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International Observatory on End of Life Care

  1. 2021
  2. Forthcoming

    Constructing a new role for family carers and volunteers providing care towards the end of life: An Action Research approach exploring a new model of hospice care

    Walshe, C., Barnes, H., Turner, M. & Hughes, S., 18/01/2021, (Accepted/In press) In : Health & Social Care in the Community.

    Research output: Contribution to journalJournal articlepeer-review

  3. Forthcoming
  4. E-pub ahead of print

    Exploring the experience of recurrence with advanced cancer for people who perceived themselves to be cancer free: a grounded theory study

    Economou, D., Walshe, C. & Brearley, S., 2/01/2021, In : Supportive Care in Cancer. 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  5. 2020
  6. Published

    Exploring the psychological impact of life-limiting illness using the Attitude to Health Change scales: A qualitative focus group study in a hospice palliative care setting

    Dunleavy, L., Walshe, C. & Machin, L., 20/11/2020, In : European Journal of Cancer Care. 29, 6, 10 p., e13302.

    Research output: Contribution to journalJournal articlepeer-review

  7. Published

    Advance care planning in patients with advanced cancer: A 6-country, cluster randomised clinical trial

    Korfage, I. J., Dunleavy, L., Payne, S. & Preston, N., 13/11/2020, In : PLoS Medicine. 17, 11, 16 p., e1003422.

    Research output: Contribution to journalJournal articlepeer-review

  8. Published

    The challenges of caring for people dying from COVID-19: a multinational, observational study of palliative and hospice services (CovPall)

    Oluyase, A., Hocaoglu, M., Cripps, R., Maddocks, M., Walshe, C., Fraser, L., Preston, N., Dunleavy, L., Bradshaw, A., Murtagh, F., Bajwah, S., Sleeman, K. & Higginson, I. J., 4/11/2020, In : medRxiv.

    Research output: Contribution to journalJournal article

  9. Published

    Understanding and addressing challenges for Advance Care Planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services.

    Bradshaw, A., Dunleavy, L., Walshe, C., Preston, N., Cripps, R., Hocaoglu, M., Bajwah, S., Oluyase, A., Maddocks, M., Sleeman, K., Higginson, I., Fraser, L. & Murtagh, F., 30/10/2020, In : medRxiv.

    Research output: Contribution to journalJournal article

  10. Published

    Nonparametric Time Series Summary Statistics for High-Frequency Accelerometry Data from Individuals with Advanced Dementia

    Suibkitwanchai, K., Sykulski, A., Perez Algorta, G., Waller, D. & Walshe, C., 25/09/2020, In : PLoS ONE. 15, 9, 23 p., e0239368.

    Research output: Contribution to journalJournal articlepeer-review

  11. Published

    Decreased costs and retained QoL due to the 'PACE Steps to Success' intervention in LTCFs: cost-effectiveness analysis of a randomized controlled trial

    Wichmann, A. B., Adang, E. M. M., Vissers, K. C. P., Szczerbińska, K., Kylänen, M., Payne, S., Gambassi, G., Onwuteaka-Philipsen, B. D., Smets, T., Van den Block, L., Deliens, L., Vernooij-Dassen, M. J. F. J., Engels, Y. & group, PACE. T., 22/09/2020, In : BMC Medicine. 18, 1, 9 p., 258.

    Research output: Contribution to journalJournal articlepeer-review

  12. E-pub ahead of print

    Clinical Aspects of Palliative Sedation in Prospective Studies: A Systematic Review

    Arantzamendi, M., Belar, A., Payne, S., Rijpstra, M., Preston, N., Menten, J., Van der Elst, M., Radbruch, L., Hasselaar, J. & Centeno, C., 19/09/2020, In : Journal of Pain and Symptom Management.

    Research output: Contribution to journalJournal articlepeer-review

  13. E-pub ahead of print

    Palliative and end-of-life educational interventions for staff working in long-term care facilities: An integrative review of the literature

    Iida, K., Ryan, A., Hasson, F., Payne, S. & McIlfatrick, S., 12/09/2020, In : International Journal of Older People Nursing. 14 p., e12347.

    Research output: Contribution to journalJournal articlepeer-review

  14. E-pub ahead of print

    Potentially Inappropriate Treatments at the End of Life in Nursing Home Residents: Findings From the PACE Cross-Sectional Study in Six European Countries

    PACE consortium, 8/09/2020, In : Journal of Pain and Symptom Management.

    Research output: Contribution to journalJournal articlepeer-review

  15. Published
  16. E-pub ahead of print

    Exploring the barriers and gateways to intersubjectivity in dementia care: A meta-ethnography

    Hodge, G., Froggatt, K., Limmer, M. & Bingley, A., 20/08/2020, In : Journal of Clinical Nursing.

