International Observatory on End of Life Care

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2022
Published
Symptom control and survival for people severely ill with COVID: a multicentre cohort study (CovPall-Symptom)
Higginson, I., Hocaoglu, M., Fraser, L., Maddocks, M., Sleeman, K., Oluyase, A., Chambers, R., Preston, N., Dunleavy, L., Bradshaw, A., Bajwah, S., Murtagh, F. & Walshe, C., 31/10/2022, In: Journal of Pain and Symptom Management. 64, 4, p. 377-390 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The experience of informal caregivers in providing patient care in hospitals in low- and middle-income countries: A qualitative meta-synthesis
Hogan, U., Bingley, A., Morbey, H. & Walshe, C., 31/10/2022, In: Journal of Health Services Research and Policy. 27, 4, p. 321-329 9 p.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
Impact of digital technology in care homes on Emergency Department attendances
Garner, A., Knight, J., Preston, N., Dixon, S., Watchorn, S., Caiado, C., McShane, C., King, G. & Mason, S., 22/11/2022, In: Emergency Medicine Journal. 39, 12, 1 p., A974.
Research output: Contribution to Journal/Magazine › Meeting abstract
Published
Refractory angina is a growing challenge for palliative medicine: a systematic review of non-invasive interventions
Murphy, I., Sivashankar, A. & Gadoud, A., 25/11/2022, In: BMJ Supportive and Palliative Care. 12, e6, p. e869-e881
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Presuppositions, cost–benefit, collaboration, and competency impacts palliative care referral in paediatric oncology: a qualitative study
Salins, N., Hughes, S. & Preston, N., 2/12/2022, In: BMC Palliative Care. 21, 1, 15 p., 215.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The European MyPal study: Developing digital health for adults and children with cancer
Payne, S. (ed.), Salifu, Y. (ed.), Begovic, D. (ed.) & Greenwood, A. (ed.), 16/12/2022, My Pal Project. 40 p.
Research output: Book/Report/Proceedings › Book
Published
An analysis of the experiences of bereaved relatives and health care providers following palliative sedation: a study protocol for a qualitative international multicenter case study
Van der Elst, M., Payne, S., Arantzamendi, M., Preston, N., Hasselaar, J., Centeno, C., Belar, A., Jaspers, B., Brunsch, H., Surges, S., Adile, C. & Menten, J., 23/12/2022, In: BMC Palliative Care. 21, 1, 8 p., 227.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Measuring relatives’ perceptions of end-of-life communication with physicians in five countries: a psychometric analysis
Koniewski, M., Barańska, I., Kijowska, V., van der Steen, J. T., Wichmann, A. B., Payne, S., Gambassi, G., Van Den Noortgate, N., Finne-Soveri, H., Smets, T., Van den Block, L., Szczerbińska, K. & project, PACE., 31/12/2022, In: European Journal of Ageing. 19, 4, p. 1561-1570 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
2023
Published
GC-MS Techniques Investigating Potential Biomarkers of Dying in the Last Weeks with Lung Cancer
Chapman, E., Baker, J., Aggarwal, P., Hughes, D., Nwosu, A., Boyd, M., Mayland, C., Mason, S., Ellershaw, J. E., Probert, C. & Coyle, S., 13/01/2023, In: International Journal of Molecular Sciences. 24, 2, 21 p., 1591.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Monitoring the clinical practice of palliative sedation (PALSED) in patients with advanced cancer: an international, multicentre, non-experimental prospective observational study protocol
Rijpstra, M., Vissers, K., Centeno, C., Menten, J., Radbruch, L., Mercadante, S., Van der Elst, M., Adile, C., Arantzamendi, M., Kuip, E., Payne, S., Preston, N. & Hasselaar, J., 28/01/2023, In: BMC Palliative Care. 22, 1, 9 p., 8.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
One step at a time; using compassionate communities’ model (COMPASS Ghana) to impact on the delivery of palliative and end-of-life care in resource-poor setting
Salifu, Y. & Davies, J., 8/02/2023, In: BMJ Supportive and Palliative Care. 13, Suppl 1
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
E-pub ahead of print
Deathbed Etiquette – The Guide: A Qualitative Study Exploring the Views of Practitioners on its Introduction into End-of-Life Care Settings
Kragh-Furbo, M., French, M., Dunleavy, L., Hancock, S., Sanders, K., Doherty, M. & Gadoud, A., 20/02/2023, (E-pub ahead of print) In: Journal of Palliative Care. p. 082585972311583 1 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Beautiful and winding yet unending story….
