journal of Clinical Nursing. 27, 1-2, p. 317-327 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A revised model for coping with advanced cancer. Mapping concepts from a longitudinal qualitative study of patients and carers coping with advanced cancer onto Folkman and Greer’s theoretical model of appraisal and coping
Roberts, D., Calman, L., Large, P., Appleton, L., Grande, G., Lloyd-Williams, M. & Walshe, C. E., 01/2018, In: Psycho-Oncology. 27, 1, p. 229-235 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Final transitions to place of death: Patients and families wishes
EURO-IMPACT, 1/12/2017, In: Journal of Public Health (United Kingdom). 39, 4, p. e302-e311 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
How continuity of care is experienced within the context of integrated palliative care: a qualitative study with patients and family caregivers in five European countries
den Herder-van der Eerden, M., Hasselaar, J., Payne, S., Varey, S., Schwabe, S., Radbruch, L., van Beek, K., Menten, J., Busa, C., Csikos, A., Vissers, K. & Groot, M., 1/12/2017, In: Palliative Medicine. 31, 10, p. 946-955 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Outcomes, measurement and effectiveness. Lessons from a pragmatic randomised wait-list trial of volunteer support in palliative care (ELSA)
Walshe, C. E., Dodd, S. R., Hill, M., Ockenden, N., Payne, S. A., Preston, N. J. & Perez Algorta, G. D., 1/12/2017, In: Omsorg. The Norwegian Journal of Palliative Medicine. 34, 4, p. 58-60 3 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Enhancing integrated palliative care: what models are appropriate? A cross-case analysis
Payne, S. A., Hughes, S., Varey, S. E., Hasselaar, J., Preston, N. J. & Eastham, R. K., 28/11/2017, In: BMC Palliative Care. 16, 64, 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Is the content of guidelines/pathways a barrier for the integration of palliative Care in Chronic Heart Failure (CHF) and chronic pulmonary obstructive disease (COPD)? A comparison with the case of cancer in Europe
Siouta, N., Van Beek, K., Payne, S., Radbruch, L., Preston, N., Hasselaar, J., Centeno, C. & Menten, J., 28/11/2017, In: BMC Palliative Care. 16, 1, 8 p., 62.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
E-pub ahead of print
The views of adults with neurodegenerative diseases on end-of-life care: a metasynthesis
Regan, L., Preston, N. J., Eccles, F. J. R. & Simpson, J., 6/11/2017, (E-pub ahead of print) In: Aging and Mental Health. 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Cancer-related pain management: a review of knowledge and attitudes of healthcare professionals
Kasasbeh, M. A. M., McCabe, C. & Payne, S. A., 11/2017, In: European Journal of Cancer Care. 26, 6, 7 p., e12625.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Hospice volunteers: bridging the gap to the community?
Morris, S., Payne, S., Ockenden, N. & Hill, M., 11/2017, In: Health and Social Care in the Community. 25, 6, p. 1704-1713 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Using the Ecological Framework to identify barriers and enablers to implementing Namaste Care in Canada’s long-term care system
Hunter, P., Kaasalainen, S., Froggatt, K. A., Ploeg, J., Dolovich, L., Simard, J. & Salsali, M., 1/10/2017, In: Annals of Palliative Medicine. 6, 4, p. 340-353 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
‘Powerlessness’ or ‘doing the right thing’ moral distress amongst nursing home staff caring for residents at the end of life: An interpretive descriptive study
Young, A., Froggatt, K. A. & Brearley, S. G., 10/2017, In: Palliative Medicine. 31, 9, p. 853-860 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: Recommendations based on a methodological systematic review
Jünger, S., Payne, S., Brine, J., Radbruch, L. & Brearley, S., 1/09/2017, In: Palliative Medicine. 31, 8, p. 684-706 23 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A pilot study of interprofessional palliative care education of medical students in the UK and USA
Gadoud, A., Lu, W-H., Strano-Paul, L., Lane, S. & Boland, J. W., 23/07/2017, In: BMJ Supportive and Palliative Care. 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Ward social workers’ views of what facilitates or hinders collaboration with specialist palliative care team social workers: a grounded theory
Firn, J., Preston, N. J. & Walshe, C. E., 14/07/2017, In: BMC Palliative Care. 17, 12 p., 7.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative care development in European care homes and nursing homes: application of a typology of implementation