    Research output: Contribution to journalJournal article

  17. Published

    Peer support to maintain psychological wellbeing in people with advanced cancer: Findings from a feasibility study for a Randomised Controlled Trial

    Walshe, C., Roberts, D., Calman, L., Appleton, L., Croft, R., Skevington, S., Lloyd-Williams, M., Grande, G. & Perez Algorta, G., 17/08/2020, In : BMC Palliative Care. 19, 13 p., 129.

    Research output: Contribution to journalJournal articlepeer-review

  18. Published

    Communication patterns in nurse-led chemotherapy clinics: A mixed-method study

    Farrell, C., Chan, E. A., Siouta, E., Walshe, C. & Molassiotis, A., 1/08/2020, In : Patient Education and Counseling. 103, 8, p. 1538-1545 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  19. Published

    Exploring a New Model of End-of-Life Care for Older People that Operates in the Space Between the Life World and the Healthcare System: A Qualitative Case Study

    Dodd, S., Preston, N., Payne, S. & Walshe, C., 1/08/2020, In : International Journal of Health Policy and Management. 9, 8, p. 344-351 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  20. Published

    Palliative Care Implementation in Long-Term Care Facilities: European Association for Palliative Care White Paper

    Froggatt, K., Moore, D. C., Van den Block, L., Ling, J., Payne, S. A., Kylanen, M. & PACE consortium, 1/08/2020, In : Journal of the American Medical Directors Association. 21, 8, p. 1051-1057 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  21. Published

    Supporting adults bereaved through COVID-19: a rapid review of the impact of previous pandemics on grief and bereavement

    Mayland, C. R., Harding, A., Preston, N. & Payne, S., 1/08/2020, In : Journal of Pain and Symptom Management. 60, 2, p. e33-e39 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  22. Published

    Understanding the Outcomes of Supplementary Support Services in Palliative Care for Older People: A Scoping Review and Mapping Exercise

    Dodd, S., Payne, S., Preston, N. & Walshe, C., 1/08/2020, In : Journal of Pain and Symptom Management. 60, 2, p. 449-459 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  23. Published

    Handbook of Theory and Methods in Applied Health Research: Questions, Methods and Choices

    Walshe, C. (ed.) & Brearley, S. (ed.), 31/07/2020, Cheltenham: Edward Elgar. 367 p.

    Research output: Book/Report/ProceedingsBook

  24. Published

    Conservative Management of COVID-19 Patients—Emergency Palliative Care in Action

    Fusi-Schmidhauser, T., Preston, N. J., Keller, N. & Gamondi, C., 1/07/2020, In : Journal of Pain and Symptom Management. 60, 1, p. e27-e30 4 p.

    Research output: Contribution to journalJournal articlepeer-review

  25. Published

    Protocol for a systematic review on the experience of informal caregivers for people with a moderate to advanced dementia within a domestic home setting

    James, C., Walshe, C. & Froggatt, K., 1/07/2020, In : PROSPERO.

    Research output: Contribution to journalJournal articlepeer-review

  26. Published

    Protocol for a systematic review on the experience of informal caregivers for people with a moderate to advanced dementia within a domestic home setting

    James, C., Walshe, C. & Froggatt, K., 19/06/2020, In : BMC Systematic Reviews.

    Research output: Contribution to journalJournal article

  27. Published

    Aims, actions and advance care planning by district nurses providing palliative care: an ethnographic observational study

    Walshe, C., 2/06/2020, In : British Journal of Community Nursing. 25, 6, p. 276-286 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  28. Published

    Ethical and research governance approval across Europe: Experiences from three European palliative care studies

    Preston, N., van Delden, J. J. M., Ingravallo, F., Hughes, S., Hasselaar, J., van der Heide, A., Van den Block, L., Dunleavy, L., Groot, M., Csikos, A. & Payne, S., 1/06/2020, In : Palliative Medicine. 34, 6, p. 817-821 5 p.

    Research output: Contribution to journalJournal articlepeer-review

  29. Published

    It’s not what they were expecting: a systematic review and narrative synthesis of the role and experience of the hospital palliative care volunteer

    Bloomer, M. & Walshe, C., 1/05/2020, In : Palliative Medicine. 34, 5, p. 589-604 16 p.

    Research output: Contribution to journalJournal articlepeer-review

  30. Published

    Strategies for the implementation of palliative care education and organizational interventions in long-term care facilities: A scoping review

    PACE, 1/05/2020, In : Palliative Medicine. 34, 5, p. 558-570 13 p.

    Research output: Contribution to journalReview articlepeer-review

  31. Published

    Digitisation and the Patient-Professional Relationship in Palliative Care

    Payne, S., Tanner, M. & Hughes, S., 30/04/2020, In : Palliative Medicine. 34, 4, p. 441-443 3 p.

    Research output: Contribution to journalEditorialpeer-review

  32. Published

    Physical restraining of nursing home residents in the last week of life: An epidemiological study in six European countries

    PACE consortium, 30/04/2020, In : International Journal of Nursing Studies. 104, 8 p., 103511.

