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International Observatory on End of Life Care

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  1. 2021
  2. Published

    Experience of Caregivers Supporting a Patient through Voluntarily Stopping Eating and Drinking

    Lowers, J., Hughes, S. & Preston, N., 16/02/2021, In: Journal of Palliative Medicine. 24, 3, p. 376-381 6 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  3. Published

    How to measure the effects and potential adverse events of palliative sedation? An integrative review

    Belar, A., Arantzamendi, M., Payne, S., Preston, N., Lee-Rijpstra, M., Hasselaar, J., Radbruch, L., Vanderelst, M., Ling, J. & Centeno, C., 1/02/2021, In: Palliative Medicine. 35, 2, p. 295-314 20 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  4. Published

    Perspectives on COVID-19 and palliative care research

    Walshe, C., 31/01/2021, In: Palliative Medicine. 35, 1, p. 4-5 2 p.

    Research output: Contribution to Journal/Magazine › Editorial

  5. Published

    Case Report: Implantable cardioverter defibrillator (ICD) deactivation in palliative care - a case involving best interest decisions for someone lacking capacity at the end of life

    Tan, C., Hanchanale, S., Sugrue, E. & Nwosu, A., 21/01/2021, In: AMRC Open Research. 3, 4, p. 1-4 4 p.

    Research output: Contribution to Journal/Magazine › Journal article

  6. Published

    What should we report? Lessons learnt from the development and implementation of serious adverse event reporting procedures in non-pharmacological trials in palliative care

    Dunleavy, L., Collingridge Moore, D., Korfage, I. J., Payne, S., Walshe, C. & Preston, N., 20/01/2021, In: BMC Palliative Care. 20, 1, 8 p., 19.

    Research output: Contribution to Journal/Magazine › Review article › peer-review

  7. Published

    Case Report: The use of advanced consent methodology and healthcare professional consultee to facilitate research participation in dying patients

    Stanley, S. & Nwosu, A., 11/01/2021, In: AMRC Open Research. 3, 3, p. 1-7 7 p.

    Research output: Contribution to Journal/Magazine › Journal article

  8. Published

    Missing not at random in end of life care studies: multiple imputation and sensitivity analysis on data from the ACTION study

    ACTION Consortium, 9/01/2021, In: BMC Medical Research Methodology. 21, 1, 12 p., 13.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  9. Published

    Palliative and end-of-life educational interventions for staff working in long-term care facilities: An integrative review of the literature

    Iida, K., Ryan, A., Hasson, F., Payne, S. & McIlfatrick, S., 1/01/2021, In: International Journal of Older People Nursing. 16, 1, 14 p., e12347.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  10. Published

    Palliative care needs-assessment and measurement tools used in patients with heart failure: a systematic mixed-studies review with narrative synthesis

    Remawi, B., Gadoud, A., Murphy, I. M. J. & Preston, N., 1/01/2021, In: Heart Failure Reviews. 26, p. 137-155 19 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  11. Published

    Health care professional recruitment of patients and family carers to palliative care randomised controlled trials: A qualitative multiple case study

    Dunleavy, L., 2021, Lancaster University. 352 p.

    Research output: Thesis › Doctoral Thesis

  12. 2020
  13. Published

    How views of Oncologists and Haematologists impacts Palliative Care Referral: A Systematic Review

    Salins, N., Ghoshal, A., Hughes, S. & Preston, N., 23/11/2020, In: BMC Palliative Care. 19, 19 p., 175.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  14. Published

    Exploring the psychological impact of life-limiting illness using the Attitude to Health Change scales: A qualitative focus group study in a hospice palliative care setting

    Dunleavy, L., Walshe, C. & Machin, L., 20/11/2020, In: European Journal of Cancer Care. 29, 6, 10 p., e13302.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  15. Published

    Advance care planning in patients with advanced cancer: A 6-country, cluster randomised clinical trial

    Korfage, I. J., Dunleavy, L., Payne, S. & Preston, N., 13/11/2020, In: PLoS Medicine. 17, 11, 16 p., e1003422.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  16. Published

    The challenges of caring for people dying from COVID-19: a multinational, observational study of palliative and hospice services (CovPall)

    Oluyase, A., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F., Bajwah, S., Sleeman, K. & Higginson, I. J., 4/11/2020, In: medRxiv.