Froggatt, K. A., Payne, S. A., Morbey, H., Edwards, M. J., Finne-Soveri, H., Gambassi, G., Pasman, H. R., Szczerbińska, K. & Van den Block, L., 1/06/2017, In: Journal of the American Medical Directors Association. 18, 6, p. 550.e7-550.e14 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A systematically structured review of biomarkers of dying in cancer patients in the last months of life: An exploration of the biology of dying
Reid, V., McDonald, R., Nwosu, A., Mason, S., Probert, C., Ellershaw, J. & Coyle, S., 6/04/2017, In: PLoS ONE. 12, 4, 31 p., e0175123.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Are nurse-led chemotherapy clinics really nurse-led? an ethnographic study
Farrell, C., Walshe, C. E. & Molassiotis, A., 04/2017, In: International Journal of Nursing Studies. 69, p. 1-8 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The online use of Violence and Journey metaphors by patients with cancer, as compared with health professionals: a mixed methods study
Semino, E., Demjen, Z., Demmen, J., Koller, V., Payne, S., Hardie, A. & Rayson, P., 1/03/2017, In: BMJ Supportive and Palliative Care. 7, 1, p. 60-66 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Coping well with advanced cancer: a serial qualitative interview study with patients and family carers
Walshe, C. E., Roberts, D., Appleton, L., Calman, L., Large, P., Lloyd-Williams, M. & Grande, G., 20/01/2017, In: PLoS ONE. 12, 1, 25 p., e0169071.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative care in UK prisons: practical and emotional challenges for staff and fellow prisoners
Turner, M. & Peacock, M., 01/2017, In: Journal of Correctional Health Care. 23, 1, p. 56-65 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Public health, research and rights: the perspectives of deliberation panels with politically and socially active disabled people
Berghs, M., Atkin, K., Graham, H., Hatton, C. & Thomas, C., 2017, In: Disability and Society. 32, 7, p. 945-965 21 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Erratum to Protocol for the End-of-Life Social Action Study (ELSA): a randomised wait-list controlled trial and embedded qualitative case study evaluation assessing the causal impact of social action befriending services on end of life experience (vol 15, 60, 2016)
Walshe, C., Algorta, G. P., Dodd, S., Papavasiliou, E., Hill, M., Ockenden, N., Payne, S. & Preston, N., 29/12/2016, In: BMC Palliative Care. 15, 1 p., 98.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
How effective are volunteers at supporting people in their last year of life? a pragmatic randomised wait-list trial in palliative care (ELSA)
Walshe, C. E., Dodd, S. R., Hill, M., Ockenden, N., Payne, S. A., Preston, N. J. & Perez Algorta, G. D., 9/12/2016, In: BMC Medicine. 14, 12 p., 203.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative care interventions in advanced dementia (Review)
Murphy, E., Froggatt, K. A., Connolly, S., O'Shea, E., Sampson, E., Casey, D. & Devane, D., 2/12/2016, In: Cochrane Database of Systematic Reviews. 12, 50 p., CD011513.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Medical students writing on death, dying and palliative care: a qualitative analysis of reflective essays
Boland, J. W., Dikomitis, L. & Gadoud, A., 1/12/2016, In: BMJ Supportive and Palliative Care. 6, p. 486-492 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Collecting biological material from palliative care patients in the last weeks of life: a feasibility study
Coyle, S., Scott, A., Nwosu, A., Latten, R., Wilson, J., Mayland, C. R., Mason, S., Probert, C. & Ellershaw, J., 10/11/2016, In: BMJ Open. 6, 11, 6 p., e011763.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Language barriers to defining concepts in medicine: the case of palliative sedation
Bakogiannis, A. & Papavasiliou, E., 11/2016, In: American Journal of Hospice and Palliative Medicine. 33, 9, p. 909-910 2 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Cochrane corner: interventions for the management of malignant pleural effusions
Clive, A., Bhatnagar, R., Preston, N. J., Maskell, N. & Jones, H. E., 31/10/2016, In: Thorax. 71, 10, p. 964-966 3 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The Association of Hydration Status with Physical Signs, Symptoms and Survival in Advanced Cancer—The Use of Bioelectrical Impedance Vector Analysis (BIVA) Technology to Evaluate Fluid Volume in Palliative Care: An Observational Study
Nwosu, A., Mayland, C. R., Mason, S., Cox, T. F., Varro, A. & Ellershaw, J., 27/09/2016, In: PLoS ONE. 11, 9, 20 p., 0163114.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Online learning in palliative care: does it improve practice?