    Research output: Contribution to journalJournal articlepeer-review

  33. E-pub ahead of print

    COVID-19: A personal perspective

    Walshe, C., 29/04/2020, In : Palliative Medicine. 2 p.

    Research output: Contribution to journalEditorial

  34. Published

    Disseminating research findings using a Massive Online Open Course for maximising impact and developing recommendations for practice

    Preston, N., Hasselaar, J., Hughes, S., Kaley, A., Linge-Dahl, L., Radvanyi, I., Tubman, P., van Beek, K., Varey, S. & Payne, S., 22/04/2020, In : BMC Palliative Care. 19, 8 p., 54.

    Research output: Contribution to journalJournal articlepeer-review

  35. E-pub ahead of print

    Emergency Palliative Care Planning and Support in a COVID-19 Pandemic

    Chidiac, C., Feuer, D., Naismith, J., Flatley, M. & Preston, N., 20/04/2020, In : Journal of Palliative Medicine.

    Research output: Contribution to journalLetterpeer-review

  36. Published

    Associations between length of stay in long term care facilities and end of life care. Analysis of the pace cross-sectional study

    Moore, D. C., Payne, S., Keegan, T., Deliens, L., Smets, T., Gambassi, G., Kylänen, M., Kijowska, V., Onwuteaka-Philipsen, B. & Van den Block, L., 16/04/2020, In : International Journal of Environmental Research and Public Health. 17, 8, 14 p., 2742.

    Research output: Contribution to journalJournal articlepeer-review

  37. Published

    Do journals contribute to the international publication of research in their field? A bibliometric analysis of palliative care journal data

    Walshe, C., Ahmed, F. & Preston, N., 1/04/2020, In : Palliative Medicine. 34, 4, p. 541-546 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  38. Published

    Medical Aid in Dying, Hastened Death and Suicide: A Qualitative Study of Hospice Professionals' Experiences from Washington State

    Gerson, S. M., Preston, N. & Bingley, A., 31/03/2020, In : Journal of Pain and Symptom Management. 59, 3, p. 679-686.e1 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  39. Published

    Swiss Families' Experiences of Interactions with Providers during Assisted Suicide: A Secondary Data Analysis of an Interview Study

    Gamondi, C., Pott, M., Preston, N. & Payne, S., 25/03/2020, In : Journal of Palliative Medicine. 23, 4, p. 506-512 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  40. E-pub ahead of print

    Hospital-based social workers’ perceptions of generalist- and specialist-level palliative social work activities

    Firn, J., Preston, N. & Walshe, C., 16/03/2020, In : Journal of Social Work.

    Research output: Contribution to journalJournal articlepeer-review

  41. E-pub ahead of print

    Comfort and clinical events at the end of life of nursing home residents with and without dementia: The six-country epidemiological PACE study

    Miranda, R., van der Steen, J. T., Smets, T., Van den Noortgate, N., Deliens, L., Payne, S., Kylänen, M., Szczerbińska, K., Gambassi, G., Van den Block, L. & PACE, O. B. O., 10/03/2020, In : International Journal of Geriatric Psychiatry. 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  42. E-pub ahead of print

    What it means to be a palliative care volunteer in eight European countries: a qualitative analysis of accounts of volunteering

    Scott, R., Goossensen, A., Payne, S. & Pelttari, L., 6/03/2020, In : Scandinavian Journal of Caring Sciences.

    Research output: Contribution to journalJournal articlepeer-review

  43. Published

    Factors Associated with Perception of the Quality of Physicians' End-of-life Communication in Long-Term Care Facilities: PACE Cross-Sectional Study

    Barańska, I., Kijowska, V., Engels, Y., Finne-Soveri, H., Froggatt, K., Gambassi, G., Hammar, T., Oosterveld-Vlug, M., Payne, S., Van Den Noortgate, N., Smets, T., Deliens, L., Van den Block, L., Szczerbińska, K., Adang, E., Andreasen, P., Collingridge Moore, D., van Hout, H., Ten Koppel, M., Mammarella, F. & 9 others, Mercuri, M., Onwuteaka-Philipsen, B. D., Pivodic, L., Rossi, P., Sowerby, E., Stodolska, A., Wichmann, A., van der Steen, J. T. & Vernooij-Dassen, M., 1/03/2020, In : Journal of the American Medical Directors Association. 21, 3, p. 439.e1-439.e8 8 p.

    Research output: Contribution to journalJournal articlepeer-review

  44. Published

    Perception of the Quality of Communication With Physicians Among Relatives of Dying Residents of Long-term Care Facilities in 6 European Countries: PACE Cross-Sectional Study

    Baranska, I., Kijowska, V., Engels, Y., Finne-Soveri, H., Froggatt, K., Gambassi, G., Hammar, T., Oosterveld-Vlug, M., Payne, S., Van Den Noortgate, N., Smets, T., Luc, D., Van den Block, L. & Szczerbińska, K., 1/03/2020, In : Journal of the American Medical Directors Association. 21, 3, p. 331-337 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  45. Published

    European Palliative Sedation Project

    Payne, S. A. & Hasselaar, J., 29/02/2020, In : Journal of Palliative Medicine. 23, 2, p. 154-155 2 p.