Salifu, Y., 28/02/2023
Research output: Exhibits, objects and web-based outputs › Blog
Published
Understanding the role and deployment of volunteers within specialist palliative care services and organisations as they have adjusted to the COVID-19 pandemic. A multi-national EAPC volunteer taskforce survey
Walshe, C., Pawłowski, L., Shedel, S., Vanderstichelen, S., Bloomer, M., Goossensen, A., Limonero, J., Sangild Stoelen, K., Caraffa, C., Pelttari, L. & Scott, R., 28/02/2023, In: Palliative Medicine. 37, 2, p. 203-214 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The impact of the mySupport advance care planning intervention on family caregivers’ perceptions of decision-making and care for nursing home residents with dementia: pretest-posttest study in six countries
Bavelaar, L., Visser, M., Walshe, C., Preston, N., Kaasalainen, S., Sussman, T., Cornally, N., Hartigan, I., Loucka, M., de Giulio, P., Brazil, K., Achterberg, W. & van der Steen, J. T., 1/03/2023, In: Age and Ageing. 52, 3, 9 p., afad027.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Compassionate Palliative Services: a new actor in Ghana
Davies, J. & Salifu, Y., 30/03/2023
Research output: Exhibits, objects and web-based outputs › Blog
Published
Linking the ‘point of care’ with the ‘point of life’: experiences from the MyPal project
Payne, S., Salifu, Y. & Begovic, D., 4/04/2023
Research output: Exhibits, objects and web-based outputs › Blog › peer-review
Published
A meta-synthesis of the transitioning experiences and career progression of migrant African nurses
Bayou, J., Abboah-Offei, M., Duodu, P. A. & Salifu, Y., 6/04/2023, In: BMC Nursing. 22, 1, 20 p., 104.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
How do caregivers of children living with HIV/AIDS cope, and where do they get support? A qualitative study in Ghana
Atanuriba, G. A., Apiribu, F., Laari, T. T., Boamah Bonsu, A. B., Dzomeku, V. M., Afaya, R. A., Salifu, Y. & Amooba, P. A., 30/04/2023, In: Lifestyle Medicine . 4, 2, e79.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
'Out of the frying pan into the fire’: a qualitative study of the impact on masculinity for men living with advanced Prostate Cancer
Salifu, Y., Almack, K. & Caswell, G., 29/05/2023, In: Palliative Care and Social Practice. 17, p. 1-14 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Healthcare use and healthcare costs for patients with advanced cancer; the international ACTION cluster-randomised trial on advance care planning
ACTION Consortium, 31/05/2023, In: Palliative Medicine. 37, 5, p. 707-718 12 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Examining the profound effects of COVID19 on mental health: A comprehensive systematic review on anxiety and depression
Salifu, Y., Maurer, P., Oprina, E., Alloh, F., Bardi, J. N. & Shivji, N., 1/06/2023, In: Psychreg Journal of Psychology. 7, 2, p. 45-81 37 p.
Research output: Contribution to Journal/Magazine › Literature review › peer-review
Published
Exploring the Concept of Transitions in Advanced Cancer Care: The European Pal_Cycles Project
Payne, S. A. & Hasselaar, J., 1/06/2023, In: Journal of Palliative Medicine. 26, 6, p. 744-745 2 p.