Hughes, S., Preston, N. J. & Payne, S. A., 09/2016, In: European Journal of Palliative Care. 23, 5, p. 236-239 4 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Use of podcast technology to facilitate education, communication and dissemination in palliative care: the development of the AmiPal podcast
Nwosu, A., Monnery, D., Reid, V. & Chapman, L., 31/08/2016, In: BMJ Supportive and Palliative Care. 7, 2, p. 212-217 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Benefits of interventions for respiratory secretion management in adult palliative care patients-a systematic review
Arcuri, J. F., Abarshi, E., Preston, N. J., Brine, J. & Pires Di Lorenzo, V. A., 9/08/2016, In: BMC Palliative Care. 15, 11 p., 74.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Protocol for the End-of-Life Social Action Study (ELSA): a randomised wait-list controlled trial and embedded qualitative case study evaluation assessing the causal impact of social action befriending services on end of life experience
Walshe, C. E., Perez Algorta, G. D., Dodd, S. R., Hill, M., Ockenden, N., Payne, S. A. & Preston, N. J., 13/07/2016, In: BMC Palliative Care. 15, 9 p., 60.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Integrated palliative care in Europe: a qualitative systematic literature review of empirically-tested models in cancer and chronic disease
Siouta, N., van Beek, K., van der Eerden, M., Preston, N. J., Hasselaar, J., Hughes, S., Garralda, E., Centeno, C., Csikos, A., Groot, M., Radbruch, L., Payne, S. A. & Menten, J., 8/07/2016, In: BMC Palliative Care. 15, 56, 16 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Comparing palliative care in care homes across Europe (PACE): protocol of a cross-sectional study of deceased residents in six EU countries
Van den Block, L., Smets, T., van Dop, N., Adang, E., Andreasen, P., Collingridge Moore, D., Engels, Y., Finne-Soveri, H., Froggatt, K. A., Payne, S. A. & Sowerby, E., 1/06/2016, In: Journal of the American Medical Directors Association. 17, 6, p. 566.e1-566.e7 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A qualitative exploration of the collaborative working between palliative care and geriatric medicine: barriers and facilitators from a European perspective
EURO-IMPACT, 11/05/2016, In: BMC Palliative Care. 15, 10 p., 47.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Interventions for the management of malignant pleural effusions: a network meta-analysis
Clive, A. O., Jones, H. E., Bhatnagar, R., Preston, N. J. & Maskell, N., 11/05/2016, In: The Cochrane Library. 5, 244 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Caring for a dying spouse at the end of life: “It’s one of the things you volunteer for when you get married”: a qualitative study of the oldest carers’ experiences
Turner, J. M., King, C., Milligan, C., Thomas, C., Brearley, S. G., Seamark, D., Wang, X., Blake, S. & Payne, S. A., 05/2016, In: Age and Ageing. 45, 3, p. 421-426 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Older men and social activity: a scoping review of Men’s Sheds and other gendered interventions
Milligan, C., Neary, D., Payne, S., Hanratty, B., Irwin, P. & Dowrick, C., 05/2016, In: Ageing and Society. 36, 5, p. 895-923 29 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Longitudinal bioimpedance assessments to evaluate hydration in POEMS syndrome
Nwosu, A., Morris, L., Mayland, C. R., Mason, S., Pettitt, A. & Ellershaw, J., 28/04/2016, In: BMJ Supportive and Palliative Care. 2016, 6, p. 369-372 4 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Advance care planning – a multi-centre cluster randomised clinical trial: the research protocol of the ACTION study
Rietjens, J., Dunleavy, L. J., Preston, N. J. & Payne, S. A., 8/04/2016, In: BMC Cancer. 16, 8 p., 264.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
To what degree is palliative care integrated in guidelines and pathways for adult cancer patients in Europe: a systematic literature review
van Beek, K., Siouta, N., Preston, N. J., Hasselaar, J., Hughes, S., Payne, S. A., Radbruch, L., Centeno, C., Csikos, A., Garralda, E., van der Eerden, M., Hodiamont, F., Radvanyi, I. & Menten, J., 3/03/2016, In: BMC Palliative Care. 15, 26, 17 p., 26.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Improving palliative care for prisoners: the 'both sides of the fence' study
Turner, J. M., 03/2016, In: Prison Service Journal. 224
Research output: Contribution to Journal/Magazine › Journal article
Published
Unpacking the impact of older adults' home death on family care-givers' experiences of home
Milligan, C., Turner, J. M., Blake, S., Brearley, S. G., Seamark, D., Thomas, C. J., Wang, X. & Payne, S. A., 03/2016, In: Health and Place. 38, p. 103-111 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
What are the views of hospital-based generalist palliative care professionals on what facilitates or hinders collaboration with in-patient specialist palliative care teams? a systematically constructed narrative synthesis
Firn, J., Preston, N. J. & Walshe, C. E., 03/2016, In: Palliative Medicine. 30, 3, p. 240-256 17 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Quality care as ethical care: a poststructural analysis of palliative and supportive district nursing care
Nagington, M., Walshe, C. & Luker, K., 03/2016, In: Nursing Inquiry. 23, 1, p. 12-23 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Building a taxonomy of integrated palliative care initiatives: results from a focus group
Ewert, B., Hodiamont, F., van Wijngaarden, J., Payne, S. A., Groot, M., Hasselaar, J., Menten, J. & Radbruch, L., 03/2016, In: BMJ Supportive and Palliative Care. 6, 1, p. 14-20 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review

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