    Research output: Contribution to journalEditorialpeer-review

  46. Published

    Length of stay in long-term care facilities: A comparison of residents in six European countries. Results of the PACE cross-sectional study

    Moore, D. C., Payne, S., Keegan, T., Van Den Block, L., Deliens, L., Gambassi, G., Heikkila, R., Kijowska, V., Roeline Pasman, H., Pivodic, L. & Froggatt, K., 29/02/2020, In : BMJ Open. 10, 3, 13 p., e033881.

    Research output: Contribution to journalJournal articlepeer-review

  47. Published

    International palliative care research priorities: A systematic review

    Hasson, F., Nicholson, E., Muldrew, D., Bamidele, O., Payne, S. & McIlfatrick, S., 3/02/2020, In : BMC Palliative Care. 19, 1, 16 p., 16.

    Research output: Contribution to journalJournal articlepeer-review

  48. Published

    Coping strategies of patients with advanced lung or colorectal cancer in six European countries: Insights from the ACTION Study

    Jabbarian, L. J., Korfage, I. J., Červ, B., van Delden, J. J. M., Deliens, L., Miccinesi, G., Payne, S., Thit Johnsen, A., Verkissen, M. N., Wilcock, A., van der Heide, A. & Rietjens, J. A. C., 1/02/2020, In : Psycho-Oncology. 29, 2, p. 347-355 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  49. Published

    Perspectives of Elders and their Adult Children of Black and Minority Ethnic Heritage on End-of-Life Conversations: A Meta-ethnography

    De Souza, J., Froggatt, K., Walshe, C. & Gillett, K., 1/02/2020, In : Palliative Medicine. 34, 2, p. 195-208 14 p.

    Research output: Contribution to journalJournal articlepeer-review

  50. E-pub ahead of print

    Peer Mentors for People with Advanced Cancer: Lessons Learnt from Recruiting and Training Peer Mentors for a Feasibility Randomized Controlled Trial

    Walshe, C., Roberts, D., Calman, L., Appleton, L., Croft, R., Perez Algorta, G., Skevington, S., Lloyd-Williams, M. & Grande, G., 28/01/2020, In : Journal of Cancer Education. 9 p.

    Research output: Contribution to journalJournal articlepeer-review

  51. Published

    A group intervention to improve quality of life for people with advanced dementia living in care homes: the Namaste feasibility cluster RCT

    Froggatt, K., Dunleavy, L., Perez Algorta, G., Preston, N. & Walshe, C., 23/01/2020, In : Health Technology Assessment. 24, 6, p. 1-139 139 p.

    Research output: Contribution to journalJournal articlepeer-review

  52. Published

    Are the MORECare guidelines on reporting of attrition in palliative care research populations appropriate? A systematic review and meta-analysis of randomised controlled trials

    Oriani, A., Dunleavy, L., Sharples, P., Perez Algorta, G. & Preston, N. J., 9/01/2020, In : BMC Palliative Care. 19, 1, p. 6 15 p.

    Research output: Contribution to journalJournal articlepeer-review

  53. Published

    Challenges of undertaking a systematic review to measure residents’ length of stay in care homes

    Collingridge Moore, D., Payne, S., Keegan, T. & Froggatt, K., 2020.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  54. Published

    Palliative Care for Older People

    Collingridge Moore, D. & Payne, S., 2020, Encyclopedia of Biomedical Gerontology. Rattan, S. (ed.). Elsevier Academic Press

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  55. 2019
  56. E-pub ahead of print

    The perception of barriers concerning opioid medicines: A survey examining differences between policy makers, healthcare professionals and other stakeholders

    Vranken, M. J. M., Linge-Dahl, L., Mantel-Teeuwisse, A. K., Radbruch, L., Schutjens, M-HDB., Scholten, W., Payne, S. & Jünger, S., 23/12/2019, In : Palliative Medicine. 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  57. Published

    Evaluating the implementation of the PACE Steps to Success Programme in long-term care facilities in seven countries according to the RE-AIM framework

    Oosterveld-Vlug, M., Onwuteaka-Philipsen, B., Ten Koppel, M., Van Hout, H., Smets, T., Pivodic, L., Tanghe, M., Van Den Noortgate, N., Hockley, J., Payne, S., Moore, D. C., Kijowska, V., Szczerbińska, K., Kylänen, M., Leppaäho, S., Mercuri, C., Rossi, P., Mercuri, M., Gambassi, G., Bassal, C. & 5 others, De Paula, E. M., Engels, Y., Deliens, L., Van Den Block, L. & Pasman, H. R., 19/12/2019, In : Implementation Science. 14, 1, 19 p., 107.

