International Observatory on End of Life Care

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2020
Published
Exploring a New Model of End-of-Life Care for Older People that Operates in the Space Between the Life World and the Healthcare System: A Qualitative Case Study
Dodd, S., Preston, N., Payne, S. & Walshe, C., 1/08/2020, In: International Journal of Health Policy and Management. 9, 8, p. 344-351 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative Care Implementation in Long-Term Care Facilities: European Association for Palliative Care White Paper
Froggatt, K., Moore, D. C., Van den Block, L., Ling, J., Payne, S. A., Kylanen, M. & PACE consortium, 1/08/2020, In: Journal of the American Medical Directors Association. 21, 8, p. 1051-1057 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Supporting adults bereaved through COVID-19: a rapid review of the impact of previous pandemics on grief and bereavement
Mayland, C. R., Harding, A., Preston, N. & Payne, S., 1/08/2020, In: Journal of Pain and Symptom Management. 60, 2, p. e33-e39 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Understanding the Outcomes of Supplementary Support Services in Palliative Care for Older People: A Scoping Review and Mapping Exercise
Dodd, S., Payne, S., Preston, N. & Walshe, C., 1/08/2020, In: Journal of Pain and Symptom Management. 60, 2, p. 449-459 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A systematic review of the resource use of a palliative care approach in adult non-cancer patients with a life-limiting illness
Gavini, S., Janke, K., Gadoud, A. & Salifu, Y., 14/08/2020, PROSPERO International prospective register of systematic reviews.
Research output: Contribution to specialist publication › Article
Published
Peer support to maintain psychological wellbeing in people with advanced cancer: Findings from a feasibility study for a Randomised Controlled Trial
Walshe, C., Roberts, D., Calman, L., Appleton, L., Croft, R., Skevington, S., Lloyd-Williams, M., Grande, G. & Perez Algorta, G., 17/08/2020, In: BMC Palliative Care. 19, 13 p., 129.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The presence and intensity and the related changes over time of physical symptoms in the dying phase: A prospective cohort study of residents dying in care homes
Partington, L., 09/2020, Lancaster University. 258 p.
Research output: Thesis › Doctoral Thesis
Published
Decreased costs and retained QoL due to the 'PACE Steps to Success' intervention in LTCFs: cost-effectiveness analysis of a randomized controlled trial
Wichmann, A. B., Adang, E. M. M., Vissers, K. C. P., Szczerbińska, K., Kylänen, M., Payne, S., Gambassi, G., Onwuteaka-Philipsen, B. D., Smets, T., Van den Block, L., Deliens, L., Vernooij-Dassen, M. J. F. J., Engels, Y. & group, PACE. T., 22/09/2020, In: BMC Medicine. 18, 1, 9 p., 258.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Nonparametric Time Series Summary Statistics for High-Frequency Accelerometry Data from Individuals with Advanced Dementia
Suibkitwanchai, K., Sykulski, A., Perez Algorta, G., Waller, D. & Walshe, C., 25/09/2020, In: PLoS ONE. 15, 9, 23 p., e0239368.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Exploration of the experiences of informal caregivers for people with a moderate to advanced dementia within a domestic home setting
James, C., Walshe, C. & Swarbrick, C., 1/10/2020.
Research output: Contribution to conference - Without ISBN/ISSN › Other
Published
The need for early referral to palliative care especially for Black, Asian and minority ethnic groups in a COVID-19 pandemic: Findings from a service evaluation
Chidiac, C., Feuer, D., Flatley, M., Rodgerson, A., Grayson, K. & Preston, N., 1/10/2020, In: Palliative Medicine. 34, 9, p. 1241-1248 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Comparison of the experience of caregiving at end of life or in hastened death: A narrative synthesis review
Lowers, J., Scardaville, M., Hughes, S. & Preston, N., 8/10/2020, In: BMC Palliative Care. 19, 16 p., 154.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Understanding and addressing challenges for Advance Care Planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services.
Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Oluyase, A., Maddocks, M., Sleeman, K., Higginson, I., Fraser, L. & Murtagh, F., 30/10/2020, In: medRxiv.
Research output: Contribution to Journal/Magazine › Journal article
Published
The challenges of caring for people dying from COVID-19: a multinational, observational study of palliative and hospice services (CovPall)
Oluyase, A., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F., Bajwah, S., Sleeman, K. & Higginson, I. J., 4/11/2020, In: medRxiv.
Research output: Contribution to Journal/Magazine › Journal article
Published
Advance care planning in patients with advanced cancer: A 6-country, cluster randomised clinical trial
Korfage, I. J., Dunleavy, L., Payne, S. & Preston, N., 13/11/2020, In: PLoS Medicine. 17, 11, 16 p., e1003422.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Exploring the psychological impact of life-limiting illness using the Attitude to Health Change scales: A qualitative focus group study in a hospice palliative care setting
Dunleavy, L., Walshe, C. & Machin, L., 20/11/2020, In: European Journal of Cancer Care. 29, 6, 10 p., e13302.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
How views of Oncologists and Haematologists impacts Palliative Care Referral: A Systematic Review
Salins, N., Ghoshal, A., Hughes, S. & Preston, N., 23/11/2020, In: BMC Palliative Care. 19, 19 p., 175.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
2021
Published
Health care professional recruitment of patients and family carers to palliative care randomised controlled trials: A qualitative multiple case study
Dunleavy, L., 2021, Lancaster University. 352 p.
Research output: Thesis › Doctoral Thesis
Published
Palliative and end-of-life educational interventions for staff working in long-term care facilities: An integrative review of the literature
Iida, K., Ryan, A., Hasson, F., Payne, S. & McIlfatrick, S., 1/01/2021, In: International Journal of Older People Nursing. 16, 1, 14 p., e12347.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Palliative care needs-assessment and measurement tools used in patients with heart failure: a systematic mixed-studies review with narrative synthesis
Remawi, B., Gadoud, A., Murphy, I. M. J. & Preston, N., 1/01/2021, In: Heart Failure Reviews. 26, p. 137-155 19 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Missing not at random in end of life care studies: multiple imputation and sensitivity analysis on data from the ACTION study
ACTION Consortium, 9/01/2021, In: BMC Medical Research Methodology. 21, 1, 12 p., 13.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Case Report: The use of advanced consent methodology and healthcare professional consultee to facilitate research participation in dying patients
Stanley, S. & Nwosu, A., 11/01/2021, In: AMRC Open Research. 3, 3, p. 1-7 7 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
What should we report? Lessons learnt from the development and implementation of serious adverse event reporting procedures in non-pharmacological trials in palliative care
Dunleavy, L., Collingridge Moore, D., Korfage, I. J., Payne, S., Walshe, C. & Preston, N., 20/01/2021, In: BMC Palliative Care. 20, 1, 8 p., 19.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
Case Report: Implantable cardioverter defibrillator (ICD) deactivation in palliative care - a case involving best interest decisions for someone lacking capacity at the end of life
Tan, C., Hanchanale, S., Sugrue, E. & Nwosu, A., 21/01/2021, In: AMRC Open Research. 3, 4, p. 1-4 4 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Perspectives on COVID-19 and palliative care research
Walshe, C., 31/01/2021, In: Palliative Medicine. 35, 1, p. 4-5 2 p.
Research output: Contribution to Journal/Magazine › Editorial
Published
How to measure the effects and potential adverse events of palliative sedation? An integrative review
Belar, A., Arantzamendi, M., Payne, S., Preston, N., Lee-Rijpstra, M., Hasselaar, J., Radbruch, L., Vanderelst, M., Ling, J. & Centeno, C., 1/02/2021, In: Palliative Medicine. 35, 2, p. 295-314 20 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Experience of Caregivers Supporting a Patient through Voluntarily Stopping Eating and Drinking
Lowers, J., Hughes, S. & Preston, N., 16/02/2021, In: Journal of Palliative Medicine. 24, 3, p. 376-381 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
15 Deathbed etiquette-support for being at the bedside of the person you love
Gadoud, A., Sanders, K., Nwosu, A., Elverson, J., Bassett, L. & Doherty, M., 1/03/2021, In: BMJ Supportive and Palliative Care. 11, Suppl 1, p. A6-A7 2 p.