    Research output: Contribution to Journal/Magazine › Journal article

  17. Published

    Understanding and addressing challenges for Advance Care Planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services.

    Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Oluyase, A., Maddocks, M., Sleeman, K., Higginson, I., Fraser, L. & Murtagh, F., 30/10/2020, In: medRxiv.

    Research output: Contribution to Journal/Magazine › Journal article

  18. Published

    Comparison of the experience of caregiving at end of life or in hastened death: A narrative synthesis review

    Lowers, J., Scardaville, M., Hughes, S. & Preston, N., 8/10/2020, In: BMC Palliative Care. 19, 16 p., 154.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  19. Published

    Exploration of the experiences of informal caregivers for people with a moderate to advanced dementia within a domestic home setting

    James, C., Walshe, C. & Swarbrick, C., 1/10/2020.

    Research output: Contribution to conference - Without ISBN/ISSN › Other

  20. Published

    The need for early referral to palliative care especially for Black, Asian and minority ethnic groups in a COVID-19 pandemic: Findings from a service evaluation

    Chidiac, C., Feuer, D., Flatley, M., Rodgerson, A., Grayson, K. & Preston, N., 1/10/2020, In: Palliative Medicine. 34, 9, p. 1241-1248 8 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  21. Published

    Nonparametric Time Series Summary Statistics for High-Frequency Accelerometry Data from Individuals with Advanced Dementia

    Suibkitwanchai, K., Sykulski, A., Perez Algorta, G., Waller, D. & Walshe, C., 25/09/2020, In: PLoS ONE. 15, 9, 23 p., e0239368.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  22. Published

    Decreased costs and retained QoL due to the 'PACE Steps to Success' intervention in LTCFs: cost-effectiveness analysis of a randomized controlled trial

    Wichmann, A. B., Adang, E. M. M., Vissers, K. C. P., Szczerbińska, K., Kylänen, M., Payne, S., Gambassi, G., Onwuteaka-Philipsen, B. D., Smets, T., Van den Block, L., Deliens, L., Vernooij-Dassen, M. J. F. J., Engels, Y. & group, P. T., 22/09/2020, In: BMC Medicine. 18, 1, 9 p., 258.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  23. Published

    The presence and intensity and the related changes over time of physical symptoms in the dying phase: A prospective cohort study of residents dying in care homes

    Partington, L., 09/2020, Lancaster University. 258 p.

    Research output: Thesis › Doctoral Thesis

  24. Published

    Peer support to maintain psychological wellbeing in people with advanced cancer: Findings from a feasibility study for a Randomised Controlled Trial

    Walshe, C., Roberts, D., Calman, L., Appleton, L., Croft, R., Skevington, S., Lloyd-Williams, M., Grande, G. & Perez Algorta, G., 17/08/2020, In: BMC Palliative Care. 19, 13 p., 129.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  25. Published

    A systematic review of the resource use of a palliative care approach in adult non-cancer patients with a life-limiting illness

    Gavini, S., Janke, K., Gadoud, A. & Salifu, Y., 14/08/2020, PROSPERO International prospective register of systematic reviews.

    Research output: Contribution to specialist publication › Article

  26. Published

    Communication patterns in nurse-led chemotherapy clinics: A mixed-method study

    Farrell, C., Chan, E. A., Siouta, E., Walshe, C. & Molassiotis, A., 1/08/2020, In: Patient Education and Counseling. 103, 8, p. 1538-1545 8 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

  27. Published

    Exploring a New Model of End-of-Life Care for Older People that Operates in the Space Between the Life World and the Healthcare System: A Qualitative Case Study

    Dodd, S., Preston, N., Payne, S. & Walshe, C., 1/08/2020, In: International Journal of Health Policy and Management. 9, 8, p. 344-351 8 p.

    Research output: Contribution to Journal/Magazine › Journal article › peer-review

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