Research output: Contribution to Journal/Magazine › Editorial › peer-review
Published
Sense of Coherence at End of Life in Older People: An Interpretive Description
Gagne Henderson, R., Holland, C. & Walshe, C., 1/06/2023, In: Journal of Hospice and Palliative Nursing . 25, 3, p. 165-172 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
The experience of hospitalization in people with advanced chronic obstructive pulmonary disease: A qualitative, phenomenological study
Bakthavatsalu, B., Walshe, C. & Simpson, J., 1/06/2023, In: Chronic Illness. 19, 2, p. 339-353 15 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
P 17.016 Understanding Barriers and Facilitators to Palliative Care Research: Survey and Working Groups with Generalist and Specialist Health, Social Care and Research Professionals
Walshe, C., Dunleavy, L., Preston, N., Payne, S., Ellershaw, J., Taylor, V., Mason, S., Gadoud, A., Board, R., Swah, B., Partridge, A., Halvarson, J., Nwosu, A., Coyle, S., Dickman, A. & Hulbert-Williams, N., 7/06/2023, In: Palliative Medicine. 37, 1_suppl, p. 268
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
P 3.042 Deathbed Etiquette – The Guide: A Qualitative Study Exploring the Views of Practitioners on its Introduction into End of-Life Care Settings
Gadoud, A., Kragh-Furbo, M., French, M., Dunleavy, L., Hancock, S., Sanders, K. & Doherty, M., 7/06/2023, In: Palliative Medicine. 37, Issue 1_suppl , p. 121
Research output: Contribution to Journal/Magazine › Meeting abstract › peer-review
Published
Stakeholder Engagement as a Strategy to Enhance Palliative Care Involvement in Intensive Care Units: A Theory of Change Approach
Rao, S., Salins, N., Remawi, B., Rao, S., Shanbaug, V., Arjun, N. R., Bhat, N., Shetty, R., Karanth, S., Gupta, V., Jahan, N., Setlur, R., Simha, S., Walshe, C. & Preston, N., 30/06/2023, In: Journal of Critical Care. 75, 7 p., 154244.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Telehealth requires improved evidence to achieve its full potential in palliative care
Nwosu, A., 30/06/2023, In: Palliative Medicine. 37, 7, p. 896-897 2 p.
Research output: Contribution to Journal/Magazine › Editorial › peer-review
Published
Abstracts from the Lancaster Clinical Academic Trainee Symposium 2023
Chowdhury, S., Sharratt, P. & Gadoud, A., 1/07/2023, In: Morecambe Bay Medical Journal. 9, 4, p. 84-88 5 p.
Research output: Contribution to Journal/Magazine › Conference article
Published
Vetting of medical imaging referrals: A scoping review of the radiographers’ role
CLARKE, J., Akudjedu, T. & Salifu, Y., 31/07/2023, In: Radiography. 29, 4, p. 767-776 10 p.
Research output: Contribution to Journal/Magazine › Literature review › peer-review
Published
The experience of family carers for people with moderate to advanced dementia within a domestic home setting: a systematically constructed narrative synthesis
James, C. O., Walshe, C. & Swarbrick, C., 2/08/2023, In: medRxiv.
Research output: Contribution to Journal/Magazine › Journal article
Published
Non-invasive technology to assess hydration status in advanced cancer to explore relationships between fluid status and symptoms: an observational study using bioelectrical impedance analysis
Nwosu, A., Stanley, S., Mayland, C., Mason, S., McDougall, A. & Ellershaw, J. E., 25/08/2023, In: medRxiv.
Research output: Contribution to Journal/Magazine › Journal article
Published
Breaching the stalemate on assisted dying: it’s time to move beyond a medicalised approach
Preston, N., Payne, S. & Ost, S., 30/08/2023, In: BMJ. 382, p. 1968 1 p.
Research output: Contribution to Journal/Magazine › Comment/debate
Published
A Grounded Theory Study Exploring Palliative Care Healthcare Professionals’ Experiences of Managing Digital Legacy as Part of Advance Care Planning for People Receiving Palliative Care
Stanley, S., Higginbotham, K., Finucane, A. & Nwosu, A., 31/10/2023, In: Palliative Medicine. 37, 9, p. 1424-1433 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Developing a ward based research hub in a hospice; improving researcher engagement with staff in the hospice environment to promote research engagement and activity
Stanley, S., Nwosu, A. & Chapman, L., 6/11/2023.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Digital legacy and palliative care: Using technology, design and healthcare partnerships to research how digital information is managed after death
Nwosu, A., Stanley, S., Norris, J. & Taubert, M., 6/11/2023.
Research output: Contribution to conference - Without ISBN/ISSN › Poster › peer-review
Published
Ethical conundrums roundtable – The ethical implications of AI in digital legacy and managing grief.
Nwosu, A., 6/11/2023.