    Research output: Contribution to journalJournal articlepeer-review

  58. Published

    ‘A friend in the corner’: supporting people at home in the last year of life via telephone and video consultation—an evaluation

    Middleton-Green, L., Gadoud, A., Norris, B., Sargeant, A. R., Nair, S., Wilson, L., Livingstone, H. & Small, N., 1/12/2019, In : BMJ Supportive and Palliative Care. 9, 4, 7 p., e26.

    Research output: Contribution to journalJournal articlepeer-review

  59. Published

    What are the main symptoms and concerns reported by patients with advanced chronic heart failure? — A secondary analysis of the palliative care outcome scale (POS) and integrated palliative care outcome scale (IPOS)

    Oriani, A., Guo, P., Gadoud, A., Dunleavy, L., Kane, P. & Murtagh, F. E. M., 30/11/2019, In : Annals of Palliative Medicine. 8, 5, p. 775-780 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  60. Published

    Evaluation of a Palliative Care Program for Nursing Homes in 7 Countries: The PACE Cluster-Randomized Clinical Trial

    Van Den Block, L., Honinx, E., Pivodic, L., Miranda, R., Onwuteaka-Philipsen, B. D., Van Hout, H., Pasman, H. R. W., Oosterveld-Vlug, M., Ten Koppel, M., Piers, R., Van Den Noortgate, N., Engels, Y., Vernooij-Dassen, M., Hockley, J., Froggatt, K., Payne, S., Szczerbińska, K., Kylänen, M., Gambassi, G., Pautex, S. & 4 others, Bassal, C., De Buysser, S., Deliens, L. & Smets, T., 11/11/2019, In : JAMA Internal Medicine. 180, 2, p. 233-242 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  61. Published

    Agreement of Nursing Home Staff With Palliative Care Principles: A PACE Cross-sectional Study Among Nurses and Care Assistants in Five European Countries

    Honinx, E., Smets, T., Piers, R., Deliens, L., Payne, S., Kylänen, M., Barańska, I., Pasman, H. R. W., Gambassi, G., Van den Block, L., Gatsolaeva, Y., Miranda, R., Pivodic, L., Tanghe, M., van Hout, H., Van Den Noortgate, N., Froggatt, K., Onwuteaka-Philipsen, B., Szczerbińska, K., Oosterveld-Vlug, M. & 21 others, Wichmann, A. B., Engels, Y., Vernooij-Dassen, M., Hockley, J., Leppäaho, S., Pautex, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Moore, D. C., Pac, A., Kijowska, V., Koppel, M. T., van der Steen, J. T. & Morgan de Paula, E., 1/11/2019, In : Journal of Pain and Symptom Management. 58, 5, p. 824-834 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  62. Published

    Trained facilitators' experiences with structured advance care planning conversations in oncology: an international focus group study within the ACTION trial

    ACTION Consortium, 31/10/2019, In : BMC Cancer. 19, 1, 13 p., 1026.

    Research output: Contribution to journalJournal articlepeer-review

  63. Published

    A framework for cross-cultural development and implementation of complex interventions to improve palliative care in nursing homes: the PACE steps to success programme

    Hockley, J., Froggatt, K., Van den Block, L., Onwuteaka-Philipsen, B., Kylänen, M., Szczerbińska, K., Gambassi, G., Pautex, S. & Payne, S. A., 24/10/2019, In : BMC Health Services Research. 19, 1, 11 p., 745.

    Research output: Contribution to journalJournal articlepeer-review

  64. Published

    A four-stage process for intervention description and guide development of a practice based intervention: refining the Namaste Care intervention implementation specification for people with advanced dementia prior to a feasibility cluster randomised trial

    Walshe, C., Kinley, J., Patel, S., Goodman, C., Bunn, F., Lynch, J., Scott, D., Davidson Lund, A., Stacpoole, M., Preston, N. & Froggatt, K., 21/10/2019, In : BMC Geriatrics. 19, 11 p., 275.

    Research output: Contribution to journalJournal articlepeer-review

  65. Published

    Palliative care provision in long-term care facilities differs across Europe: Results of a cross-sectional study in six European countries (PACE)

    ten Koppel, M., Onwuteaka-Philipsen, B. D., Van den Block, L., Deliens, L., Gambassi, G., Heymans, M. W., Kylänen, M., Oosterveld-Vlug, M. G., Pasman, H. R. W., Payne, S., Smets, T., Szczerbińska, K., Twisk, J. W. R., van der Steen, J. T., De Groote, Z., Mammarella, F., Mercuri, M., Pivodic, L., Pac, A., Rossi, P. & 14 others, Segat, I., Sowerby, E., Stodolska, A., van Hout, H., Wichmann, A., Adang, E., Andreasen, P., Finne-Soveri, H., Collingridge Moore, D., Froggatt, K., Kijowska, V., Van Den Noortgate, N., Vernooij-Dassen, M. & PACE, O. B. O., 1/10/2019, In : Palliative Medicine. 33, 9, p. 1176-1188 13 p.

