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International Observatory on End of Life Care

  1. Conference paper
  2. Published

    Outcomes of an EAPC White Paper on core competencies for palliative care social work in Europe

    Hughes, S., Firth, P. & Oliviere, D., 8/05/2015.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paperpeer-review

  3. Published

    (Re)creating the home: the morality of technology in the home in relation to district nursing palliative care

    Nagington, M., Luker, K. & Walshe, C., 2015.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paperpeer-review

  4. Published

    Balancing acts of work in the third sector: older volunteers’ experience in woodland conservation

    Bingley, A., Collins, A., Varey, S. & Oaks, R., 2014.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paperpeer-review

  5. Unpublished

    The impact of the transition to a care home on residents’ sense of identity: a longitudinal qualitative case study approach

    Paddock, K., Walshe, C., Todd, C. & Brown Wilson, C., 2014, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Conference paperpeer-review

  6. Unpublished

    Narrative Research Methods in Palliative Care Contexts. [Invited plenary paper]

    Thomas, C., 2008, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  7. Published

    Key ‘narrative’ questions to pose in the analysis of cancer interview data.

    Thomas, C., 2007.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  8. Published

    Rejecting Care? The disability studies critique.

    Thomas, C., 2007.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  9. Unpublished

    What can qualitative data add to knowledge about place of cancer deaths?

    Thomas, C., 2007, (Unpublished). 0 p.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  10. Published

    Palliative care services: How do they help patients and families, Bereavement support in hospices, Bereavement and loss: social and cultural dimension.

    Feldman, L. & Payne, S., 05/2006.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paperpeer-review

  11. Published

    Exploring Experience: perspectives in disability studies and medical sociology.

    Thomas, C., 2006.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  12. Published
  13. Published

    Sociologies of Disability: how is disability understood?

    Thomas, C., 2004.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  14. Published

    Informal Carers in Cancer Contexts.

    Thomas, C. & Morris, S. M., 2002.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  15. Published

    The need to know: informal carers and information.

    Morris, S. M. & Thomas, C., 2002.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  16. Published

    The care given by informal carers in cancer contexts.

    Thomas, C., 15/10/2001.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  17. Published

    Informal carers in cancer contexts: their activities and needs.

    Thomas, C., Morris, S. M., Harman, J. C. & Mclllmurray, M. B., 2001.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  18. Published

    Disabled women and the gendered nature of disability: examples from health care.

    Thomas, C., 2000.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  19. Unpublished

    The psycho-emotional dimensions of disability. [Guest lecture]

    Thomas, C., 2000, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  20. Published

    Area influences: the experience of place.

    Thomas, C., 2000.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  21. Published

    Congruence and tension between the women’s movement and the disability Movement.

    Thomas, C., 2000.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  22. Published

    Companions through Cancer: the care given by informal carers in cancer contexts.

    Thomas, C. & Morris, S. M., 2000.

    Research output: Contribution to conference - Without ISBN/ISSN Conference paper

  23. Poster
  24. Published

    Challenges of undertaking a systematic review to measure residents’ length of stay in care homes

    Collingridge Moore, D., Payne, S., Keegan, T. & Froggatt, K., 2020.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  25. Published
  26. Published

    Using Participatory Action Research in the Development of an Innovative Cottage Hospice Model of Care in the United Kingdom

    Hughes, S., Barnes, H. E., Yardley, J., Turner, M. & Walshe, C. E., 2/10/2018.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  27. Published

    Perceptions and Experiences of Patients and Informal Caregivers in Advanced Chronic Obstructive Pulmonary Disease: An Exploratory Study

    Fusi-Schmidhauser, T., Froggatt, K. A. & Preston, N. J., 24/05/2018.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  28. Published

    Family Members’ Experiences and Needs When Witnessing Diminishing Drinking of a Dying Relative: A Systematic Literature Review

    Pettifer, A., Froggatt, K. A. & Hughes, S., 24/05/2018.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  29. Published

    Predictors of length of stay in nursing homes a comparison of residents in 322 nursing homes in six European countries. Results of the EU FP7 PACE study.