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
What it means to be a palliative care volunteer in eight European countries: a qualitative analysis of accounts of volunteering
Scott, R., Goossensen, A., Payne, S. & Pelttari, L., 1/03/2021, In: Scandinavian Journal of Caring Sciences. 35, 1, p. 170-177 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
What mediates end-of-life care choices?
Bloomer, M. & Walshe, C., 1/03/2021, In: Lancet Public Health. 6, 3, p. E139-E140 2 p.
Research output: Contribution to Journal/Magazine › Editorial
Published
No difference in effects of ‘PACE steps to success’ palliative care program for nursing home residents with and without dementia: a pre-planned subgroup analysis of the seven-country PACE trial
Miranda, R., Smets, T., Van Den Noortgate, N., van der Steen, J. T., Deliens, L., Payne, S., Szczerbińska, K., Pautex, S., Van Humbeeck, L., Gambassi, G., Kylänen, M., Van den Block, L., Gatsolaeva, Y., Pivodic, L., Honinx, E., Tanghe, M., van Hout, H., Froggatt, K., Onwuteaka-Philipsen, B., Pasman, H. R. W., & 24 othersPiers, R., Baranska, I., Oosterveld-Vlug, M., Wichmann, A. B., Engels, Y., Vernooij-Dassen, M., Hockley, J., Leppäaho, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Hammar, T., Heikkilä, R., Moore, D. C., Kijowska, V., ten Koppel, M., de Paula, E. M. & PACE, O. B. O., 7/03/2021, In: BMC Palliative Care. 20, 1, 10 p., 39.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Investigation and management of iron deficiency anaemia in a specialist palliative care setting and the role of intravenous iron: a descriptive analysis of hospice data
Steele, T., Bonwick, H., Nwosu, A. & Chapman, L., 22/03/2021, In: AMRC Open Research. 3, 6, 19 p.
Research output: Contribution to Journal/Magazine › Journal article
Published
Prohibit, protect, or adapt? The changing role of volunteers in palliative and hospice care services during the COVID-19 pandemic. A multinational survey (CovPall).
Walshe, C., Garner, I., Dunleavy, L., Preston, N., Bradshaw, A., Cripps, R., Bajwah, S., Sleeman, K., Hocaoglu, M., Maddocks, M., Murtagh, F., Oluyase, A., Fraser, L. & Irene, H., 29/03/2021, In: medRxiv.
Research output: Contribution to Journal/Magazine › Journal article
Published
Evaluating the use of video communication technology in a hospital specialist palliative care team during the COVID-19 pandemic
Crosby, B., Hanchanale, S., Stanley, S. & Nwosu, A., 31/03/2021, In: AMRC Open Research. 3, 5
Research output: Contribution to Journal/Magazine › Journal article
Published
International practice in relation to hastened death and assisted dying
Gerson, S. M. & Preston, N., 31/03/2021, In: Annals of Palliative Medicine. 10, 3, p. 3524-3527 4 p.