    Research output: Contribution to journalJournal articlepeer-review

  66. Published

    Family members' experiences of assisted dying: A systematic literature review with thematic synthesis

    Gamondi, C., Fusi-Schmidhauser, T., Oriani, A., Payne, S. & Preston, N., 1/09/2019, In : Palliative Medicine. 33, 8, p. 1091-1105 15 p.

    Research output: Contribution to journalJournal articlepeer-review

  67. Published

    When is hastened death considered suicide? a systematically conducted literature review about palliative care professionals' experiences where assisted dying is legal

    Gerson, S. M., Bingley, A., Preston, N. & Grinyer, A., 31/08/2019, In : BMC Palliative Care. 18, 1, 13 p., 75.

    Research output: Contribution to journalJournal articlepeer-review

  68. Published

    Dying in long-term care facilities in Europe: The PACE epidemiological study of deceased residents in six countries

    Honinx, E., Van Dop, N., Smets, T., Deliens, L., Van Den Noortgate, N., Froggatt, K., Gambassi, G., Kylänen, M., Onwuteaka-Philipsen, B., Szczerbińska, K., Van Den Block, L., Gatsolaeva, Y., Miranda, R., Pivodic, L., Tanghe, M., Van Hout, H., Pasman, R. H. R. W., Oosterveld-Vlug, M., Piers, R., Wichmann, A. B. & 22 others, Engels, Y., Vernooij-Dassen, M., Hockley, J., Payne, S., Leppäaho, S., Barańska, I., Pautex, S., Bassal, C., Mammarella, F., Mercuri, M., Rossi, P., Segat, I., Stodolska, A., Adang, E., Andreasen, P., Kuitunen-Kaija, O., Moore, D. C., Pac, A., Kijowska, V., Ten Koppel, M., Van Der Steen, J. T. & De Paula, E. M., 30/08/2019, In : BMC Public Health. 19, 1, 12 p., 1199.

    Research output: Contribution to journalJournal articlepeer-review

  69. Published

    Consensus on treatment for residents in long-term care facilities: Perspectives from relatives and care staff in the PACE cross-sectional study in 6 European countries

    Ten Koppel, M., Pasman, H. R. W., Van Der Steen, J. T., Van Hout, H. P. J., Kylänen, M., Van Den Block, L., Smets, T., Deliens, L., Gambassi, G., Froggatt, K., Szczerbińska, K., Onwuteaka-Philipsen, B. D., De Groote, Z., Pivodic, L., Mammarella, F., Mercuri, M., Oosterveld-Vlug, M., Pac, A., Rossi, P., Segat, I. & 11 others, Sowerby, E., Stodolska, A., Wichmann, A., Adang, E., Andreasen, P., Finne-Soveri, H., Payne, S., Moore, D. C., Kijowska, V., Van Den Noortgate, N. & Vernooij-Dassen, M., 29/08/2019, In : BMC Palliative Care. 18, 1, 11 p., 73.

    Research output: Contribution to journalJournal articlepeer-review

  70. Published

    Research, recruitment and observational data collection in care homes: Lessons from the PACE study

    Moore, D. C., Payne, S., Van Den Block, L., Ten Koppel, M., Szczerbińska, K., Froggatt, K. & PACE consortium, 14/08/2019, In : BMC Research Notes. 12, 1, 6 p., 508.

    Research output: Contribution to journalJournal articlepeer-review

  71. Published

    Care home life and identity: A qualitative case study

    Paddock, K., Brown Wilson, C., Walshe, C. E. & Todd, C., 1/08/2019, In : The Gerontologist. 59, 4, p. 655-664 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  72. Published

    A theoretical framework of the factors affecting the end‐of‐life trajectory and provision of end‐of‐life care for people with intellectual disabilities (ID)

    Tuffrey-Wijne, I., Todd, S., Hatton, C., Glover, G., Heslop, P., Brearley, S., Hunt, K., Finlay, I. & Hollins, S., 1/07/2019, In : Journal of Intellectual Disability Research. 63, 7, p. 651-651 1 p.

    Research output: Contribution to journalMeeting abstractpeer-review

  73. Published

    Forgotten lives, hidden Deaths: people with ID living in and dying in non‐ID care settings

    Todd, S., Bernal, J., Hunt, K., Brearley, S. & McCarron, M., 1/07/2019, In : Journal of Intellectual Disability Research. 63, 7, p. 646-646 1 p.

    Research output: Contribution to journalMeeting abstractpeer-review

  74. Published

    Communicative constructions of person-centred and non-person-centred caring in nurse-led consultations

    Farrell, C., Walshe, C. E., Molassiotis, A. & Siouta, E., 1/06/2019, In : European Journal of Oncology Nursing. 40, p. 10–21 12 p.