Research output: Contribution to conference - Without ISBN/ISSN › Other
Forthcoming
Writing for the world: Enhancing engagement and connection with an international audience
Walshe, C., Beernart, K., Chong, P. H., Lowe, S., Pereira, S. M. & Yardley, S., 20/11/2023, (Accepted/In press) In: Palliative Medicine.
Research output: Contribution to Journal/Magazine › Editorial
Published
A grounded theory of interdependence between specialist and generalist palliative care teams across healthcare settings
Thelen, M., Walshe, C. & Brearley, S., 1/12/2023, In: Palliative Medicine. 37, 10, p. 1474 - 1483 10 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
A Meta-Ethnographic Review of Paid Staff and Volunteers Working together in Palliative Care
Oliver, K., Brown, M., Walshe, C. & Salifu, Y., 1/12/2023, In: Journal of Pain and Symptom Management. 66, 6, p. 656-670 e.11.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
Health care professional recruitment of patients and family carers to palliative care randomised controlled trials: A qualitative multiple case study
Dunleavy, L., Preston, N. & Walshe, C., 1/12/2023, In: Palliative Medicine. 37, 10, p. 1540 - 1553 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
'Thank goodness you're here'. Exploring the impact on patients, family carers and staff of enhanced 7-day specialist palliative care services: A mixed methods study: A mixed methods study
Walshe, C., Mateus, C., Varey, S., Dodd, S., Cockshott, Z., Filipe, L. & Brearley, S., 1/12/2023, In: Palliative Medicine. 37, 10, p. 1484-1497 14 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Malignant pleural effusions: the patient experience
Jones, R., Steer, H., Preston, N. & Perkins, P., 7/12/2023, In: BMJ Supportive and Palliative Care. 13, e2, p. e254-e255
Research output: Contribution to Journal/Magazine › Letter
Published
Adaptation and multicentre validation of a patient-centred outcome scale for people severely ill with COVID (IPOS-COV)
Hocaoglu, M., Murtagh, F., Walshe, C., Chambers, R., Maddocks, M., Sleeman, K., Oluyase, A., Dunleavy, L., Bradshaw, A., Bajwah, S., Fraser, L., Preston, N. & Irene, H., 31/12/2023, In: Health and Quality of Life Outcomes. 21, 12 p., 29.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Advance care planning - Family carer psychological distress and involvement in decision making: The ACTION trial
Vandenbogaerde, I., De Vleminck, A., Cohen, J., Verkissen, M. N., Lapeire, L., Ingravallo, F., Payne, S., Wilcock, A., Seymour, J., Kars, M., Grønvold, M., Lunder, U., Rietjens, J., Van Der Heide, A. & Deliens, L., 31/12/2023, In: BMJ Supportive and Palliative Care. 13, e3, p. e807–e811 5 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
2024
Published
Online interviews for qualitative health research in Africa: a scoping review
Akyirem, S., Ekpor, E., Aidoo-Frimpong, G. A., Salifu, Y. & Nelson, L. E., 2/01/2024, In: International Health. 16, 1, p. 4-13 10 p.
Research output: Contribution to Journal/Magazine › Review article › peer-review
Published
Social relationships and community end of life care in Hong Kong: a three-stage model of social capital development
Chan, W-S., Payne, S. & Funk, L., 2/01/2024, In: Mortality. 29, 1, p. 159-175 17 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Applying Digital Health in Cancer and Palliative Care in Europe: Policy Recommendations from an International Expert Workshop (MyPal Project)
Payne, S., Begovic, D., Salifu, Y., Nelson, A., Payne, C., Downing, J., Natsiavas, P. & Ling, J., 30/01/2024, In: Journal of Palliative Medicine. 27, 2, p. 216-223 8 p.
Research output: Contribution to Journal/Magazine › Journal article › peer-review
Published
Experiences and perceptions of men following breast cancer diagnosis: A Mixed Method Systematic Review
Abboah-Offei, M., Bayou, J., Salifu, Y., Ayobami Afolabi, O. & Akudjedu, T., 6/02/2024, In: BMC Cancer. 24, 1, p. 179 1 p., 179.
Research output: Contribution to Journal/Magazine › Journal article › peer-review

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International Observatory on End of Life Care

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