    Collingridge Moore, D., Payne, S., Keegan, T., Van den Block, L., Deliens, L., Gambassi, G., Heikkilä, R., Kijowska, V., Pasman, R., Pivodic, L. & Froggatt, K., 2018.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  30. Published

    Length of Stay in Nursing Homes, a Survival Analysis of six European Countries: Results of the EU FP7 PACE Study.

    Collingridge Moore, D., Payne, S., Keegan, T., Van den Block, L., Deliens, L., Gambassi, G., Heikkilä, R., Kijowska, V., Pasman, R. H., Pivodic, L. & Froggatt, K., 2018.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  31. Published
  32. Published

    Predictors of length of stay before death in nursing homes a systematic review

    Collingridge Moore, D., Froggatt, K., Payne, S. & Van den Block, L., 2017.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  33. Published

    Engaging nursing homes (NHs) in the PACE study: comparing recruitment in observational and intervention research designs

    Sowerby, E., Collingridge Moore, D., Froggatt, K., Payne, S. & Van den Block, L., 8/06/2016.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  34. Published

    ‘It’s not really our thing’: lessons in engaging care homes in palliative care research

    Collingridge Moore, D., Froggatt, K., Sowerby, E. & Payne, S., 9/03/2016.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  35. Published
  36. Published

    How do grandparents experience the death of a grandchild following a life limiting condition?

    Tatterton, M., Morris, S. M. & Walshe, C. E., 9/03/2016.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  37. Published

    Improving online learning in palliative care: a comprehensive review

    Hughes, S., Preston, N. & Payne, S., 8/05/2015.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  38. Published

    Supporting family carers: national evidence based recommendations for hospices in the UK

    Morbey, H. & Payne, S., 6/06/2014.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  39. Unpublished

    Cancer and seeking normality: a longitudinal, qualitative study to explore how patients with advanced cancer and their carers cope and maintain psychological wellbeing

    Roberts, D., Grande, G., Lloyd-Williams, M., Calman, L., Appleton, L., Large, P., Kernaghan, S. & Walshe, C., 2013, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  40. Published

    Improving Hospice Environments for Older People in England: A Documentary Analysis

    Rigby, J., Payne, S. & Milligan, C., 2012. 0 p.

    Research output: Contribution to conference - Without ISBN/ISSN Poster

  41. Unpublished

    The physical environment of care for older in-patients at the end of life

    Rigby, J., 5/04/2011, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Poster

  42. Unpublished
  43. Published

    It’s amazing how safe and secure I felt within that building. [Posters]

    Cockshott, Z. J., Payne, S. A., Thomas, C. & Fyfe, D., 2009.

    Research output: Contribution to conference - Without ISBN/ISSN Poster

  44. Published

    Recruiting older people with heart failure into a study exploring palliative care needs.

    Barnes, S., Gott, M. & Payne, S., 2005.

    Research output: Contribution to conference - Without ISBN/ISSN Poster

  45. Published

    Preferences for place of death among cancer patients and their carers [Poster and presentation]

    Thomas, C., 2004.

    Research output: Contribution to conference - Without ISBN/ISSN Poster

  46. Unpublished

    Young adults with cancer: how their life stage affects parents and Families. [Poster]

    Grinyer, A. & Thomas, C., 2001, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Poster

  47. Abstract
  48. Published

    Talk about talking: 'Safe' and 'challenging' therapeutic talk in a UK Independent Cancer Support Service

    Cockshott, Z., Payne, S. & Thomas, C., 05/2011, p. 151-152.

    Research output: Contribution to conference - Without ISBN/ISSN Abstract

  49. Speech
  50. Published
  51. Unpublished

    The physical environment of care for older in-patients at the end of life

    Rigby, J., 6/04/2011, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  52. Unpublished

    My Experience as a CECo Scholar

    Rigby, J., 10/05/2009, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  53. Unpublished

    Improving the Physical Environment for Older In-Patients at the End of Life

    Rigby, J., 21/04/2009, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  54. Unpublished

    The Social Model of Disability and the Rights Discourse: one and the same? [Invited speaker]

    Thomas, C., 2009, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  55. Unpublished

    Narratives of living and dying with cancer. [Invited speaker]

    Thomas, C., 2007, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  56. Unpublished

    Exploring Experience – disciplinary perspectives. [Invited speaker]

    Thomas, C., 2006, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  57. Unpublished

    Care and Dependency – Contested Disciplinary Terrain. [Invited speaker]

    Thomas, C., 2005, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  58. Unpublished

    Disability and Gender. [Invited speaker]

    Thomas, C., 2005, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  59. Unpublished

    Patient Choice and Place of Death. [Keynote address]

    Thomas, C., 2005, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  60. Unpublished

    Gender and Disability. [Plenary speaker]

    Thomas, C., 2005, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  61. Unpublished

    Theoretical reflections on Care and Dependency.