    Research output: Contribution to journalJournal articlepeer-review

  75. Published

    Perceptions of a Good Death in Children with Life-Shortening Conditions: An Integrative Review

    Chong, P. H., Walshe, C. & Hughes, S., 1/06/2019, In : Journal of Palliative Medicine. 22, 6, p. 714-723 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  76. Published

    Physician Visits and Recognition of Residents' Terminal Phase in Long-Term Care Facilities: Findings From the PACE Cross-Sectional Study in 6 EU Countries

    PACE, 1/06/2019, In : Journal of the American Medical Directors Association. 20, 6, p. 696-702.e1 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  77. E-pub ahead of print

    Advance directives in European long-term care facilities: A cross-sectional survey

    Andreasen, P., Finne-Soveri, U. H., Deliens, L., Van Den Block, L., Payne, S., Gambassi, G., Onwuteaka-Philipsen, B. D., Smets, T., Lilja, E., Kijowska, V. & Szczerbińska, K., 21/05/2019, In : BMJ Supportive and Palliative Care. 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  78. Published

    Responses to assisted suicide requests: an interview study with Swiss palliative care physicians

    Gamondi, C., Borasio, G. D., Oliver, P., Preston, N. & Payne, S., 1/03/2019, In : BMJ Supportive and Palliative Care. 9, 1, p. e7 10 p., e7.

    Research output: Contribution to journalJournal articlepeer-review

  79. Published

    Palliative Care Provision for Patients with Advanced Chronic Obstructive Pulmonary Disease: A Systematic Integrative Literature Review

    Fusi-Schmidhauser, T., Riglietti, A., Froggatt, K. & Preston, N., 4/02/2019, In : COPD. 15, 6, p. 600-611 12 p.

    Research output: Contribution to journalJournal articlepeer-review

  80. Published

    How grandparents experience the death of a grandchild with a life-limiting condition

    Tatterton, M. & Walshe, C. E., 1/02/2019, In : Journal of Family Nursing. 25, 1, p. 109-127 19 p.

    Research output: Contribution to journalJournal articlepeer-review

  81. Published

    Opioid, antipsychotic and hypnotic use in end of life in long-term care facilities in six European countries: results of PACE

    Tanghe, M., Van Den Noortgate, N., Pivodic, L., Deliens, L., Onwuteaka-Philipsen, B., Szczerbinska, K., Finne-Soveri, H., Collingridge-Moore, D., Gambassi, G., Van den Block, L. & Piers, R., 1/02/2019, In : European Journal of Public Health. 29, 1, p. 74–79 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  82. Published

    Case series and practice reviews: Dregs at the bottom of the evidence pile or an essential link between frontline practice and research?

    Yardley, S., Pereira, S. M. & Walshe, C., 01/2019, In : Palliative Medicine. 33, 1, p. 3-4 2 p.

    Research output: Contribution to journalEditorial

  83. Published

    The experiences of family caregivers of people with advanced dementia living in nursing homes, with a specific focus on spouses: a narrative literature review

    Hennings, J. & Froggatt, K. A., 01/2019, In : Dementia. 18, 1, p. 303-322 20 p.

    Research output: Contribution to journalJournal articlepeer-review

  84. Published
  85. 2018
  86. Published

    Improving living and dying for people with advanced dementia living in care homes: a realist review of Namaste Care and other multisensory interventions

    Bunn, F., Lynch, J., Sharpe, R., Goodman, C., Walshe, C. E., Preston, N. J. & Froggatt, K. A., 6/12/2018, In : BMC Geriatrics. 18, 303, 15 p., 303.

    Research output: Contribution to journalJournal articlepeer-review

  87. Published

    "We call it jail craft": the erosion of the protective discourses drawn on by prison officers dealing with ageing and dying prisoners in the neoliberal, carceral system

    Peacock, M., Turner, M. & Varey, S., 1/12/2018, In : Sociology. 52, 6, p. 1152-1168 17 p.

    Research output: Contribution to journalJournal articlepeer-review

  88. Published

    Namaste Care in nursing care homes with people with advanced dementia: protocol for a feasibility randomised controlled trial

    Froggatt, K. A., Patel, S., Perez Algorta, G. D., Bunn, F., Burnside, G., Coast, J., Dunleavy, L. J., Hardwick, B., Kinley, J., Preston, N. J. & Walshe, C. E., 25/11/2018, In : BMJ Open. 8, 11 p., 026531.

    Research output: Contribution to journalJournal articlepeer-review

  89. Published

    Loneliness as a risk factor for care home admission in the English Longitudinal Study of Ageing

    Hanratty, B., Stow, D., Collingridge Moore, D., Valtorta, N. K. & Matthews, F., 1/11/2018, In : Age and Ageing. 47, 6, p. 896-900 5 p.