Research output: Contribution to Journal/Magazine › Editorial › peer-review
Published
Overview of voluntarily stopping eating and drinking to hasten death
Lowers, J., Hughes, S. & Preston, N., 31/03/2021, In: Annals of Palliative Medicine. 10, 3, p. 3611-3616 6 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Clinical Aspects of Palliative Sedation in Prospective Studies: A Systematic Review
Arantzamendi, M., Belar, A., Payne, S., Rijpstra, M., Preston, N., Menten, J., Van der Elst, M., Radbruch, L., Hasselaar, J. & Centeno, C., 1/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 831-844 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
MyPal-Child study protocol: An observational prospective clinical feasibility study of the MyPal ePRO-based early palliative care digital system in paediatric oncology patients
Meyerheim, M., Karamanidou, C., Payne, S., Garani-Papadatos, T., Sander, A., Downing, J., Stamatopoulos, K., Ling, J., Payne, C., Scarfò, L., Lokaj, P., Maramis, C. & Graf, N., 13/04/2021, In: BMJ Open. 11, 4, 9 p., e045226.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Potentially Inappropriate Treatments at the End of Life in Nursing Home Residents: Findings From the PACE Cross-Sectional Study in Six European Countries
PACE consortium, 22/04/2021, In: Journal of Pain and Symptom Management. 61, 4, p. 732-742 11 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Hearing the voices of children diagnosed with a life-threatening or life-limiting illness and their parents’ accounts in a palliative care setting: A qualitative study
Ciobanu, E. & Preston, N., 1/05/2021, In: Palliative Medicine. 35, 5, p. 886-892 7 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Hospital-based social workers’ perceptions of generalist- and specialist-level palliative social work activities
Firn, J., Preston, N. & Walshe, C., 1/05/2021, In: Journal of Social Work. 21, 3, p. 416-434 19 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Constructivist Stakian Multicase Study: Methodological Issues Encountered in Cross-Cultural Palliative Care Research
Fearon, D., Hughes, S. & Brearley, S. G., 6/05/2021, In: International Journal of Qualitative Methods. 20
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Length of stay and palliative care: Understanding long-term care facility residents in Europe
Collingridge Moore, D., 19/05/2021, Lancaster University. 378 p.
Research output: Thesis › Doctoral Thesis
E-pub ahead of print
Women's experiences of advanced breast cancer in a resource-limited Arab context: A Stakian multi-case study
Fearon, D., Hughes, S. & Brearley, S., 21/05/2021, (E-pub ahead of print) In: Psycho-Oncology.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall)
CovPall Study Team, Dunleavy, L., Preston, N., Bajwah, S., Bradshaw, A., Cripps, R., Fraser, L., Maddocks, M., Hocaoglu, M., Murtagh, F. EM., Oluyase, A., Sleeman, K., Higginson, I. J. & Walshe, C., 31/05/2021, In: Palliative Medicine. 35, 5, p. 814-829 16 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Constructing a new role for family carers and volunteers providing care towards the end of life: An Action Research approach exploring a new model of hospice care
Walshe, C., Barnes, H., Turner, M. & Hughes, S., 31/05/2021, In: Health & Social Care in the Community. 29, 3, p. 837-845 9 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services
Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Maddocks, M., Oluyase, A., Sleeman, K. E., Higginson, I. J., Fraser, L. & Murtagh, F., 1/07/2021, In: Palliative Medicine. 35, 7, p. 1225-1237 13 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Technology in Palliative Care (TIP): the identification of digital priorities for palliative care research using a modified Delphi method
Nwosu, A., McGlinchey, T., Sanders, J., Stanley, S., Palfrey, J., Lubbers, P., Chapman, L., Finucane, A. & Mason, S., 3/07/2021, In: medRxiv.
Research output: Contribution to Journal/Magazine › Journal article
Published
Exploring the experience of recurrence with advanced cancer for people who perceived themselves to be cancer free: a grounded theory study
Economou, D., Walshe, C. & Brearley, S., 31/07/2021, In: Supportive Care in Cancer. 29, 7, p. 3885-3894 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
MyPal: Designing and Evaluating Digital Patient-Reported Outcome Systems for Cancer Palliative Care in Europe
Payne, S. A., Moore, D. C. & Stamatopoulos, K., 31/07/2021, In: Journal of Palliative Medicine. 24, 7, p. 962-964 3 p.
Research output: Contribution to Journal/Magazine › Editorial › peer-review

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