    Thomas, C., 2005, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  62. Unpublished

    Methodological issues arising from a randomized controlled trial for malignant ascites in palliative care (Oral presentation)

    Preston, N., 2004, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  63. Unpublished

    A survey of practice in malignant ascites discussed in relation to findings from a systematic review of the literature (Oral presentation)

    Preston, N. & Seers, A., 2004, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  64. Unpublished

    Methodological issues arising from a randomized controlled trial for malignant ascites in palliative care (Oral presentation)

    Preston, N., 2004, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  65. Unpublished

    Choosing the Place of Final Care. [Plenary speaker]

    Thomas, C. & Morris, S. M., 2003, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  66. Unpublished

    Defining a Theoretical Agenda for Disability Studies. [Plenary speaker]

    Thomas, C., 2003, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  67. Unpublished

    Developing the social relational in the social model of disability: a theoretical agenda. [Invited speaker]

    Thomas, C., 2002, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  68. Unpublished

    Disability Research, Theory and Practice. [Plenary speaker]

    Thomas, C., 2002, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  69. Unpublished

    Companions Through Cancer. [Plenary speakers]

    Thomas, C. & Grinyer, A., 2002, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  70. Unpublished

    The Social Care Needs of Cancer Patients and Their Carers. [Keynote speaker]

    Thomas, C., 2002, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  71. Unpublished

    The development of a nursing strategy for managing malignant ascites (Oral presentation / Plenary)

    Preston, N., 2002, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  72. Unpublished

    The role of the research nurse (Oral presentation / Plenary)

    Preston, N., 2002, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  73. Unpublished

    Disability and Gender: Opening Up the Psycho-emotional Dimensions of Disability. [Keynote speaker]

    Thomas, C., 2001, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  74. Unpublished

    Young adults and life-stage issues; the effects on parents and Families. [Plenary speakers]

    Thomas, C. & Grinyer, A., 2001, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  75. Unpublished

    The psychosocial needs of cancer patients and their main carers. [Keynote speaker]

    Thomas, C., 2000, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  76. Unpublished

    Women, Disability and Maternity Services. [Invited speaker]

    Thomas, C., 2000, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  77. Unpublished

    Understanding Health Inequalities: people, time and place.[Invited speaker]

    Thomas, C., 2000, (Unpublished).

    Research output: Contribution to conference - Without ISBN/ISSN Speech

  78. Article
  79. Published

    A systematic review of the resource use of a palliative care approach in adult non-cancer patients with a life-limiting illness

    Gavini, S., Janke, K., Gadoud, A. & Salifu, Y., 14/08/2020, PROSPERO International prospective register of systematic reviews.

    Research output: Contribution to specialist publicationArticle

  80. Featured article
  81. Published

    How can and should UK society adjust to dementia?

    Thomas, C. & Milligan, C., 06/2015, Joseph Rowntree Viewpoint 24 p.

    Research output: Contribution to specialist publicationFeatured article

  82. Doctoral Thesis
  83. Published

    Length of stay and palliative care: Understanding long-term care facility residents in Europe

    Collingridge Moore, D., 19/05/2021, Lancaster University. 378 p.

    Research output: ThesisDoctoral Thesis

  84. Published
  85. Published
  86. Published
  87. Published

    Voices in a Knowledge Conversation: an exploration of two narrative representations of Adult Literacy Learners

    Varey, S., 2013, Lancaster: Lancaster University. 409 p.

    Research output: ThesisDoctoral Thesis

  88. Unpublished

    Living with advanced cancer: an exploration of continuity of care

    Hughes, S., 03/2010, (Unpublished) University of Manchester.

    Research output: ThesisDoctoral Thesis

  89. Master's Thesis
  90. Unpublished

    Men's grief responses

    Hughes, S., 1999, (Unpublished) Manchester Metropolitan University.