    Research output: Contribution to journalJournal articlepeer-review

  90. Published

    Quality of life trends in people with and without cancer referred to volunteer provided palliative care services (ELSA): A longitudinal study

    Walshe, C. E., Preston, N. J., Payne, S. A., Dodd, S. R. & Perez Algorta, G. D., 11/2018, In : Journal of Pain and Symptom Management. 56, 5, p. 689-698 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  91. Published

    Clear, simple, precise, meaningful: A quick guide to writing for publication

    Walshe, C. E., 15/10/2018, In : Indian Journal of Palliative Care. 24, 4, p. 391-392 2 p.

    Research output: Contribution to journalEditorial

  92. Published

    Using Participatory Action Research in the Development of an Innovative Cottage Hospice Model of Care in the United Kingdom

    Hughes, S., Barnes, H. E., Yardley, J., Turner, M. & Walshe, C. E., 2/10/2018.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  93. Published

    Volunteering and end-of-life care: An evidence based toolkit

    Walshe, C. E., Preston, N. J., Payne, S. A., Dodd, S. R., Perez Algorta, G. D., Hill, M. & Ockenden, N., 1/10/2018, Lancaster: Lancaster University.

    Research output: Book/Report/ProceedingsOther report

  94. Published

    Peer support for people with advanced cancer: a systematically constructed scoping review of quantitative and qualitative evidence

    Walshe, C. E. & Roberts, D., 1/09/2018, In : Current Opinion in Supportive and Palliative Care. 12, 3, p. 308-322 15 p.

    Research output: Contribution to journalJournal articlepeer-review

  95. Published

    Ageing and dying in the contemporary neoliberal prison system: exploring the 'double burden' for older prisoners

    Turner, M., Peacock, M., Payne, S. A., Fletcher, A. & Froggatt, K. A., 09/2018, In : Social Science and Medicine. 212, p. 161-167 7 p.

    Research output: Contribution to journalJournal articlepeer-review

  96. Published

    'Being with' or 'doing for'? How the role of an end-of-life volunteer befriender can impact patient wellbeing: interviews from a multiple qualitative case study (ELSA)

    Dodd, S. R., Hill, M., Ockenden, N., Perez Algorta, G. D., Payne, S. A., Preston, N. J. & Walshe, C. E., 09/2018, In : Supportive Care in Cancer. 26, 9, p. 3163-3172 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  97. Published

    A philosophical critique of the UK’s National Institute for Health and Care Excellence guideline ‘Palliative care for adults: strong opioids for pain relief’

    Fearon, D., Hughes, S. & Brearley, S. G., 1/08/2018, In : British Journal of Pain. 12, 3, p. 183-188 6 p.

    Research output: Contribution to journalJournal articlepeer-review

  98. E-pub ahead of print

    Mixed Method Research in Palliative Care

    Walshe, C. E., 6/06/2018, Textbook of Palliative Care. MacLeod, R. D. & van den Block, L. (eds.). Springer, 19 p.

    Research output: Contribution in Book/Report/Proceedings - With ISBN/ISSNChapter

  99. Published

    Integrated palliative care networks from the perspectives of patients: A cross-sectional explorative study in five European countries

    den Herder-van der Eerden, M., Ebenau, A., Payne, S., Preston, N., Radbruch, L., Linge-Dahl, L., Csikos, A., Busa, C., Van Beek, K., Groot, M., Vissers, K. & Hasselaar, J., 1/06/2018, In : Palliative Medicine. 32, 6, p. 1103-1113 11 p.

    Research output: Contribution to journalJournal articlepeer-review

  100. Published

    The Experience of Adolescents and Young Adults Treated for Cancer in an Adult Setting: A Review of the Literature

    Marshall, S., Grinyer, A. & Limmer, M., 1/06/2018, In : Journal of Adolescent and Young Adult Oncology. 7, 3

    Research output: Contribution to journalJournal articlepeer-review

  101. Published

    Facilitation of an end-of-life care programme into practice within UK nursing care homes: a mixed-methods study

    Kinley, J., Froggatt, K. A. & Preston, N. J., 06/2018, In : International Journal of Nursing Studies. 82, p. 1-10 10 p.

    Research output: Contribution to journalJournal articlepeer-review

  102. Published

    Palliative Care Nursing: Principles and Evidence for Practice

    Walshe, C. E., Preston, N. J. & Johnston, B., 31/05/2018, 3rd ed. McGraw-Hill / Open University Press. 544 p.

    Research output: Book/Report/ProceedingsBook

  103. Published

    Family Members’ Experiences and Needs When Witnessing Diminishing Drinking of a Dying Relative: A Systematic Literature Review

    Pettifer, A., Froggatt, K. A. & Hughes, S., 24/05/2018.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

  104. Published

    Perceptions and Experiences of Patients and Informal Caregivers in Advanced Chronic Obstructive Pulmonary Disease: An Exploratory Study

    Fusi-Schmidhauser, T., Froggatt, K. A. & Preston, N. J., 24/05/2018.

    Research output: Contribution to conference - Without ISBN/ISSN Posterpeer-review

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