    Research output: ThesisMaster's Thesis

  91. Other contribution
  92. Published

    Benefits of integrated palliative care assessed by European Research consortium

    Varey, S. E. & Payne, S. A., 26/04/2016

    Research output: Other contribution

  93. Published
  94. Published
  95. Published
  96. Unpublished

    Post-web cognition: evolving knowledge strategies for global information environments

    Dix, A., Howes, A. & Payne, S., 01/2003, (Unpublished)

    Research output: Other contribution

  97. Published

    The psychosocial needs of cancer patients and their main carers.

    Thomas, C., Morris, S., McIllmurray, M. B., Soothill, K. L., Francis, B. J. & Harman, J. C., 2001, Lancaster : University of Lancaster.

    Research output: Other contribution

  98. Published

    Disability and the sociological imagination [videorecording]

    Thomas, C., Oliver, M., Barnes, C., Middelton, C. & Miles, S., 2001, Birmingham : Birmingham : C-SAP.

    Research output: Other contribution

  99. Published

    DIPEx. Department of Health funded WWW resource.

    Thomas, C., 2001, Oxford : University of Oxford.

    Research output: Other contribution

  100. Journal article
  101. Forthcoming

    Technology in Palliative Care (TIP): identification of digital health priorities for palliative care research using a modified Delphi method

    Nwosu, A., McGlinchey, T., Sanders, J., Stanley, S., Palfrey, J., Lubbers, P., Chapman, L., Finucane, A. & Mason, S., 3/12/2021, (Accepted/In press) In: JMIR Aging.

    Research output: Contribution to journalJournal articlepeer-review

  102. Published

    A good death in the child with life shortening illness: A qualitative multiple-case study

    Chong, P. H., Walshe, C. & Hughes, S., 1/12/2021, In: Palliative Medicine. 35, 10, p. 1878-1888 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  103. Published

    Experiences of staff providing specialist palliative care during COVID-19: A multiple qualitative case study

    Bradshaw, A., Dunleavy, L., Garner, I., Preston, N., Bajwah, S., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. E. M., Oluyase, A., Sleeman, K. E., Higginson, IJ. & Walshe, C., 20/11/2021, In: medRxiv.

    Research output: Contribution to journalJournal article

  104. Forthcoming

    The impact on emotional well-being of being a palliative care volunteer: An interpretative phenomenological analysis

    Coleman, H., Sanderson-Thomas, A. & Walshe, C., 17/11/2021, (Accepted/In press) In: Palliative Medicine.

    Research output: Contribution to journalJournal articlepeer-review

  105. Forthcoming

    Change in activity of palliative care services during the Covid-19 pandemic: a multi-national survey (CovPall)

    Dunleavy, L., Preston, N. & Walshe, C., 17/11/2021, (Accepted/In press) In: Journal of Palliative Medicine.

    Research output: Contribution to journalJournal articlepeer-review

  106. Forthcoming
  107. Forthcoming

    Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data

    Dunleavy, L., Walshe, C. & Preston, N., 10/11/2021, (Accepted/In press) In: Palliative Medicine.

    Research output: Contribution to journalJournal articlepeer-review

  108. Published

    MyPal ADULT study protocol: A randomised clinical trial of the MyPal ePRO-based early palliative care system in adult patients with haematological malignancies

    Scarfò, L., Karamanidou, C., Doubek, M., Garani-Papadatos, T., Didi, J., Pontikoglou, C., Ling, J., Payne, C., Papadaki, H. A., Rosenquist, R., Stavroyianni, N., Payne, S., Ghia, P., Natsiavas, P., Maramis, C. & Stamatopoulos, K., 2/11/2021, In: BMJ Open. 11, 11, 10 p., e050256.

    Research output: Contribution to journalJournal articlepeer-review

  109. E-pub ahead of print

    “Resuscitate and Push”: End-of-Life Care Experiences of Healthcare Staff in the Emergency Department – A Hermeneutic Phenomenological Study

    Bayuo, J., Anago, E. K., Agyei, F. B., Salifu, Y., Kyei Baffour, P. & Atta Poku, C., 29/10/2021, In: Journal of Palliative Care.

    Research output: Contribution to journalJournal articlepeer-review

  110. E-pub ahead of print
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